See Alike in...

Alike App

Browser

madd94

769d

After being diagnosed with hypermobility syndrome/ a hypermobility spectrum disorder, how long did it take to then receive a more specific diagnosis? (EDS, hEDS, etc.) I was recently referred to a geneticist after my rheumatologist determined that my joint pain/ damage was due to hypermobility. I meet all of the diagnostic criteria for hEDS (as does my mother), but I’m finding it hard to know if another diagnosis is needed/ what next steps should be.

    • crustycrustacean

      131d

      I'm in Colorado. My Dr. Informs me that the only geneticist in the state that will test for EDS is in Denver. I'm on the 12 month waiting list... I keep looking but can't find any other options.

    • Fish.loves.cats

      754d

      It's hard to be diagnosed with heds because there isn't a test yet. I heard one might come out this year

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion