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hello.its.me's Post
hello.its.me
8mo ago
Dismissed by Doctor, Need Advice on Hypermobility Diagnosis
had an appointment with a Dr this morning about the possibility of my hypermobility being caused by something bigger, because I seem to meet the criteria for hEDS and thought it would be worth looking into, but she just brushed it off and ordered blood tests for things thst have already been ruled out. what do I do now?
Your answer
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Chronicallyenby
8mo ago
Don't let the doctor detour your. The best bet is to find a geneticist who can diagnose it. Advocate for yourself, bring someone with you, or ask the clinic for a patient advocate.
hello.its.me
8mo ago
oh I've never heard of patient advocates, I'll look into that! Only issue is getting a geneticist on the nhs is always a nightmare and there's always a long waiting list, worsened by the fact I live in cornwall and there's not many specialists here for anything :*
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