See Alike in...

Alike App

Browser

Ballet_Bot23

445d

How does everyone manage to drink enough water for their POTS with GP. I have suspected POTS and I suspect I may have GP but my Dr won't put in a Gastro referral for me and I'm struggling to find a balance for the right amount of liquid that doesn't trigger GI symptoms.

Top reply
    • Teal100

      443d

      I don't, I have a peg-j 24 hr as couldn't get enough food by mouth never mind fluid. I'm struggling to tolerate the quantities needed through my peg-j anyway never mind trying to add more fluid. Hoping to have the option of iv fluids at some point as I think this would really help me.

    • Teal100

      443d

      I don't, I have a peg-j 24 hr as couldn't get enough food by mouth never mind fluid. I'm struggling to tolerate the quantities needed through my peg-j anyway never mind trying to add more fluid. Hoping to have the option of iv fluids at some point as I think this would really help me.

    • ZebracornV

      443d

      IV fluids - I paid out of pocket for a monthly subscription to one of those IV bars after testing it once or twice. After doing that for a year I had a main line placed and do IVs at home. I’ve also found that taking something to retain water is helpful, whether hydration is oral or IV. LMNT salt drinks have worked better for me than anything else I’ve tried.

    • Pfeiffer

      443d

      Hot or room temperature beverages are the best for me, anything cold causes major issues.

    • TunaGoon

      445d

      You can supplement with salt stick capsules or ask your Dr to give you a script for regular iv fluids when you have a flare up.

      • Ballet_Bot23

        445d

        @TunaGoon I'll definitely look at both of these options. I haven't got a formal diagnosis yet for either but thanks👍

    • SuccinctAbilities

      445d

      I’m in the same boat! Trying to get a gastro referral as my GP symptoms are getting worse, but in the meantime… Lots of pedialyte and as much water + protein shakes as I can manage. 😅

    • lamajama

      445d

      this is actually a really good question. i’m really struggling with this too you’re not alone

    • LeeannD

      445d

      I like peppermint tea to bounce off the top comment. Room temp. I find cold water really messes with me but if I slowly sip on room temperature water or tea I do fine. I also have a bottle with a straw. I do better with that vs feeling like I'm gulping half air with my liquid

    • Art_therapy

      445d

      I dont know if itll help you but I make a liter of turmeric ginger tea and drink that throughout the day. I get a good amount of water and the turmeric and ginger helps to calm down my gastroparesis. I also drink camomile and lavender tea at night which also helps the gp. Id recommend doing some research into this on your own to make sure it would work for you. Good luck!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion