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889d

What’s the biggest communication challenge with your doctor?

Top reply
    • Bre19

      106d

      @Lucas.exe felt

    • Beetlejuul

      109d

      The rheum I’m currently stuck with won’t prescribe new meds for my chronic pain. The meds I’m on do nothing but he keeps telling me to try Thai chi??

      • Zebrapotato37659

        108d

        @Beetlejuul Been there before. I’d recommend seeing if your primary doctor can prescribe you meds to help

    • Slugsinameatsuit

      123d

      Getting them to actually listen and hear my concerns. I can book a 30min session and be rushed in and out within 5. I understand I have a history with drug addiction but I'm honestly just trying to get some kind of mental health plan/counselling to try and be a at the last normal version of me.....

    • aloevera0

      127d

      i remember absolutely nothing when i’m there talking to them. i have to bring my mom so she can talk for me

    • KatieKitKat

      133d

      I tend to blank on what's happened over time & the things I knew I needed to talk about. But I just end up not remembering until I'm home after the appointment 🙃 😅 It's not that he doesn't listen/believe me/take me seriously. It's just I've been going to psychiatrists & therapists since I was 5-6. My diagnoses have been documented over time with research & testing. But after going into mental hospitals as a kid (1 in 3rd grade & the 2nd in 8th grade) I just always had this fear that if I said the wrong thing I'd be sent to another one. They weren't bad facilities it was just overwhelming. Especially the 2nd one cuz it was mainly done cuz the Dr that we were seeing would only put me in his care after he met me in the mental hospital (which looking back now was an iffy sign. Plus he ended up taking me off meds that worked & then put me on 3 antisychotics at the same time. (Which gave me the liver of an alcoholic which was 2nd warning)) But he was the only one my medicaid would pay for, but my dad retired early to use his bonus to get me to a better psychiatrist who got me all sorted out thankfully. But yeah I deal with my subconscious going "say the wrong thing & they'll lock you up!" Which I know they can't do unless with permission from my caretakers & it mostly happens when suicide/suicide attempts/extreme self harm is happening. It's just hard not to be scared you know?

    • _Rat_

      142d

      I do my best to push how serious my symptoms are but I’m often dismissed.

    • anniidoll13

      143d

      Him thinking I just want more opiates. I don't! But if it's gonna get me to work, cooking dinner, out exercising, playing with my kids, actually taking care of myself and doing everything as normally as possible then why won't you give me them???? We've tried all the others, we've gone down every road we could and we always end up back at dihydrocodeine and morphine. It's what works for me. So please listen to me when I say I'd rather cross the 'addict' bridge if we get there than be bedridden at 30 years old with young kids.

    • LeonardMartin

      163d

      Every dr i see about my knees assumes I mean my kneecaps. I had an orthopedic dr tell me my "kneecaps are supposed to move" when I was in for knee pain and subluxations

    • LeonardMartin

      187d

      Getting them to listen to me! I've been going to orthopedics for years and they only just figured out I have a torn mcl. This comes after a doc reduced to give me an mri, and told me my knees were supposed to hurt

    • Rozics

      188d

      Getting an appointment

    • ChickenGirl1204

      188d

      Ugh, not just one doctor but SEVERAL... 1) Just because my BMI has been high for most of my life and I've always been a bigger kid/teen/young woman, I've been told numerous times that losing weight would be healthy. I agree, I could afford to lose weight. The issue comes when the doctors don't seem to listen to the other conditions at hand before saying "oh, just lose weight" or "oh, eat better." As someone who just recently got their diagnosis of PCOS, it's far easier to tell me to lose weight than to actually do it. I can eat as healthy as I can and exercise, but the last thing I want you to tell me after all of this hard work is that it's not enough. 💔 2) My dentist needs to stop saying I have such large tonsils. 🤣 Seriously, you've been saying this since I was 5, I think I know they're large. 3) Overall, the biggest challenge is when you feel rushed during a visit or like the doctor is just checking boxes and not really listening to what you have to say. I'd rather have a doctor send me home with no diagnosis but a full hour of support/hard work to find a diagnosis rather than one that sends me home with a diagnosis just to get me out of their hair.

    • Bluefire

      189d

      I'm too heavy for any of them to take much into consideration despite the fact that I am DIAGNOSED, and also around here my PCP is so filled to the brim with medicaid patients I haven't even MET her, just her nurse practitioner who will literally say all is fine and then another nurse will call me two days later saying I immediately need a supplement or possible physical therapy

    • Zebrapotato37659

      190d

      The doctor won’t even look at the pages of notes you’ve written about just one health condition and dismisses my “issues”. Next few months rushed surgery (everything worked out great because of God)

    • ThunderBeetle

      195d

      He doesn't listen

    • Overcomer

      207d

      Explaining to them what I am feeling inside my body

    • ShortcakeBirdie

      407d

      I'll mention stuff for years and one day she's like, "that's actually very serious, you've never mentioned that before????" And I'll be like, "I've been complaining about it this entire time but ok" 💀

    • beebz

      407d

      When they blame my weight for a few of my health problems and I know in myself it's something more

    • kateafranklin

      407d

      the anxiety of, “do I look like im drug seeking or being dramatic?” When I know in reality, I’m not.

    • AnxiousPotato02

      408d

      My diabetes and her not getting back into can ntact with me even after I've told her about the extreme lows I have when I take the medication she prescribed to me, thinking she can regulate it. I'm a type 2 diabetic, and I work in a factory now and have for the last few months and so now my numbers stay in normal ranges for the most part.

    • TattsCatsNaps

      409d

      To me, I feel like I would have more if I didn’t flex my role as soon as I meet them. I introduce myself as the senior health professional I am - and they tend to always listen. However as a women, i feel if I didn’t do that, if I didn’t enter these conversations with “hi, nice to meet you, I’m CatsTatsNaps and I’m also a senior professional in …” then I’d be at a high risk of medical gaslighting

    • CancerFighter2015

      409d

      To me, it seems like they don't hear me out. Especially if I'm going through this pain just because they're not in me. But they truly don't understand how this condition affects my life to live normally and peacefully

    • ChoicelessHope

      409d

      They don't realize how close to the edge I really am. I tell them but no one believes me. I'm stuck in a Hamlet soliloquy 24/7

    • Winchester

      409d

      Everything. Getting appointments, getting help with the pain, just everything. All I got is self management for the pain when they haven't even managed the pain yet.

    • JessyP

      409d

      Getting him to realise I need more support and that sometimes I am not calling in the day because I am basically too ill

    • LemonApple

      409d

      My biggest problem is being heard. I always feel they are in a rush to get me out the door. Yet when ignore things for a long time and they build up they always say "why didn't you come in sooner?"

      • ChickenGirl1204

        188d

        @LemonApple Why didn't you have an earlier opening? 😜 Seriously, all love to doctor's and people in the medical field, but sometimes I already know what I'm feeling and doing and I don't need to be rushed through just so you can check off the "ope, they got their yearly wellness exam" box.

    • LE95

      410d

      just communication in general. asd / adhd maybe, but it requires me to get the doctor to repeat a lot and to oversimplify almost everything they tell me.

    • hydroepilepic21

      410d

      I dont like going to the Dr's for one, and for two, seeing new Dr's makes things worse.

    • Anon9827

      410d

      Don't worry you'll get diagnosed soon I wasn't diagnosed till I was 17. You just need to find the right doctor

    • AuDHDisney

      410d

      I'm having to get my 3rd ASD diagnosis, as they refuse to believe I could have succeeded in anything if I was "Actually autistic", so I'm fighting a false Histrionic Personality Disorder diagnosis. I've received no medical help for a year due to this.

    • seedling

      414d

      There's just never enough time!! This is not a "my doctor" problem, it's a systematic problem. I simply do not understand it. How can anyone receive the care they need after a 15 min conversation? I wish doctors and therapists were the same. Like you couldn't be one without being the other. In order to receive care, you must have hour-long sessions and address mental and physical health together. My doctor honestly does a fantastic job of that with the limited time we do have. I just wish there was more.

    • Bakon

      414d

      I get anxious and don't know where to start and I worry about taking up too much time, I worry about not being believed, I worry about sounding stupid, I worry a lot

    • WitchyWoman89

      418d

      With my psychiatrist specifically, her very real concern of me ever having a manic episode. I'm not manic often, and when I am I'm on top of the world and I clean and organize my house. I get brief angry manias, basically I'll blow up on my husband then immediately apologize and he knows it's not about him so he doesn't get upset. I'm normally depressed with zero motivation.

    • roseblue1

      419d

      I understand where you are coming from

    • GingerSnapple

      419d

      When they make assumptions instead of asking questions about what's happening with me. For example, if I say I'm in pain, they assume it is muscular and not my digestive issues or that I'm just looking for pain meds even with no history of addiction and not being on any pain medication.

    • LaurenRomero

      419d

      Knowing what the problem is but they won’t listen to me and fix it , they think I don’t know my body.

    • Angeliquet07734

      419d

      I don’t have any problems with my primary care Dr, she’s been great and really shows that she cares about my health but my psychiatrist forget it. I’m 48 years old and have had insomnia since I was a teenager and she refuses to treat it. Instead she offers me medications that I can’t take and I tell her this at every monthly appointment but still nothing. I know there’s thousands of other sleep meds out there but she won’t let me try any of them. I honestly don’t know why I’m still seeing her. I should ask if I can see someone else in the practice because I’m sick of not being heard 😑

    • NonbinarySlytherin

      419d

      Well, everything is caused by anxiety, I'm in my 20's so a page and half of diagnoses can't be true and I can't be taking a gallon baggy of medications either, you are strong and don't need help whether you can or can't hold a pencil or walk without mobility aids, I CAN'T DO THIS ANYMORE! (Yep a doc has said that due to my list of conditions.) Oh and my personal favorite is, "are you still in that boy phase?" Glad for the great doctors I have had and have now but sometimes they need a bit of work with peopling. But a lot of us do.

    • SomeKindaKid

      419d

      I will not accept “that’s just being a woman” as a response to every issue

    • Laura1999

      419d

      They blame most things on my weight even though I gained 5 stone when I became wheelchair bound for 3 years, even now when I've lost 2n half stone so far everything is still down to my weight 😥

    • FlyingLizards

      419d

      They keep avoiding the hints or direct requests I drop that I want to talk about my past relationships because they're screwing with me. I think they just think it's normal "young love" emotions or that I'm just horny. I'm 29. I have ED. I can't feel anything anymore.

