See Alike in...

Alike App

Browser

Aardvark44

356d

Does anyone take DMT’s and they have no lesions, no symptoms and no episodes ?

Top reply
    • LukeAM

      251d

      @kitaboo I had an MRI. I finally have SSDI and the date was pushed back far enough that I have medicare now.

    • LukeAM

      343d

      Well I actually haven't had an MRI in several years. I have been uninsured since 2019. That was when I quit my last job and around the time of my last MRI. I was approved for SSDI in April by an Administrative Law Judge. It took Social Security until July 12 to agree with him. I now have Medicare parts A and B. With the disability date put as October 19, 2019. My Medicare part A effective date is April 1, 2022 and my part B effective date is July 1, 2023. As I have been trying to get a Medicare advantage plan they are trying to say that I have to wait until the Medicare open enrollment in October.

      • kitaboo

        337d

        @LukeAM When r u going to get a MRI of ur brain again?

        • LukeAM

          251d

          @kitaboo I had an MRI. I finally have SSDI and the date was pushed back far enough that I have medicare now.

        • LukeAM

          251d

          @kitaboo I don't know. I think on Tysabri they want at least an annual one.

    • Aardvark44

      343d

      I have one new active lesion. Would anyone say the meds are doing it’s job?

    • skaterhelen

      354d

      Is it working for you? My last MRI showed no new lesions and no active ones. My doc says the med is doing the job it is supposed to do. I feel like I should be on a different one by now. I would like a new one, one that would make me feel better.

    • LukeAM

      356d

      I started on Rebif back in 2007. Around 2012 after experiencing a relapse a year in 2012 they said I had developed neutralizing antibodies to the Rebif. I was going to have to change DMTs. Copaxone was still daily at that point and the oral meds had not been out long enough for me to feel comfortable using. We also changed doctors. I waited months and didn't get to see the doctor I wanted. The new doctor convinced me to go on Tysabri. Since the JC virus test was negative I took the doctor's advice and went on Tysabri. I had to leave that doctor in about 2015 because it was too much for me to drive/ride 4+ hours each way once a month.

      • skaterhelen

        354d

        @LukeAM I was diagnosed in 2018 and put on tysabri for my first drug. U have been on it up to now. My doctor says there is no reason to change meds as the tysabri has done its job.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Alike health

One person mentioned that they are taking tecfidera, a first line of defense DMT, and according to their MRI report, they don't have any active lesions and no significant progression to speak of. However, it is not explicitly stated whether they have no symptoms or episodes.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion