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450d
How does everyone manage to drink enough water for their POTS with GP. I have suspected POTS and I suspect I may have GP but my Dr won't put in a Gastro referral for me and I'm struggling to find a balance for the right amount of liquid that doesn't trigger GI symptoms.
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Gastroparesis
Postural Orthostatic Tachycardia Syndrome (POTS)
Ehlers-Danlos Syndrome (EDS)
Esophagitis-Gastroesophageal Reflux Disease (GERD)
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447d
I don't, I have a peg-j 24 hr as couldn't get enough food by mouth never mind fluid. I'm struggling to tolerate the quantities needed through my peg-j anyway never mind trying to add more fluid. Hoping to have the option of iv fluids at some point as I think this would really help me.
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IV fluids - I paid out of pocket for a monthly subscription to one of those IV bars after testing it once or twice. After doing that for a year I had a main line placed and do IVs at home. I’ve also found that taking something to retain water is helpful, whether hydration is oral or IV. LMNT salt drinks have worked better for me than anything else I’ve tried.
448d
Hot or room temperature beverages are the best for me, anything cold causes major issues.
You can supplement with salt stick capsules or ask your Dr to give you a script for regular iv fluids when you have a flare up.
449d
@TunaGoon I'll definitely look at both of these options. I haven't got a formal diagnosis yet for either but thanks👍
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I’m in the same boat! Trying to get a gastro referral as my GP symptoms are getting worse, but in the meantime… Lots of pedialyte and as much water + protein shakes as I can manage. 😅
this is actually a really good question. i’m really struggling with this too you’re not alone
I like peppermint tea to bounce off the top comment. Room temp. I find cold water really messes with me but if I slowly sip on room temperature water or tea I do fine. I also have a bottle with a straw. I do better with that vs feeling like I'm gulping half air with my liquid
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I dont know if itll help you but I make a liter of turmeric ginger tea and drink that throughout the day. I get a good amount of water and the turmeric and ginger helps to calm down my gastroparesis. I also drink camomile and lavender tea at night which also helps the gp. Id recommend doing some research into this on your own to make sure it would work for you. Good luck!
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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