    • amissundastood

      420d

      them gaslighting the sh1t out of me

    • beater.queen

      428d

      My psychiatrist is online, but she's been the favorite of the 3 I've had over my 27 years of life. She's very humble and I think that's really important in that field. I came to her with severe adhd problems coupled with a false bipolar diagnosis and she had me go get differential testing bc my therapist said she didn't think I was bipolar. Plottwist, I'm not bipolar and my old psychiatrist just threw me in the bipolar bucket bc I'm an adhd woman with social anxiety and rejection disphoria. My new psychiatrist is the only one who has ever taken me seriously. All my previous ones diagnosed me with all kinds of disorders that are not even applicable. My new psychiatrist really listened to me and my problems with my medication from the previous one and has been really supportive while being cautious about prescribing unnecessary medications.

    • StrugglebutnotQuit

      428d

      Doctors believe that every new/different symptom I have is to do with my condition so "nothing can be done". I think they go with that cause its easier than thinking well actually I am prone to getting other illnesses as well

    • BabyCJ

      428d

      I feel like whenever I go to the doctor's to talk about something they see the word 'Anxiety' on my paperwork and automatically believe that my problems stem from that. They don't actually listen to what I say. They just blame things on my anxiety

    • Mai0897

      428d

      I get told the referrals and medication requests that I need will get done and I will be treated but nothing ever gets chased or checked on so I am left to do it all myself.

    • Len

      429d

      Recently I've decided to go off DEPO because none of the doctors would listen to my concerns :(

    • JustJessNess

      429d

      🙌

    • Yuley

      429d

      My biggest communication challenge with drs is when 1) they don't have enough time to listen to your problem, 2) they sometimes don't bother to show up to the appointment or call to cancel it, 3) they prescribe drugs for a symptom not the cause, 4) they wind up prescribing more drugs to deal with the side effects of the medication previously prescribed, 5) they don't keep accurate records of what you are currently taking, 6) they don't think to check prescription interactions before prescribing something new, 7) it takes a call to 911 to get to the root of the problem in the first place, but by then it's too late damage has been done. This list does not apply to every Dr or every patient, but these are all things I've experienced. Best of luck to the rest of you!

    • 100p

      429d

      Just please be quiet for 1 minute and listen to me without interrupting. Once i finish describing my problem you are more than welcome to talk and ask questions but i just need that first 1 minute to talk without being bombarded with questions

    • Hiiieee

      429d

      I've noticed that doctors aren't very well versed on herpes which made it hard for me to figure out what to do at first. But after more personal research, I learned how to cope and treat myself outside of the antivirals my doctor gave me. So it would be better if they would maybe research a bit more when they get a Patient they don't know much about. Not just give them pills and that's it.

    • QueenBee90

      430d

      Was in sever pain, which turned out to be slipped disk I remember fully having a breakdown panic attack on the phone and the doctor was shouting at me 'I won't precibe any pain meds' didn't let me talk or explain my actialy symptoms fully, It's stuck with me ever since. Mentioned nothing and just stayed silent while I was having a breakdown right there and then over how much pain i was in 🙃 left to suffer and make myself worse if she'd of helped me then I wouldn't be half as bad now

      • Angeliquet07734

        419d

        @QueenBee90 yeah sounds familiar. A lot of drs and dentists are like this now. They are so afraid to prescribe any narcotics to anyone because to do so has become a liability due to the opioid crisis. I’ve been in excruciating pain for days with two infected teeth so I went to the dentist yesterday and I damn near hit the roof when he touched it and he only gave me some antibiotics. That’s it. I’ve been damn near overdosing on ibuprofen and I can’t get them pulled for a week. I can’t eat anything unless it’s soft, can’t sleep and my stomach’s upset from all the pills I’m taking. Last night I seriously considered going to the hospital

    • Zebrapotato37659

      430d

      Not wanting to give an official diagnosis and thinking I’m over exaggerating my pain

    • LilyUnicorn

      430d

      My doctor only listens to half of what i say and puts whatever she wants in my chart. Then i need to go back and correct things.

    • EliteLexy

      430d

      Aside from my Autism, his love for using scripture every chance he gets. I am not Christian and have a very hard time understanding his connections to his scripture and what the lessons are that he is trying to communicate.

      • Angeliquet07734

        419d

        @EliteLexy i really hate it when anyone does that. Not everyone is religious and not everyone is a christian. I’m an atheist myself but I don’t go around forcing my briefs down anyone’s throats. For instance, I have 3 kids that have 3 very different belief systems. I let them decide what’s right for them

      • Yuley

        429d

        @EliteLexy I've never experienced a Dr do this, but a lot of church goers do it all the time without thinking about what everyone else understands or believes.

    • Kelso9344

      430d

      My regular doctor has worked her butt off to help me with my mental health and migraines. Who I absolutely have issues with is the students who aren't doctors and they are practicing with regular check ups when my doctor doesn't have space. The last time I saw one he didn't listen to anything I had to say he just repeatedly tell me I had to go on a diet and lose weight. What he didn't know was I have an eating disorder and a few months before seeing him I fell 6ft off my porch onto concrete. I crushed discs, my spine was so out of line sections were moved, my pelvis is crooked, my tailbone was going the wrong way, and there is nerve damage. So when he brought in the main doctor to fat shame me more she asked how I've been exercising and dieting I looked right at the wanna be doctor and said "if he looked at my chart or let me speak he would see that I fell 6ft and (listed the damage). I also just go approved to see a neurologist for my migraines. So right now I'm more worried about being able to get out of bed in the morning than my weight." She understood and told me she hopes things will work out soon so I can be pain free before she left the room. And what does little wanna be doctor say? "You should talk to (doctors name) to get you on a weight loss medicine for your weight if you can't do it the right way." 😒

      • Yuley

        429d

        @Kelso9344 You should totally get the book "Things No One Will Tell Fat Girls" by Jess Baker. She is a lady that a lot of people fat shamed for years and now she's speaking out in a good way. My book club picked this book and I am totally loving it even though I'm only a little bit over my recommended weight. The point of the book is to stop the shame about body image and start loving our body no matter what it looks like, or how healthy it is. I truly believe you will love this book.

    • Njade

      430d

      My doctor won't listen when i say im sure i dont want to have children. She tries to convince me that i will change my mind. But i know myself and i have known what i want for a decade.

      • Yuley

        429d

        @Njade My Dr refuses to tie my tubes or donate my female parts to a woman who can't have children of her own just because I go to a Catholic hospital and they don't believe in that, but I already have enough children, and my fiancé is hyper fertile, so I understand your pain with this.

    • cat69

      431d

      Having drs prescrube medicatiins that later cause serioys sudeceffects without them warning yiu and torally ignoringvyou when you brungbup yoyr side effects and act like never heard that before when it is well researched and verified

      • Angeliquet07734

        419d

        @cat69 I’m dealing with that exact same thing. I was put on a medication 13 years ago for high blood pressure that isn’t a narcotic yet causes horrible physical withdrawal symptoms if you stop taking them. Like a heroin withdrawal. I’m still stuck taking them and god forbid I miss a dose then it gets dangerous. It causes something called rebound hypertension which means your blood pressure spikes dangerously high and is difficult to get back down. Then the vomiting starts, racing heart, hot and cold sweats, and severe body aches. I remember the Dr was really pushing this medication at the time too

    • Natz

      449d

      Having a doctor who will screen you with tests to get to the root cause rather than go in you off with false diagnosis or pills.

    • EmzPow

      449d

      Getting him to understand that I'm suffering despite medication and okish bloods... Bloods are not everything with autoimmune diseases or chronic conditions and that it's not fibro! I need help!

    • Pain_Warrior89

      451d

      That not everything is my fibromyalgia

    • MarVell84

      451d

      Getting to see a Dr to talk to them

    • CraftyMama

      451d

      Being hearing impaired, relying on lipreading, doctors wearing masks, not being able to hear clearly but typically not being seen as needing sign language interpreters because "I'm not 'THAT' Deaf"😒🤔

    • UnleggoedEggo

      451d

      My previous doctors didn't do anything about my ear infections, no antibiotics, no medication at all. They didn't believe how bad it hurt. When I finally went to an ENT, they said that I definitely had a bunch of fluid in my ears. They also told me that my adenoids were swollen and I had a deviated septum. None of my other doctors cared to check...

    • Juno2191

      452d

      Trying to convince someone that I am actually in pain, and that it is often quite high. I am used to hiding it that it's second nature, so if I don't look like I'm in pain then they don't believe me and won't help

    • ViikMal

      452d

      Getting listened to at all as an afab fat person. Instead of taking me seriously when I tell them about the things I have researched and learned I probably have, I. e. Autism, they assure me I can't because I don't fit some inaccurate outdated idea of physical markers for those things. Like yeah, I know you're "the Dr" and went to school for this. You're also a GENERAL practitioner, I'm asking for RESOURCES to SPECIALISTS who ACTUALLY went to school for THIS IN PARTICULAR, I've researched this for years, I fit almost every symptom, you don't take into account SOCIO-ECONOMIC factors that I as someone who wasn't born a cis amab individual underwent, thus changing outward appearance of symptom displays in public areas, and I want a freakin second opinion from someone who directly studies what I know I have, NOT FOR SOME GP UNDERSTUDY TO TELL ME MY FACE DOESN'T HAVE THE RIGHT SHAPE AND I MAKE EYE CONTACT SO I COULDN'T POSSIBLY BE AUTISTIC because the world acts like autistic is SUCH a BAD WORD!

    • Coraciidae

      452d

      I feel like sometimes my doctors can't understand what I'm going through. A lot seem to treat me as a number rather than a patient.

    • CoffeeBeanC

      453d

      Most are convinced its all psychosomatic, and I'll be magically cured when I leave my abusive home

    • LadyBrownharth

      453d

      With my past doctor it was because everything wrong with me was because I'm older and fatter. He would say "yep hang nail, it's because your heavier. These things happen as we age." "Yep migraines, you could try to lose weight but these things are a sign of age" "You're pre diabetic, it happens the long or heavier you get." "Your blood work is better then I expect for weight and age. [Not mentioning I have high cholesterol or blood pressure] "

    • Olivebutter2236

      453d

      Everyone is too obsessed with numbers on tests instead of what I am actually feeling in my body. They trust the numbers over my word and feelings.

    • Demon

      453d

      When they talk to the other person in the room rather than me...and when they try to tell me that when I'm saying is wrong itsnt actually wrong or how my condition works. like sir please don't confuse your 2 hour lecture on my 20 years of living with the condition!!!

    • SapleMyrup

      456d

      my therapist is convinced i’m not actually bipolar and keeps referring me to different psychiatrists. so far they have all diagnosed me as bipolar based on what i tell them and prescribed me the same medications because the medications i take are helping. now she thinks i have a hormonal imbalance or something and wants me to get blood work done. i really don’t want to keep seeing more doctors to try and prove i don’t have the disorder i was diagnosed with 5 years ago. i’ve been on meds for it for 4 years and they help significantly but i still need therapy for trauma and such. I don’t know why she’s rooting so hard for me to go off my meds when they are helping, and multiple psychiatrists have said the same thing. she’s a great therapist otherwise. I don’t know why she is so adamant about this.

    • mashed_potato

      456d

      I am so scared to bring up sexual issues and trama around that subject. I need to talk to a doc because I'm not sure if its physical or 100% emotional or both, but how tf do I even bring that up 🥲

    • AstraDragon

      456d

      My psychiatrist keeps trying to take me off my meds even tho my meds help me

    • Olivebutter2236

      456d

      "Maybe if I could trust doctors to make the effort to figure out why my body is doing all these abnormal things I wouldn't have to list all of my unexplained symptoms on google in search of a correlation and a proper diagnosis or ask a medical reddit thread all my unanswered questions and hope something reliable comes up. So much talk these days about people self diagnosing yet no awareness or consideration of the lack of professional and trust worthy doctors. If I felt like I could go into a doctors office and explain all my symptoms and be taken seriously and work pro actively to find treatments and solutions I'd never search shit on google ever again."

    • Pinkdreamer

      456d

      They refuse to treat me with what works, like they think they know me better than I know myself.

    • MagicBunny

      457d

      Having to prove to them i need more help but them not believing me because i "look normal" ..my pediatrician used to belittle me so much and scream at me if i tried to tell him i need to be properly diagnosed and he told be to be a good girl and take the wrong meds x.x... years later and i got diagnosed with Ehlers and many other things i had no idea of

    • CharlieAlien

      457d

      Got a new doctor and she rushes me through the appointment and makes me feel like I'm being ignored and like she doesn't believe me.

    • AstraDragon

      458d

      My doctor only ever asks my husband how I'm doing. She never asks me directly how I'm doing. I'm the one taking the medication and I'm the one who knows me best so shouldn't she be asking me?

      • Angeliquet07734

        419d

        @AstraDragon I would say that the next time that happens. Like hello 👋 I’m the patient and I’m sitting right here! 🙂

      • LadyBrownharth

        457d

        @AstraDragon she should be. I got really annoyed with my daughters old doctor because he kept asking be how my daughter feels while prescribing her antidepressants and anti-anxiety medication. She was 14-15, she knows how she feels better than I do. I had to switch doctors for her to one I didn't need me to attend with her so she could get her medication right. Maybe you should see the doctor without your husband going in with you.

    • PopDog

      458d

      my psychiatrist barely tells me anything or what i’m diagnosed but writes the diagnosis in a letter to my gp along with saying i’m not experiencing certain things anymore even though i am but couldn’t tell her because she didn’t ask or give me the chance to tell her anything that she hadn’t asked about

    • Nikki03

      458d

      They won't listen to me when I tell them I'm in pain.

      • LadyBrownharth

        457d

        @Nikki03 I feel the same.

    • Izzy94

      461d

      Ask for letters for accommodations and doctors notes and not answering me for weeks to months 😥

    • Hatchytt

      461d

      Not knowing when I should call and say something and when to chalk it up to my conditions acting up. I simply can't trust pain as a symptom. I have to wait for secondary symptoms. Had this happen just recently with "chest pain". Went to the ER, got told that my heart seems fine. Turned out to be likely an h. Pylori thing. And because no one told me that I can't take Pepto, I screwed up and couldn't actually get tested. It resolved before I could do testing.

      • LadyBrownharth

        457d

        @Hatchytt I looked up my medicine because I was having this weird pain in my chest and arm but the wrong side to be a heart attack. And found out that I can't take motrin, eat grapefruit or take the other medicine prescribed to me, which i had been doing the whole time. I'm not in the belief that the doctors know what you can and can't take. Pissed me off. Now I don't take a medicine without researching it's effects on my condition or other meds.

    • NoobularJess

      461d

      Their views and knowledge on my conditions. I have no idea what they truly believe and many doctors will happily pretend to be an expert on everything. Finding out you've wasted months going back and forth with a doctor convinced you're lying/ stupid is infuriating

    • QuinnRose

      461d

      Judging whether or not your telling the truth or not, and who to trust.

    • Zorosect

      461d

      Knowing who to tell

    • Tracks

      466d

      I just have a hard time explaining just in general, how I feel. I think it has something to do to the aphasia I have. Therapist, have told me before I say things but mean something else.

    • chloe309

      466d

      My new drs don't understand why I've been prescribed max cocodamol and naproxen for 4 years with the risks and are trying to get me to change and try different ones

    • Mr._Dank

      466d

      My psychiatrist prescribes me medication that isn’t for my conditions. It’s frustrating. She says “it can be used to treat this.” But it’s not made for it. And here I am, still very sick. It’s like I’m her Guinea pig pawn for her to get more money.

    • Pixxy

      466d

      It seems like none of my HEALTH CARE PROVIDERS wants to deal with my EDS. Idk what to do. It's just frustrating!

    • Shoyo1hinata

      466d

      My mental health.

    • basicallyahmx

      467d

      Not being taken seriously

    • feral.dyke

      467d

      also being constantly told to go back on antidepressants. it’s based on an assumption that my mental health issues are a chemical imbalance, which lots of peoples are not.

    • feral.dyke

      467d

      i’m fat and mentally ill. telling doctors that yes, i know that being fat can influence things and yes, i know being anxious isn’t good for your body but i PROMISE i have had these symptoms since before i gained weight and i know my anxiety really well is … hard. they don’t want to listen to me. they’re not willing to hear my side of my own story.

      • Bre19

        122d

        @feral.dyke I'm so sorry

    • KaiLuca

      468d

      My doctor asked why I wanted to be tested for something because he didn't think it would be useful to be diagnosed because of I was it wouldn't change anything meds I was taking ect. But I want to know what I have, I want to know that all these things haven't just been all in my head like so many doctors have said before...

      • Bre19

        122d

        @KaiLuca ughh that's the worst

      • justdoingmybest

        468d

        @KaiLuca My doctor said the same thing. Basically said “we’ll there’s no cure anyways so why would you go to a specialist to find out”. What is wrong with doctors.

    • Lilidoodles

      475d

      Definitely trying to get my drs to look past the psychiatric diagnoses and actually acknowledge the physical problems. Also, I’ve noticed issues with doctors sort of pushing me to get through the appointments quickly rather than letting me explain what I need to explain or ask the questions I need. Very frustrating

      • Bre19

        122d

        @Lilidoodles very frustrating

    • LilyUnicorn

      475d

      Teardrop try this migraine or chronic pain tour when you have are allergic to pain meds. Makes your day a whole lot more fun. Essential oils used properly can possibly help in the right combination and applied correctly.

    • KingDragon

      475d

      That I've tried all different kinds of diets, cutting out carbs/sugars/starches, eating 3 meals a day, eating smaller snack like meals throughout the day, exercising in the morning/noon/night, I've tried combining different advice from people and guess what none of it works and I don't have the money for like Noom/GOLO/etc.

    • Hedgehog9

      475d

      My doctor told me that antidepressants don't "fix unhappiness" and tried to convince me I was just unhappy..

      • Bre19

        122d

        @Hedgehog9 look for a new doc

      • Angeliquet07734

        419d

        @Hedgehog9 wow. Time for a new Dr

    • Deep_Feelings

      475d

      Not being heard or listened to, getting interrupted, and shutting down from the anxiety of not getting my concerns across. Also, when my concerns are shut down.

      • Bre19

        122d

        @Deep_Feelings felt

    • CSweet94

      475d

      The mofo literally DENIED HELPING ME with my depression yesterday!!!!! Like he said “well you’re on meds for that so you should be okay.” Despite my telling him I’m sleeping 16+ hours a day out of depression, losing interest in all hobbies, no sex drive, etc. Yet he completely just denied me any help…idk what to do because other psychiatrists want to mess with ALL of my meds or they think I’m a drug seeker because I’m on several meds. I just hate how being mentally Ill makes me feel like I’m a criminal in most psychiatrists offices. The ONLY reason I stay with my psychiatrist is because he got me stable for the first time in a decade. I’ll be forever grateful for that, I just wish he could help with my breakthrough depressive episode. 😔

    • TJisTired

      476d

      Getting them to look past my weight to the real problems. Yes I'm big but that doesn't mean I should be in pain 24/7

    • megmoon

      476d

      If you’re a young female with diagnosed anxiety, you’ll be written off and not taken as seriously (especially with male physicians)

    • The_Pained_Dinosaur

      476d

      Whenever I bring up an issue to my doctor, they tell me everything is interrelated (I am well aware that a lot of my issues are interrelated), and that I have to treat the other things first. They won't even take time to look into the issue that I'm bringing up, and they won't treat the other issues either.

    • WhoKnows

      476d

      They won't believe me, or they'll think I'm just drug-seeking. They've told me I was causing my own pain, I should just have a glass of wine, I was pursuing the wrong career path. They think I'm not willing to show up and put in effort, they won't believe I can't afford the appointments. Meds are fully covered by my insurance, it's the best option for me taking my whole life into account.

    • Bunny73

      476d

      My doctor tries to diagnose me with anything and everything and just wants to put me on medication without taking my actual needs or wants into consideration

    • Mouse12144

      476d

      They don’t listen to me when I was asking them for a reduction( as have massive boobs) , they also stopped my inhaler, cos I hadn’t seen a asthma doctor in 2 years (covid, lockdowns so I couldn’t) so I have to use the powder inhaler which doesn’t agree with me if I need to use my inhaler , luckily I don’t need it that often but still, have to ring before 8 am to even stand a chance of getting an appointment, you have to book a general appointment like 6 weeks in advance to even stand a chance of having one, it’s ridiculous

    • Ash.G

      476d

      Probably my biggest challenge with communicating about how I feel is I don't want to sound like I am a hypochondriac because my parents would always call me that when I was throwing up and so I am nervous that people would think that I am just wanting attention.

