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KrisDaGremlin

748d

Hi! I'm Kris from Michigan and I'm new to Alike! I was wondering if eventually your epilepsy goes away after some years. I'm 17 going on 18 in a couple of months, and I was on a 6 month seizure-free streak before having one at school. Luckily I was in the class that has the most experience with me and my epilepsy.

Top reply
    • Parappagirl

      733d

      Can I have your discord Christina and I'm 17

    • Parappagirl

      733d

      Can I have your discord Christina and I'm 17

    • Phoebe23

      733d

      i was diagnosed at 13 (20 now) and was told that if i was able to remain seizure free for 2 years, there was a chance it could go away. every couple of years we get a sleep deprived EEG and it hasn't gone away yet. i *think* the older you are the less likely it is to go away, but brains are plastic and everyone's different

    • Lovely_lyssi

      746d

      As someone who has epilepsy and who has generations of history of epilepsy I don’t think it goes away I think it just becomes more controlled but my family only has like 2-3 different kinds of epilepsy and there are so many different kinds out there that I can’t speak for everyone. I agree with LCM with talking to your doctor but also once you find the right medication for you that controls it. I haven’t had a proper seizure in like 2-3 years now because my medication works for me most of the time I’ve been on it since I was first diagnosed when I was 11-12 and I’m 17 going on 18 in 5 months and 22 days although I’d been tested multiple times since I was a few months old and it took 12 years for me to have a full blown seizure and not just staring spells. So I recommend talking to your doctor about it and talk about the medications too because you could try a different one that fully controls it it takes experimenting until you find the one for you

    • KrisDaGremlin

      748d

      Thank you! I am diagnosed with Generalized convulsive epilepsy. I know I shouldn't joke about my epilepsy but I use the joke "I use 100% of my brain" when I have one. I'm working with a phycologist to help me transition a little since I am FTM, and testosterone doesn't go well with seizure medication in general. Dealing with it has been rough but I wish you the best of luck!

    • LCM

      748d

      Hi Kris! I’m new too and I have temporal lobe epilepsy, diagnosed as an adult 8 years ago. What I’ve learned is that epilepsy is complex. All bodies can change over time as we change and learn more. Epilepsy can cause other medical issues, and other medical issues can cause epilepsy. I’m currently working with my doctor to see if my epilepsy could be caused by my celiac disease. If you notice your body changing (less seizures, or more intermittent than before), I would try talking to your doctor about all your diagnoses and symptoms and asking them what they think.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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