✋

doctors often don’t go into specific conditions like EDS but rather how broad issues like connective tissue disorders appear in patients. I would suggest finding friends or groups with chronic illness for support. especially with how expensive specialists are at the moment.

That sounds really frustrating! I haven't had anyone refuse to treat me (yet), but I did find an Ehlers Danlos specialist to add to my team and that made my entire treatment picture a lot easier. I had to drive a long way (500ish miles) for the initial appointment, but they've been willing to do virtual appointments after that and been super helpful. It's made treating both my related and unrelated conditions a lot easier because my primary is able to focus on the unrelated issues. Doctors may not have specifically studied Ehlers Danlos in school, but they should be willing to do research to get an idea of it. If they're not willing to do that I would run the other direction.

Lol yasssss I mean I sort of think that it's just too much for most Dr's honestly.

🙌