    • lune_mermxid

      476d

      My psychiatrist doesn't seem to listen to me until I actually present him with the symptoms that I've been persistently telling him for almost 2-3 years now? I was assigned with a psychiatrist through the NHS and he was insistent in sticking me with fluoxetine. See, that wouldn't be a bad thing but he completely neglected the manic episodes I've been experiencing for years. So you can imagine how hell it was.

    • Mr._Dank

      493d

      That I want to know if I have anything else to be diagnosed with. I keep getting prescribed medication for bipolar disorder and schizophrenia.. but I don’t think I’m schizophrenic, even though I’ve had many episodes of psychosis. But I possibly could be bipolar..

      • Angeliquet07734

        419d

        @Mr._Dank you can definitely have psychosis and not be schizophrenic. I have bipolar 1 disorder with psychotic features and have experienced tactile hallucinations but never actually saw anything that wasn’t there. The two conditions are usually treated with the same types of medication

    • TabbysMom

      493d

      That the pain is real. That I am not an addict.

    • Country_FLMama

      493d

      They just don't "get" it...

    • the_only_penguin

      493d

      They think my disorder isn't real or just in my head and offers nothing but this simple advice "just cope with it"

    • lillyput

      496d

      It's very hit and miss at my doctors. The last appointment I was told to "find an online forum for ideas". I have fibromyalgia and it seems like they just dont know what to do.

    • maharahnee

      496d

      I changed doctors this year. My👍new woman doctor is very supportive. My old male doctor was too set in his ways to be curious or even empathetic.

    • yumzy199725

      497d

      Them actually listening to what I have to say and down playing or completely disregarding what I have to say on too many occasions at a hospital appointment I have been treated like I'm making everything up or it's nothing the point is it's something to me! That should be enough for them to actually acknowledge what I'm saying 😭

    • feralsharkdog

      497d

      My anxiety makes it hard to speak up when I have questions or want to discuss something new. And my memory issues make it hard to remember everything I want to discuss when I do actually get the nerve to talk.

    • colourfulburrito

      501d

      My doctors all think I'm lying about my symptoms because they're not exactly visible and don't show up on my bloods. Plus it's the usual oh you're too young to have pain in your joints. Boils my piss.

    • cloudnine

      503d

      they always think i am drug seeking , or lying about symptoms

    • RainbowKai

      508d

      Getting them to believe me or not tell me my chronic pain is just period crmaps

    • Rayningtigress

      508d

      Hoping that they take my symptoms seriously

    • Jewelicorn

      510d

      Anxiety, and the doctors not listening when I do say something

      • Bre19

        121d

        @Jewelicorn I'm sorry

    • Chosen1618

      510d

      They don't listen 😥

      • Bre19

        121d

        @Chosen1618 I'm sorry

    • IceGoddess

      510d

      Me being the patient

    • Something_Strange

      511d

      I had to hop from therapist to therapist and worried I might have to do it again ...

    • Kittypop

      514d

      I recently got a new OBGYN who told me the reason I lost 20lbs super quickly last year was bc 2 of my medications can also be used for weight loss. My primary doc obviously knew this beforehand when I had explained I was concerned about the lost weight, but she wanted to run a bunch of tests instead- wracking up my bill. So it's safe to say I'll be looking for a new primary soon cause I just don't trust her anymore. She should've told me what the OBGYN told me. There's no way she didn't know that those medicines could be used for weight loss as well...

    • Sleak67

      523d

      Getting them to understand it's a neurological rare. NOT a mental health issue. But now I have a great team

    • Eren2273

      523d

      My biggest communication with any doctor is finding one that's actually good in the middle of nowhere

      • Bre19

        121d

        @Eren2273 that's difficult

    • ViikMal

      523d

      My biggest communication problem with my Dr is that they almost always say every single medical thing I have is related to my weight or my anxiety. They don't test me for anything until I bring it up and demand it, which is how I found out I had PCOS by the way, surprise surprise those massive painful periods and feeling like bursting inside me was on fact not just me being fat! It was a whole other thing. Everything boils down to I'm fat or I'm anxious and while both of those things are true they are not the reason why other medical issues are arising. Merely a symptom of it.

    • Bella5120

      524d

      Whenever I go to my doctor she always dismisses it and says its my anxiety. I get mad because she doesn't take me seriously.

      • Bre19

        121d

        @Bella5120 I'm so sorry

    • scurrly2

      524d

      Medical gaslighting is when a health care professional dismisses a patient's concerns or symptoms and wrongly blames their illness or symptoms on psychological factors. “You can have doctors convincing you it's all in your head or to defer to them because they're the professionals”

    • WhiteFlamingo

      524d

      My doctor really wants me to gain weight. I, on the other hand, am just happy that I managed to get to a steady 117 pounds after spending so long being at 105 as an adult. It's difficult to communicate that I'm not concerned about my weight anymore, and I'm sure it's difficult for her to tell me why I really should gain a few more pounds.

    • sleepyhippo

      524d

      My former doctor didn't take me seriously. I asked for a referral and she went on for like 5 minutes about how it's not her specialty but she really didn't think I'm autistic and she doesn't see how it could be that and she really thinks it's just anxiety blablabla. She was very dogmatic and if something she had me do or take didn't work then my only other option was a more extreme version (iron pills made me sick so she said my only other option was to go to the hospital for infusions, just eating more iron or taking a natural supplement by a high quality brand wouldn't possibly work as far as she was concerned.)

    • Pooge2255

      524d

      When they ask if your happy about your weight. Talking about my weight. Or when they ask about having an eating disorder

    • TLR

      524d

      Discussing side effects of medications or drug interactions. I don't get any answers

    • hydroepilepic21

      526d

      I just don't know how to get words out .

    • Healthproblems1111

      526d

      Nobody thinks my pain is coming from my hip dysplasia or my femoral anteversion and I can’t find the right doctor

    • Sincerely

      526d

      They expect to be paid.

    • hydroepilepic21

      527d

      I just don't know how to tell the Dr how I feel.

    • CozyVibez

      527d

      Many think I'm an addict to opioids. I would love to take opioids every day, sure, but I know the cons outweigh the benefits, especially long term. I use them strictly as needed, but many doctors don't believe me.

    • Asteroidrose

      527d

      the fact that they constantly medically gaslight me. and then I finally get diagnosed by going to three other doctors...

    • Ella101

      527d

      Um the fact that she never answers my calls and doesn’t help anymore.

    • Kapyin

      527d

      honestly?? getting my symptoms out in a coherent way-

    • Tracks

      527d

      My brain lol. All kidding aside, just takes a while to understand things.

    • WilburEffingSoot

      527d

      My meds aren't working. I went from 15mg of zolloft to 150 in just a few months. I keep saying "this Isn't working" and yet they keep going up. I keep getting new meds tvhat don't seem to work and some that are just nothing. Things feel worse, not better.

      • WhiteFlamingo

        524d

        @WilburEffingSoot I had a similar problem for years. I went through four different medications for Tourette Syndrome and they all made things worse. I finally said no to medication in general, but that didn't help. I was just tired of being disappointed. Recently, my boyfriend's mom convinced me to just try anxiety medication. Just try it, and I can stop it if it doesn't help. As it turns out, I needed anxiety meds, not TS meds. What I'm trying to say is: if all of these medications are for the same thing, try something for a different thing. My TS wasn't cured, but it certainly got better. Perhaps what you need is to focus on something else entirely. Also, ask your family members if they take anything that would treat your health problems. I take the same medication as my dad because of our similar genetics.

      • Kapyin

        527d

        @WilburEffingSoot yeahh i know that feeling.. i was on prozac for many years of them doing the exact same thing. i would say... 4th grade to 8th-9th. the only reason people figured out that it was doing more bad then good was when i started to talk casually about death. at a certain point, upping a med wont help, it will do worse. i strongly advise telling your doctor that the medication itself is whats making things feel worse. its a genuine thing that can be fixed with enough prodding. trust me. ❤️

    • Sully9016

      574d

      This is a long one... The biggest miscommunication or barrier with my doctors would be my mother. Blunt, I know, but she'd always speak for me, even though I've told her since I was a kid I knew how to take care of myself. I was put on anxiety medication when I was 14, she started giving me HER medicine (severe adult dosage) before even asking a doctor. When she did drag me into an office, she begged the doctor, demanding that I was unstable in the public. Her medicine made me physically sick, and I grew dependant on the medicine for a while. The doctor gave in and prescribed a new medicine to me. I was having a panic attack in his office, but because of her, not the doctor. All because I was having a sensory overload due to my (at the time) undiagnosed autism. Later on in my life, at 16 years old, she tried to turn my own psychiatrist against me because I caused all her problems, as she says. Thankfully, the doctor knew me well enough and heard my side of the story after she left. Overall, she acts like I don't have a voice. She's been doing this since I was a kid, acting like I was helpless.

    • bptomboy

      575d

      I feel i express so much but sometimes still dont pinpoint the most important detaiks leaving me with misguided advice or diagnosis'

    • catdad22

      575d

      My current PCP leans towards hardly ever taking my pain and other symptoms seriously. I don’t know that it’s possible to communicate beyond that.

    • Butterfly9937

      575d

      My heart doctor seems to always rush me. I found a myocardial infarction on my EKG print out. I had Noooo idea that I’d had a heart attack before. Then I thought back and I remembered. I had a textbook heart attack after I looked up the symptoms. I brought it up to him and he brushed it off as nothing to worry about. I have tachycardia. Have had it since my month long hospitalization in 2012. They couldn’t and still don’t know where it comes from. I was on Atenolol for the longest with no good results. My heart rate was still 100+ resting. It has been as high as as 150’s resting. I was placed on another medication that is totally working by another cardiologist smh. On my last appointment, I asked him to retest me for cpap. He brushed it off again stated, “you’ve been tested and you Need cpap!” I said NO! I’ve LOST OVER 100 POUNDS AND NEED TO BE TESTED! He heard me then after I was firm. He ordered the test. He hardly sees me so I don’t understand the struggle.

    • TheFriendlyGhost18

      575d

      They tend not to listen to me because I look younger than I am

    • Emmyyy

      575d

      Sometimes they jump to conclusions, like a doctor told me I had an std and I didn't know how that was possible because I'm not sexually active. Then I went to another doctor and they said I was perfectly fine..

