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AlmedaRose

376d

So, discovered that I've probably been having nocturnal seizures for an unknown period of time. I recently got married and my husband said, "you do this thing in your sleep" followed by imitating electrocution. Since I've slept alone since my sister and I got our own room way back in elementary school, who knows when it started. I was completely unaware. My neurologist couldn't get enough data to diagnose after a brain MRI and outpatient EEG, so, was referred to an epileptic specialist. Now I'm on day 3 of a multi-day EEG. Two nights down and no seizure yet. (Although my husband said they were happening most nights and multiple time just before dawn.) Of course, it's hard to sleep with lights in a different place. How long does it usually take to diagnose this definitively? What else can they do if it doesn't happen while I'm here? Thanks!!

Top reply
    • Kadair

      372d

      It is hard, I know. I went through two tests not overnight, though. My doctor didn't understand what was going on. I don't have seizures, but I do have dissociation that acts similar to a freezing seizure. Back in the early 2000, a doctor did those tests with the wires connected to my head and the flashing lights. When I was around 8, my mom and my doctor at the time tested my blood yo see if they could find anything. This was back in the late 80's and early 90's. It wasn't until recently they diagonsed me with generalized anxiety because I also have ptsd. So it made it difficult to diagnose because of that.

    • Kadair

      372d

      It is hard, I know. I went through two tests not overnight, though. My doctor didn't understand what was going on. I don't have seizures, but I do have dissociation that acts similar to a freezing seizure. Back in the early 2000, a doctor did those tests with the wires connected to my head and the flashing lights. When I was around 8, my mom and my doctor at the time tested my blood yo see if they could find anything. This was back in the late 80's and early 90's. It wasn't until recently they diagonsed me with generalized anxiety because I also have ptsd. So it made it difficult to diagnose because of that.

    • 55isMe

      374d

      Good luck. I hopebyou find answers and quickly. It sounds similar to what one of my family members had. She searched doctors, including Mayo Clinic MN. Never found a diagnosis nor any useful treatment. The best treatments were that of necessity. Simply treating the symptoms. Hers involved a lot of digestion and swallowing issues. And lack of motor skills overnight, early morning, and after getting tired at the end of the evening. So eat as regular and as healthy as you can. Do activities when you are at your best. Use bedrail at night to keep you from falling. Etc.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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