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Chronic_In_College

2y ago

Distinguishing between EDS and Hyper Mobility Syndrome

I know hyper mobility can be a component of EDS, but how do you distinguish between the symptoms of a full EDS diagnosis and hyper mobility syndrome? I feel like my joints pop out of place or get really wobbly but I haven’t seen a geneticist yet. Do people with “only” hyper mobility syndrome experience this as well?

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Jadie

2y ago

The thing that helped me was Izzy Kornblaus videos on youtube about the diagnostic criteria. She has hEDS and is in school to be a geneticist and all that so she keeps a very technical approach. Also made a video with other people with the condition. I would look at the diagnostic questions not just where you are hypermoble. Shes very helpful
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UnluckyUnicorn

2y ago

I would look up the diagnostic criteria for EDS, specifically hypermobile EDS. Stretchy skin, easy bruising, and other things in combination with hypermobility is EDS. Unstable joints can be simply hypermobile or hypermobile spectrum disorder if it’s causing pain

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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