    • Kramber

      575d

      I couldn’t control my anger today

    • emotrash27424

      575d

      I feel like I may be trans, but I'm not sure if I am. And telling the doctor that is hard for me. And also things that happen to me daily that are very dangerous that I want to tell her but I feel like I can't

    • effelle

      575d

      Anyone have any advice for going in to request a colonoscopy? I feel like I've been going insane for the last ~10yrs or so because I've had chronic pain in my right side and left side of my chest, and i can't get a doc to figure out what the deal is. ): I try to check with an urgent care, and they turn me away to an ER as soon as they figure out it's on the right side of my lower abdomen or the left side of my chest.

    • crumbling_shell

      578d

      Probably the fact that I schedule appointments and even if its something really serious I sleep it off the night before the appointment and then nothing shows up on the tests. Then the issues usually resume about a week later.

    • PlaslyMeds

      578d

      She thinks every single success I have means I can never ever relapse again/ I’m not putting in the effort to stay mentally ok

      • Kapyin

        527d

        @PlaslyMeds omg yes- im just scrolling through the replies here, so sorry for a really late reply! i have this on the physical side of things. one of my old physical therapists cancelled all my future appointments with them because the last time i came in i had "no pain at the moment" even though i told her that i gradually get worse through a session/activity. very frustrating!

    • eddie.luvs.u

      578d

      That I'm not exaggerating my symptoms just because I'm young and appear healthy from the outside

      • Bre19

        123d

        @eddie.luvs.u so true

    • Dad.of.Many

      578d

      Trying to get her to set me up with an endocrinologist about my low testosterone, because it has been very low most of my life and i think it may be the root of most of my problems

    • Fibrofoggirl

      579d

      I went to so many dr.s who kept saying it was in my head five years later 22 dr.s finally diagnosed 🤬

      • Bre19

        123d

        @Fibrofoggirl that's frustrating

    • Strawberryhk

      579d

      Actually being honest with my symptoms

    • Aquarius_Mage

      579d

      The fact they look at me like I'm insane for asking for more help with my mental health. Talk therapy doesn't work for me, and pills are barely a band-aid. And that's really all they have to offer.

      • Bre19

        123d

        @Aquarius_Mage I'm sorry

    • Nikki03

      579d

      I've been doing this for 12 years. I would give anything for just 1 day a single day to be pain free.

    • K.C

      581d

      My age and lack of understanding that I played sports for 17 years. Because of my age they don’t want to diagnose or really do much (at first until I bothered them enough to care) and they won’t take into account the years of multiple different sports I played starting at age 6 until I was forced to stop at 22 die to back and knee pain. After that I gained weight and then ALL my issues were because of that. So frustrating. I’m 31 now and am still having to overly communicate that I feel the sports plays an enormous part in my pain. AND I just had a diagnosis that I was given 2 years ago taken back why? “They said it’s definitely not that because you’re still young and they see this in ya know 40-50 year olds” yup… that’s verbatim from my doctor yesterday. I hate to break it to all them but the tears in my shoulder are also supposed to mostly be found on older people in their 50-80s but yet here I am BECAUSE ITS A SPORTS INJURY. 😒

    • blokeo

      581d

      Because of my mental illnesses, legitimate physical concerns are disregarded as just “being in my head”

      • K.C

        581d

        @blokeo my doctor tried that once. “All your pain could be related to your anxiety” then does literally nothing. Just those words. I swear sometimes they think oh mental illness they have no clue what’s actually going on with their OWN body they couldn’t! So frustrating.

    • BJSTREEHOUSE

      581d

      Judging by the length of this discussion, there is no doubt about the frustrations of NOT BEING HEARD!!! That's why I try to stick with female Drs. They listen better than their male counterparts. I always give them the opportunity to tell me their opinion before I try to tell them what I think. (Basic diplomacy) But I always do it in a way that shows them I am open to their opinion as the expert. That's why you are there. I am also very tenacious. I refuse to give up. I am my best advocate and I need their help.

    • Denotchka

      581d

      We have to remember, these medical schools are hooked up to Big PHARMA ergo they’re spouting that agenda. This is why general nurse practitioners are becoming popular because they are being trained in the natural treatment of illness and it’s one reason why we need to encourage them and doctors to expand their medical knowledge base.

    • mobychick

      581d

      I get embarrassed of my conditions and symptoms and usually down play it

      • Ash.G

        476d

        @mobychick yeah I down play my symptoms too.

    • Starlightie

      608d

      It's hard for me to communicate how medication makes me feel because I always feel like it's not effective. Doctors will just keep increasing my doses and I don't know how to tell them I want to try something new without sounding like I'm drug seeking. I've had a serious issue with all my doctors treating me like I'm drug seeking and then never giving me to chance to just try something different. It was a long battle just to get on ADHD meds and now I'm in a tug of war with my doctors trying to take me off of sleeping pills even though I show absolutely no signs of drug abuse. If anything, I'm paranoid of abusing my meds so I don't actually take them when I need them and I'll wait until I get delirious from sleep deprivation...

    • Basil_Bay

      608d

      my doctor consistently telling me I am too young to be sick in any way shape or form, not looking into my joint pain or the constantly swollen glands in my neck, not letting me see a cardiologist until 5 years after my pots symptoms first started.

    • Cskyet91

      608d

      I have thankfully been blessed with a good doctor. He explains things and gives you the options. Goes by his first name with everyone, just a great guy. The only issue I've had is trying to figure out what a pain in my upper left side is. Randomly reoccurring, so catching it has been problematic. We're trying though

    • kitty_cat

      608d

      Before my current doctor I would get looked at strangely because I’m so young. Luckily my primary care team (primary care doctor and oral and maxillofacial surgeons/specialists) do understand that I need a lot of help, and they will happily give me referrals, medication, etc whenever I ask. My biggest communication problem seems to be that they don’t understand that I can’t get the treatments I need because I can’t afford them. I was 19 when I was greatly injured and had no money at the time. My parents and grandma have spent tens of thousands of dollars on my surgeries and procedures, but I need several more, and am unable to get them because we’ve run out of funds. My husband (24) and I (25) declared bankruptcy and had to move back in with my parents and everyone is trying to make enough but I literally can’t be seen to have things fixed when there’s no money to afford the fixes. My doctors try to get insurance to cover things, but the amount is just too high. I feel so stuck because my pain is too bad that I can’t work, and my disability claim was rejected. I tried to find a lawyer or someone to help me with my case, but no one would and I was actually turned away for being “too young”. I don’t know what to do. I feel like I’m not even living anymore.

    • Isu

      609d

      She always thinks I'm overreacting because we can't get to the bottom of certain problems

    • Joie

      609d

      They never want to treat me as whole, they just want to know what is the worst symptom and we'll treat that, usually with drugs. No one talks about nutrition or how my mind works with situations and how it can relate. But I know so many things are related to each other but no one will look at all of it together. I feel rushed.

    • Katharina

      609d

      To be more sympathetic less logical all the time. More use the common knowledge than what fits the book. Granted I know that’s ther job and it get its done. But no everyone fits into boxes. I’m a human being that wants your CARE not another problem to be solved. And if I can’t be so tell me I don’t deal with __ just bc it’s dosent show to you.

    • AngellMwi

      609d

      I live in an area where it's known as a "boys club". Due to my own PTSD around men, speaking to the Drs & trying to explain to them that they could be wrong and here's the proof, is so friggin hard. I start crying and look hysterical. Which just feeds into thier mental stereotype. So in general, any communication with the male Drs where I live is challenging

    • shariadams

      631d

      I think when a person knows their body and tries to explain it to the Dr and they get offended . That's annoying

    • Cmill

      631d

      I have had doctors look me in the face, after hearing and SEEING what is wrong with me, tell me that I need psychiatric help. I was a critical care nurse, I know what is needed and what isn’t. No mental illness causes a spine to collapse.

    • dimemanda

      631d

      They have bad accents

    • VoodooHorizon

      631d

      accurately describing how I feel or what exactly is going on in terms that a NP or PA will understand. my therapist gets it and will ask questions but doctors or ones more on the medical side don't really understand it as much?

    • nerd.of_all.things

      631d

      I forget to mention symptoms, or I forget how much I'm actually affected by symptoms.

    • Amarand26

      631d

      Me telling them what’s I’ve been feeling and them brushing me off like there is nothing wrong with me or just saying here take this drug instead of trying to find what’s actually wrong with me.

    • Tobydottir

      631d

      Meds aren't tested on Native Americans, so I'm often pressured to take things that Natives tend to have trouble with

    • EthanMJones

      631d

      I would say for me it’s the fact that I’m nervous of what they will say to me about the issue I’m trying to tell them

    • LeighRose

      631d

      Weight! I know I'm overweight I am on meds to help, I'm dieting, exercising and paying more attention to food intact. For some reason even if it has nothing to do with my weight any new specialist I see had to say something about it. I start every introduction now with, "I am aware of my weight and already have a plan in place to work on it, I am not seeking or open too consolation or suggestions on weight lose, and I would like to skip any decision about weight unless it is medically necessary."

    • depressedunicorn

      632d

      At least with western medicine I always get shoved off like there's nothing they can do that's why I went to a natural doc

    • tattooedlizardlady

      632d

      Not being able to afford the tests that insurance doesn't find "medically necessary".

    • Blueberryyu

      632d

      Being told it’s anxiety

    • Mooey

      632d

      I think its called “gaslighting” when your concerns are dismissed or brushed off. Im told, Well, you are getting older(Im 71), or You need to watch your diet and exercise.

    • Lolalove

      632d

      They don't take me seriously when I tell them I think I have an eating disorder. I've gone from binging to restricting.

      • Isu

        608d

        @Lolalove same my parents won't get me therapy when they know I binge and purge

    • Kyrabooo

      632d

      I really struggle to get across how severe symptoms or issues are. It’s like the harder I try to convince a doctor that something is a problem, the quicker they dismiss me.

    • Kyrabooo

      632d

      The biggest challenge is straight up fatphobia. I have several conditions that cause weight gain. But they’ll refuse to treat anything until I somehow magically lose weight because they want to “see if that helps first”

    • Saillea

      632d

      The fact that most of my medical team knows absolutely nothing about MCAS and how it affects the rest of my body astounds me daily.

    • Faye123

      632d

      Not communication but general incompetence. I had gall bladder pain for the longest time that led to spells of me not being able to move and getting very ill. I normally ignore pain but this was so bad it led to disruptions in my ability for every day functioning. I had a blood test done and my white blood cells were elevated. They never found what was wrong and for some reason it stopped. I am afraid it will come back or lead to something worse since it never got resolved.

    • Cece7

      651d

      I have health anxiety so they always seem to not take my issues as seriously due to this.

    • WhistleWhileYouWait

      652d

      Getting people to believe me about what does and doesn't cause headaches and migraines. I have had them most of my life. I know pretty damn well what I'm talking about. Also, I had migraines for 20 years before I got an official diagnosis. I had spent years chasing things like sinus issues because no doctor took my claims of headaches seriously enough to check for migraine. It took my own motivation and research to demand sinus help and then neurology help. Had to push every step of the way and deal with a lot of "Have you tried Nasacort? And vitamins?"

    • Harley.Q

      652d

      The fact that everytime I talk about how I get light headed and my vision goes black he says that he don't think anything is wrong with me he thinks it's where I hold my breath but I don't think it's that me taking deep breaths does help me to get my vision back but he always makes me feel like he's trying to make me feel like I'm a hypochondriac when I'm not

      • Bre19

        127d

        @Harley.Q I'm sorry

    • Raina.8

      652d

      I feel like they don’t fully understand what I’m actually feeling and I can’t fully communicate how I feel and there is that barrier

    • blacklabmom

      652d

      My doctor won't do the necessary testing to see what auto imune disease i have i also have sbo and they tell me the pain is all in my head and won't do anything to help😥😥😥

      • Bre19

        127d

        @blacklabmom so sorry

    • dkordecki79

      653d

      I've been dealing with Doctors not listening for over a year. Run tests nothing shows up now its my mental health. I'm a paramedic with a good understanding of medical issues and overall body physiology and know something isn't right. Health care today is gone

    • sarubun

      653d

      They refuse to listen or treat me and refer me back to the same underfunded and overbooked queer general health clinic because I'm trans and the doctors elsewhere "don't feel comfortable" treating me because they don't have experience with trans patients, but like wtf does me being trans have to do with rhuematology or my digestive issues?

    • LadyCracking

      653d

      Assuming they know me, my issues automatically, when they don't, I carry these issues they don't, so how do they know

      • yumzy199725

        497d

        @LadyCracking 🙌 that's so true!

    • Lucas.exe

      653d

      Period pains! I would rather have my uterus removed without anesthesia then go through the pain from my periods. But it gets shrugged off like it's no big deal while I'm crying just thinking about it.

    • cinnamon_sunlight

      653d

      Trying to explain to them that I have an eating disorder and how that may effect what we are discussing/my other symptoms are. It’s rare that it doesn’t end with me in tears.

    • Kalena

      659d

      They don’t know how to treat fibromyalgia and it hurts all the time. The appointments are always so rushed

    • gatoraid

      659d

      Talking, voicing my concerns, it's so stressful I just go non-verbal completely.

    • LauraA

      660d

      Always carry labs and meds with you to prove

    • maic

      660d

      Making myself be totally honest with them

    • Weiss

      663d

      Which doctor? It feels more like most of mine see me as what's on paper. They see what they want to see so that they get paid by not effectively treating everything that's connected. "We'll discuss it more next appointment." Well then what was the point of this appointment?

    • E_belli

      663d

      They think that every medical problem/symptom I have is because I'm fat, not that there is anything really happening (which there is).

    • aln97

      671d

      Them not fully listening to my concerns and comments. especially as a plus size woman 😞

    • dream6284

      671d

      They don't like to listen about how bad my pain levels are... my psychiatrist is good about changing/adjusting meds as needed but my rheumatologist and pcp won't listen about how high my pain level is.

    • ManicEmo

      673d

      I don't know how to properly explain my problems

    • ThickAndTired

      673d

      they tend to be very arrogant and lack empathy/sympathy. which is something I find ridiculous when it your whole profession comes down to trying to diagnose something someone else that isn’t them is feeling. they think because they spent years in medical school decades ago they have all knowledge about health, and commonly refuse to subscribe to new ideologies/discoveries within the medical world simply because they don’t agree, not because it isn’t true. they allow people to die, get terribly sick, and also just live miserably because of their lack of understanding and listening. can’t wait till millennials dominate the medical industry, because all these 50 and up doctors are very low quality.

    • VariaMoon

      673d

      They do not listen. They do not believe. They think they know more than the person LIVING with the darned disease. They need education!!!!!!!

    • MatchaBunn

      673d

      I think my biggest problem is getting across how much my symptoms are bothering me. It feels like my words alone are not enough, and they expect me to be acting a certain way before they believe it’s bad. It’s the classic double-empathy problem between neurotypical and autistic people; they have expectations of what pain looks like, but the way I act does not line up with that. When I’m in pain, I work so hard to get my words just right, but I can’t use the mental energy to regulate my body language in the “right” way to be taken seriously. And I know if I was to let my emotions out in that way, I would not be able to get my message across effectively. I just want to be believed and be tested for the things that are highly likely to be comorbid with my current diagnoses. I feel like I’m the expert, but I just want a professional to be able to back me up and offer solutions that I can’t possibly get on my own. I want them to listen when I say what’s going on, and be willing to try different things. I don’t want to keep being told to wait things out when it’s the worst it’s ever been for me. I feel like I do exactly what I’m supposed to by telling them when new symptoms pop up, but they often brush me off. How would I know when something is actually serious when people are telling me my experiences aren’t that bad? I just get tired of putting in the effort to be misunderstood and it makes me stop telling doctors about what’s going on. Which isn’t helpful for either of us!

    • Lucas.exe

      673d

      Not sounding like I'm exaggerating symptoms. When I say I'd rather have my uterus removed without anesthesia then to go through period cramps, I mean it. I'm not exaggerating its just a fact. 😐

    • Ally79

      678d

      They think I'm lying and just trying to get meds

    • SadMom95

      691d

      Because I am in my mid 20s, I am not taken seriously. Also the fact that women's health is VERY different from men's health, I haven't received the proper care I'm entitled to

    • Mirage13

      691d

      So many of them don't listen and completely neglect a more human, compassionate approach. They often feel like they're the be all, end all for treatment. Sure, they have the knowledge to treat, but the ego, burnout, and cookie-cutter approach is too common. There needs to be a balance of their expertise and listening to patients, who know their bodies. I don't see that in a lot of the doctors I've been to.

    • carrielovelylady

      691d

      Being taken seriously

      • Bre19

        187d

        @carrielovelylady so true

    • Charmergirl

      805d

      They don’t actually listen and sometimes give looks like your the crazy one when they are all pumped on an ego thinking everyone is a one size fits all instead of taking the ego down a notch and listening to their patients

    • todd

      807d

      My Dr second guessed the neuropsychologist and said I don't have ADHD . Bipolar2 ADHD

    • ___

      807d

      Okay this is off topic but my doctor always writes in her notes that I appeared anxious and had limited eye contact lol but that’s just how I am haha I was just stimming and not looking at her

    • KennaMR

      807d

      Finding the right words to say, and being too afraid to ask for a certain treatment or different options.

    • NickBar

      808d

      Facts

    • princessbun

      810d

      Allopathic medicine definitely does not understand chronic conditions. They do not keep up on the literature at all, unfortunately.

    • rjay

      810d

      Never listening,doesnt look at issue and misdiagnosing.

    • Mystical03

      810d

      My dr never reviews my lab or blood work. Every time my numbers are off or bad. I have learned my own medical terms and look up all the language. Thank God for Google. I should just pay Google to be my doctor bc that’s what has been happening since I’ve been diagnosed with lupus four years ago. It’s a lot worse since COVID. Drs don’t want to deal with “difficult patients”

    • Mystical03

      810d

      They act like they don’t believe me or care. They don’t listen and are too focused on entering things in the computer rather than actually listening to me or examining me. I leave the dr feeling worse than when I arrived. Frustrated completely with the healthcare system and insurance companies.

    • dremfal

      811d

      I’m a medical student w/chronic illness and I find it really helpful to read these responses to learn where the gaps in care are. Our school (and most schools now) have standardized patients who give us feedback when we learn how to talk to patients and they tell us straight if they felt they weren’t heard or felt that their concerns were not addressed or what made them feel more reassured. If I was a doctor I would value if my patient brought up concerns about our communication and I would recommend you share your concerns with your doctor too! If after that the issue isn’t resolved, find a doctor you can trust if you can. You deserve better.

      • Karrieanne73

        522d

        @dremfal I had an issue with a dr I usually like. He had sent me to physical therapy and then a follow up with him in 3 months. During that time I went to the er not being able to breath . I ended up having to go to a bigger city farther away and be put on oxygen and was diagnosed with ild . And have a vats open lung biopsy. It was scheduled for right after they scheduled my PT. I went to my first PT appointment and as they were checking me in I explained them the situation and asked them how this will work. They told me it would be better to reschedule for after I’m healed from the vats …. Now onto the 3 month follow up . He said he says I did a no show for PT. And I said no I went and explained about the surgery and they suggested I reschedule after I heal. He looked at me like I was lying . Then he said I have patients that have been through that and was healed right away… now this was about a week after the surgery… and with my fibro surgeries know me on my butt…. I didn’t say anything but in my mind I had that little angry guy from inside out…. So I stewed about it for a long while. My therapist suggested I talk to him about it. Now I’m the type of person that it’s hard to do those kids things. But I went to the next appointment 3 months later and I told him how I felt about that and he … apologized and our relationship has been pretty good since then

    • strugglebus

      821d

      MY FIRST NEUROLOGIST TOLD ME that the medication she prescribed me was the ONLY ONE that existed and it made me nauseous and I wouldn't eat. I eventually saw a different one and he was shocked I was taking a chewable tablet. I cried when I was prescribed a pill I didn't have to taste

      • Bre19

        106d

        @strugglebus oh geez that is not a good doctor

    • Amaryllis

      823d

      My medical weight loss doctor is extremely judgmental and makes me so uncomfortable. She’s always staring at my chest and stomach too, like she’s got a staring problem. I dread seeing her every month, but unfortunately she’s the only doctor in the program at my facility.

