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cinnaspaws

435d

my doctors are so so dismissive, i fit the criteria for both Heds and pots (both have lots of genetic links in my family) but it is always blamed on my weight:/ no matter what my weight is i have the same symptoms, but due to chronic pain and dislocations and heart rate making me faint with intense movement it is so hard to lose weight. i have to lose weight for support with those conditions but i cant lose weight without support or treatment

Top reply
    • Entropyluna

      435d

      Next time, ask for them to document that they are refusing to evaluate you based solely on your weight, and tell them that you need a copy of that document before you leave. There's a really good chance that they'll change their tune. If you go to a new doctor that does evaluate you and determines that you have hEDS or POTS, you have a malpractice lawsuit on your hands. A lot of lawyers will take those on commission, so they would get a percentage of your winnings. And most importantly, that would mean that those doctors can't dismiss any other patients for their weight.

    • everythingbagelstan

      435d

      i’m going through the same thing :( i have heard through others that it would be best to see a geneticist if you’re worried and heds - a lot of other doctors don’t seem to take it seriously.

    • Gilmore.Girl

      435d

      Definitely consider a complaint to the office or system your doctor works for. You might look for a local EDS Facebook page and ask for doctor recs there. Wishing you well

    • Entropyluna

      435d

      Next time, ask for them to document that they are refusing to evaluate you based solely on your weight, and tell them that you need a copy of that document before you leave. There's a really good chance that they'll change their tune. If you go to a new doctor that does evaluate you and determines that you have hEDS or POTS, you have a malpractice lawsuit on your hands. A lot of lawyers will take those on commission, so they would get a percentage of your winnings. And most importantly, that would mean that those doctors can't dismiss any other patients for their weight.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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