    • Ares4

      828d

      I find it so hard to articulate my symptoms. Usually whatever I am able to say is maybe a third of my concern

    • CassieClaireeee

      828d

      Holistic/functional doctors are the next step you should take if you’re not making progress with traditional doctors! They are very in depth, ask a million questions, and look at things from a birds eye view. Not just treating the symptoms with pills

    • Avaria

      832d

      My biggest struggle are doctors who don’t consider specific illnesses symptoms in relation to racial differences or new case studies and will deny you when you ask for tests to be done, because you are “displaying all the symptoms” then I have to bring up how the symptoms aren’t apparent in my particular race, then they agree with me. Then they run the test and sure enough it was what I thought it was. Just frustrating when it’s so easy for them to just order a test to rule out something, but they just go by the textbook standard check list of symptoms. And it feels like I constantly have to do research ahead of time and gain a lot of knowledge to fight for my own health. And it’s stressful :(

    • Thasia

      832d

      I have had to become very versed in medical jargon because when my blood tests come back I have to look up what it means. What normal is, what low is and what high is. If something is low or high what exactly that means and if it’s anything to worry about. Twice this week I was told my bloodwork looked good, knowing full well that it isn’t good! I am so mad, I called them on it and one doctor changed her tune and she said well yeah that does need more testing because of your symptoms. Ya think?! Be your own advocate because the doctors don’t have your best interest anymore.

      • Karrieanne73

        522d

        @Thasia I always check my lab tests and google them . Becuase I don’t know how many times I too have been told everything is all right but my tests showed something different . I’m slowly learning to advocate for myself

    • LunaJess

      833d

      Being dismissed by my neurologist for so long until I took my father with me to my appointments because I was so exhausted and in pain and desperate each appointment becomes a matter of my quality if life. Suddenly the medication and treatments were available to me. They looked at him and talked to him not me even though I am an adult woman. Seems like either my young age made them not take my suffering seriously or it was sex discrimination.

    • bedbug

      834d

      they don't listen to me

    • Journey

      834d

      Being dismissed for my weight and not being believed...I've told my doctor I think my weight gain/diabetes is connected to PCOS and she basically tells me it's my diet...I eat extremely healthy and mostly vegetarian but she won't look beyond that narrative. I had an integrative doctor and she was awesome, but she left the practice, I think because her way of doing things didn't fit with their "get them in and out" mentality. I feel like my options are limited bc I live rurally. But hearing other people's experiences here I feel empowered to try again and be my own advocate. Thank you everybody and good luck on your path!

    • Samsambinks

      834d

      They blame everything on my weight but I gained weight because of my health issues I was thin when they first started

    • Izzybee

      834d

      They don’t believe me and they won’t listen to me! My PCP gave me a referral for a pain specialist due to chronic pain and when I told him my symptoms he said I was being over dramatic and I’m lying because I’m too young to be in this much pain, I saw a rheumatologist and when I went back with what that dr said he said I was lying. I don’t know what to do and I feel like I’m being made out to be a hypochondriac

    • Camilo_Madrigal

      834d

      It appears that whoever ago to can't help. They need to send me somewhere else and they need to get approval from someone else and no one can actually do anything

    • Jadie

      834d

      They rather sit there and dehumanize me, make rash diagnosis without my awareness, and overall speak over me so I cant even explain my symptoms without being called shitty things. They only see my body not me the person and it has caused severe trauma. Doctors (in my case anyway) usually dont want to try because Im not an easy patient.

    • antikarma

      834d

      i’m a college student with cancer & it feels like my doctors forget about this and never mention how i’m gonna have to adjust my school life to properly go through treatment

    • Florence

      835d

      Literally was sobbing in front of my doctor today because she dismisses me so much. Reading all of these comments makes me only want to fight for myself harder. ❤️ 🤗

    • Sleepho

      835d

      My doctor has known me since I was a baby, and is the doctor for both of my parents as well. You’d think this would mean they’d know me better, but instead they just assume I’m just like my parents and ignore my concerns about my health to ask me for the fifth time if I’m sure I haven’t done drugs. I could have gotten my POTs diagnosis 8 years ago if they had listened to me, and because I’m still technically a kid, when I bring up that something may be the issue, they always try to see if it’s everything BUT what i brought up first. The icing on the cake is that I have gotten none of my diagnosis’s from this doctor, because they don’t pay attention to me. I got a POTs and CFS diagnosis from a neurologist

    • chronic.vic

      835d

      Me trying to emphasize how bad I feel while he keeps telling me to live my life

    • Luberomi

      835d

      It's funny because I have my neurologist, and my primary care doctor prescribed me something for the tingling sensation.

    • Melcore

      836d

      That they don’t listen, and they don’t understand what I’m telling them.

      • Bre19

        189d

        @Melcore that's very frustrating

    • quinn1221

      841d

      they somehow find ways to f up my blood tests so i never get ahold of the results.

    • susu

      841d

      im really grateful to have an understanding doctor but i know it can be hard to get doctors to believe you!!! :( it’s probably because they see so many patients, alot of whom are attention seekers and drug addicts who want to get more medication that they do not need which makes doctors more critical of people expressing their real and valid concerns!!!!! what you guys are going through with your doctors sounds horrible, medical gaslighting is awful and i hope you all get the help and justice you deserve <3

      • Bre19

        189d

        @susu glad to hear that

    • seatune

      841d

      shrugs my mental problems off because i’m young

      • Bre19

        195d

        @seatune I hate that

    • OuchiePrincess

      843d

      How many doctors I have that don’t communicate with one another, despite having my records. So I have to be the one to know about all the side effects and whether or not I have meds that do the same thing

      • Karrieanne73

        522d

        @OuchiePrincess I’m kinda lucky my dr mostly seem to talk to each outher but my therapist suggested that I get pallative care . She said most people think it’s just for people that are dying but it’s also for patients that have numerous doctors and they are like a main one and makes sure they are all connected . I’m really thinking about getting one.

    • healthybean

      844d

      literally hated this one psychologist who talked to me for 5 hours and ended up misdiagnosing me with MDD even though i literally told her i knew i didn't have that

    • TheDragon

      845d

      They don't think of diet or alternative medicine as treatment

      • InsidiousAnomaly

        492d

        @TheDragon they do treat fat people that diet is treatment and the cause of their problems.

    • Disorganic

      845d

      Also, I'm often extremely embarrassed about medical issues and I've had a lot of doctors be extremely condescending and dismissive, which truly doesn't help me feel safe being honest with them, especially about things I already feel shame about.

    • Disorganic

      845d

      I don't trust any of my doctors enough to really communicate effectively with them because of childhood medical trauma. My pediatricians did not handle my care correctly and I repeatedly watched ER doctors not handle my parent's care correctly. I fear that if I say "the wrong thing" I'll be labeled a hypochondriac or drug-seeking because it's happened to me before and I've watched it happen to my loved ones.

    • Ugo.Iba

      845d

      Not having my trans status be related to every tiny fucking thing.

    • Em0113

      845d

      They just brush off my pain/legitimate concerns and blame it on me not drinking enough water or my chronic illness. So they just up my meds and move along

      • Bre19

        195d

        @Em0113 how rude of them

    • Andi_F

      845d

      Unless it shows up on an xray they don't believe me. I've had broken bones before & had them not believe me until they've seen the xray.

    • Lovecrafty

      847d

      I always panic and forget all the things I need to talk about.

      • Bre19

        163d

        @Lovecrafty same

      • Karrieanne73

        522d

        @Lovecrafty same 🤗

    • Nana1124

      847d

      @Natalieisameme: all the more reason to become your own best advocate, nobody knows you better than you do! Empower yourself to be an advocate for yourself and write down things you want answered or better explained, and in layman's terms so you understand what he's saying to you. Another idea is to have your doctor's medical assistant explain things to you from your chart, especially regarding your current visit. He/she is your best chance at getting your questions answered, especially if your doctor is only with you for a limited time and may not have enough time to explain what they're telling you in simpler terms. Take advantage of any amount of time the M.A. is in the exam room with you. ALSO take a few minutes to talk with the M.A and express or explain what it is that you would like to hear from your doctor without having to spend an inordinate amount of time (which he/she has precious little of) and make sure they answer or explain your questions and/or concerns in what limited time you're going to have with your doctor. I hope this helps you.

    • Taybor

      847d

      they just blame any issues i bring up to them on my weight and i know my weight can cause some issues but this is my body and i know my weight isnt the issue here i can feel it but they dont want to run tests or anything until i try to lose weight

      • Bre19

        195d

        @Taybor that's not a good doctor

      • Karrieanne73

        522d

        @Taybor absolutely !!!!! I hate that. And then they tell you to exercise but with my fibro and RA and knee and back problems I can only do minimum effort exercise not the kind they are talking about … and my weight is from hypothyroidism. I don’t eat that much due to having ibs and stomachs issues so it hurts to eat so I’ve just I guess over time stopped eating. Sometimes the only reason I eat is because my fiancé cooks the meals. Drs need to start getting educated

    • RionWilde

      847d

      I have trouble making my appointments, and they don't presue another appointment or return my calls when I try to schedule. I know it's not my fault, but I know a lot of people who find that discouraging, myself included. I used to have a really great therapist who checked up on me often, she cared.

    • grapecat

      847d

      my problem is finding a doctor at all. doctors here won’t be able to see me for at least 4 months because my debilitating lymph node pain isn’t serious enough 😥

    • RosesForMyDear

      847d

      With my regular doctor? I have legit health concerns and she keeps just brushing it off as me being fat. Like I'm gaining weight because of my birth control and my med. But I have a legit concern about me being freezing all the time and not maintaining body heat and being lethargic and she's just like "maybe stop eating so much fatty let's put you on a diet!" even though I like... Have been doing the intermittent fasting diet since I was in the 7th grade lol.

      • Bre19

        163d

        @RosesForMyDear oh no that's not good

    • Poggers

      848d

      Mine is also T1D and understands everything and helps me with the stress and makes me feel better, I’m so lucky ❤️

      • Bre19

        163d

        @Poggers that's good

    • Jea

      848d

      when it comes to chronic pain i’m left always feeling like i must be making things up since i’m always brushed off so quickly

      • Bre19

        190d

        @Jea that is not cool

    • Pinky20201

      848d

      New gi doctor

    • Pinky20201

      848d

      They told me my IBS was all in my head and I was faking but they did a colonoscopy and found out I had IBS at first they didn’t believe me but now they do and it’s been hard but I hope I get a gi doctor because my symptoms aren’t getting better

      • Bre19

        163d

        @Pinky20201 oh geez

      • lilly109876

        608d

        @Pinky20201 they found out you had IBS through the colonoscopy?? My doctor didn’t find anything in my colonoscopy and diagnosed me with IBS because he found nothing

    • Dhadhu

      848d

      One word. Gaslighting!!! I'm a nurse and even though I don't know everything about every condition. I at least know myself and my body and mind. I will research and study up on my problems and my symptoms till there is nothing left to study. So I hate when a doctor dismisses my symptoms saying I'm making it up or I don't know what I'm talking about or they know better. Noone knows me better than me.

    • Mcfishes

      848d

      If you’re having trouble with a doctor who doesn’t understand you, I would highly recommend looking into naturopathic or functional medicine! They’re the only doctors I’ve ever felt truly understood by.

      • Bre19

        190d

        @Mcfishes interesting

    • kkiqra

      849d

      Mine literally won’t believe that my ocd is as bad as I say it is. It affects every aspect of my life and I’m constantly overwhelmed but she won’t listen. Just because I’m not depressed, that means I don’t have ocd anymore??

    • Nana1124

      849d

      My doctor and I have discussed switching up my pain medication from one to two different meds that are basically the same as the one I'm already taking. It seems pointless to even go that route because it doesn't sound like it's going to be any better than what I'm doing now.

    • Jellybean001

      849d

      Getting them to believe me so that I can get tested for something. Somehow even though (most of) my hunches have been right, and something odd shows up when we do test for what I’m begging for, she still doesn’t really understand the severity.

      • Bre19

        193d

        @Jellybean001 oh geez

    • oblivesce

      849d

      A lot of the above answers, but largely for me it's that they don't really tend to put the separate pieces of my health journey together. There's not enough time spent with them to get them to see "the full picture"

      10

    • alexpm7

      850d

      I am a medical interpreter, I work with doctors all day translating what they say to their Spanish speaking patients. As a society, the expectations we have on Doctors performances (versus how they actually perform) are at a ridiculous high. It applies to any person at any career, after 6 or 7 hours of non stop patients (some of the Drs I work with have 7 or more patients every hour) your performance is not going to be the same as when you started working. You can't be as invested in your last patient of the day like you were with the first one, that doesn't make sense, even if they're paid very well or not at all, you're not going to give the same quality care to everyone. Nobody has that amount of mental stamina, why are we pretending that going to medical school turns you into a super human? 🤨 Also, the way medicine is being taught right now indicates that the patients are inferior to doctors in knowledge, but that's just stuff that you can read in a book. We're all different and the only ones that actually know their own bodies is ourselves. As long as the health care system stays broken, nothing will change. We need patients instructing their doctors about their own bodies, and we need basic medical education as patients to be able to evaluate ourselves and be trusted as individuals that have knowledge on their own bodies.

      12

    • Monie

      850d

      Looking at me as though I’m playing Dr to myself and telling him how to do his job. Iv been on antidepressants for 25 + years I do know my own body and when somethings wrong or not working right. I just suggest.

    • ICwarrior

      850d

      Facts

    • Crow

      850d

      Young≠sick to them My RF came back fine and no signs of autoimmune disorders, so i must be fine!! But i did some reading. My blood disorder from birth, beta thal, that i got re-evaluated for, can cause arthritis 🤭🤭🤭😮😮!!!! The geneticist never told me that and neither did the rheumatologist. I got positive factors for parvovirus too sometime in the past apparently, and that can cause viral arthritis in a way too, mildly at least. Idek when i got this so i cant even say on this. One things for sure, im fatigued and my joints are screaming; my blood disorder causes a buildup of iron leading to arthritis and other factors blah blah but no one wants to tell me that or help me figure it out. I could also have thicker marrow too i have to reread, bur that’s something you should tell a patient, so they know screenings will need to be done to ensure all is well. Just gonna let me walk out all fine n dandy huh

    • uriboo

      852d

      it felt like my doctors didnt really believe me until i had 10 seizures in their office in about an hour, 3 of them being right in front of her. the way she began talking changed from 'well maybe we can do this' to 'we need to do this asap'

      • Bre19

        193d

        @uriboo that's not good

    • Jadie

      856d

      Im 24 with bipolar disorder type one. It started at age 13 to 14. Seen maybe over fifteen different therapists and psychiatrists and tried around 20 medications. But my biggest issue was only getting worse. Not a single doctor I met asked me about any signs of mania or mood cycling. They were only concerned with depression and anxiety. And i didnt even get an actual diagnosis without pleading my therapist to take me seriously for six months even though she said herself ‘I see you flip episodes in front of me all the time!” In action and lack of proper communication in examinations and general service almost killed me. This is not at all uncommon. Also seeking medical attention while autistic feels like Im walking into a trap due to doctors being at the ready to ‘disprove’ a patient and will take all my body language as lies.

      11

    • UnluckyUnicorn

      856d

      I hate the “you look fine” I get from doctors. Like yes, I can communicate my pain, explain my symptoms, want tests to be done, schedule appointments, and beg for help all while being in chronic pain and feeling like crap. The fact that they can’t begin to comprehend that, honestly hurts.

      17

      • Bre19

        188d

        @UnluckyUnicorn ugh

      • Coty

        659d

        @UnluckyUnicorn right? That’s what baffles me

    • Maryssa

      856d

      They just push medication on you. They don’t listen. They don’t know what we’re going through. They have no clue. They aren’t their to help but to push pharmaceutical medication on you. It’s all about money. They don’t care about your health. I want to try St. John’s wort.

    • SaffronAcr

      857d

      I have a lot to say about the primary doctor I am now seeing because I lost my job and insurance I am now on soonercare. I have to get all new physicians. My symptoms were so bad that I should have gone to the hospital. But I don’t want to and I have no idea how to get it. I am not going to get to ambulance. Nope I was able to get a appointment with a new doctor in the morning. If I survive, I will go.

    • Rosie_Posey

      857d

      They don’t understand chronic illness because they’ve never been this kind of sick. How can they understand what I need when they have no concept how I feel

      17

      • Bre19

        188d

        @Rosie_Posey oh geez

    • QueenOfAwkward

      857d

      Honestly, I have amazing Dr's my main issue is when I told my primary Dr I have APAS he told me I didn't. I told him the ither Dr he sent me to said that's what I have and he should reach out to them. After that he was more considerate with what meds he would put me on.

      • Marjo

        451d

        @QueenOfAwkward it’s so important to speak out, advocate for what you feel are your needs! Don’t hold back; the more you share and show your emotions/ feelings, the better they can help you. They can’t read your mind!!

    • Cai

      873d

      I feel like I can’t ask for treatments for fear of seeming like I act “smarter than them” I don’t feel like I’m given room for my thoughts and opinions to be accounted for

      19

    • BossLady

      874d

      Sometimes having them not listen to me or speaking to me like I am dumb or something!

      15

      • yumzy199725

        497d

        @BossLady yeah your so right they speak to us like were stupid and they don't talk to us they talk at us they aren't listening to anything we say what's the point of asking us any questions they tell us how we feel anyway! 😔

    • EmmaB

      888d

      I think that the biggest challenge is to make them understand that sometimes we just need to feel heard and taken care of

      12

    • Mark88

      888d

      I feel he doesn't see the emotional aspects of my illnesses and it makes our communication really shallow.

      27

      • Bre19

        206d

        @Mark88 I'm so sorry

    • smol_hippo

      888d

      they think they know my own body better than i do

      27

      • Bre19

        206d

        @smol_hippo so unfortunately true

      • Bean69

        419d

        @smol_hippo So True !!!! Yet Most Of Us Know Our Own Body Better Than Any Doctor

    • Fiesty

      888d

      A lot of doctors think they know what they're talking about. The reality is, no one knows everything. The medical field is always changing. I don't know what the requirements are for doctors keeping up to date on their knowledge, but I'm sure it has to be something. Every doctor has their specialties. It's honestly all about finding a doctor that specializes in what you need. I wish that doctors would be honest when they don't know how to handle something. Only one of my doctors has ever been honest with me. She told me what it was about my symptoms that she didn't understand, and then I was able to go and find someone who specializes in that area, and now I have answers.

      27

      • Marjo

        451d

        @Fiesty in todays world we all need an understanding Primary doctor. Our Primary should refer you to the specialists you need to see. He is the keeper of all your records and you should have an open and comfortable relationship with this doctor. Reading patient reviews are extremely helpful in choosing a prospective Primary Doctor!

      • colourfulburrito

        501d

        @Fiesty that's really good that your doctor was upfront about it and that you were able to go and seek help elsewhere. I wish more doctors could be like that

    • Natalieisameme

      888d

      My biggest challenge is that they fail to tell me what’s wrong (I have to look in the doctors visit notes to get an answer), they won’t take me seriously, and they pretend it will take time when as time goes on my illness progresses and I become sicker. I am able to ask for testing and get it done so for that I am thankful, but in that way I have to do my own research and become my own doctor :/

      31

      • Bre19

        206d

        @Natalieisameme oh no that's not easy

    • Costanza

      888d

      My biggest communication challenge with my doc is trying to explain to him that I prefer natural treatments while he persistently claims I need pharmaceuticals

      21

      • Marjo

        451d

        @Costanza 🙌DO seem to understand the Holistic approach over the AMA doctors.

      • Denotchka

        581d

        @Costanza Get a second opinion if you need to.Or look up the natural stuff and give it to him and put it this way: “Here expand your medical knowledge base. Challenge yourself and grow in your professional understanding.”

    • Jack2021

      888d

      My only communication problem with my doctor is that he thinks I’m a lost cause 😔

      17

      • Bre19

        206d

        @Jack2021 that's not cool of him to say

      • Marjo

        451d

        @Jack2021 change doctors!

      • TheUglyDuckling

        526d

        @Jack2021 don’t believe him if that’s true. Use affirmations and believe in yourself.

    • Zebrabri

      889d

      They don't believe me. Refuse to test for things. Won't provide appropriate treatment.

      78

      • Ganou

        122d

        @Zebrabri sooo true 🙌

      • Bre19

        206d

        @Zebrabri I'm so sorry

      • PrettyPolar2

        429d

        @Zebrabri its weird because when I had insurance I got so many hospital bills and people didn't really care or listen in fancy facilities, but I quit my job and went back to school and I have gotten amazing care from Evara Health. The first location I went to the doctor was really weird but I went to a different location and they were so persistent about caring properly and listening well.

      • Marjo

        451d

        @Zebrabri what currently is helping you cope?

      • colourfulburrito

        501d

        @Zebrabri I'm really surprised so many other people have the problem of not being believed.

      • G.S.Lisa

        526d

        @Zebrabri I’m having similar problems with one of my meds. You might ask your psychiatrist about trans-magnetic stimulation. It’s non-invasive. Treatment is usually about 45 minutes, three times a week for four to six weeks. It’s slightly unpleasant but not painful.

      • Coty

        659d

        @Zebrabri welcome to the scam that is western medicine…..pharma wants you broken so they can give you a doctor and some pills…..neither of which were put in place to actually care or help

        15

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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