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K.C

696d

Has anyone else been diagnosed under the typical diagnosis age of 50?

Top reply
    • Luke1042

      315d

      @Anika5361 hi. Is there a test for PMR or is it a ruling out if other things diagnosis? I’ve been in pain and illness for 12yrs and I was out on prednisone for the first time last month because I had CoVid on Sept for three full weeks and was quite sick. So when I saw my rheumatologist last month I told him how much excessive pain I’ve been in and had shortness of breath and fatigue and malaise and he said he thinks I was in a flare up after CoVid for all these months so he put me on the prednisone. I felt like a new person. My pain was minimal. The shortness of breath went away. I had energy. It was wonderful. I went back in after two weeks for a hip injections and both knees and didn’t feel I needed the knees done. Had no real pain in them. He said the response I was having to the prednisone was indicative of having PMR and the only med for it is Prednisone. But they took me of the prednisone and put me on Sulfasalazine and after a couple weeks I’ve been going right back to how I was before prednisone. I’m just not sure what to do and I’m not familiar with PMR at all. Thx for your time and help. Hope you are doing ok. I see your post is from 11mos ago.

    • Hfb

      655d

      Can everyone share how they were diagnosed?

      • K.C

        649d

        @Hfb bloodwork. Doctors don’t normally believe my symptoms until I bug them enough. 2 years later I have a diagnosis. Beats the 4 years it took to get them to believe my shoulder was in as much pain. I was then diagnosed with shoulder impingement syndrome..

      • Anika5361

        655d

        @Hfb my mom has PMR. She and I were seeing the same Dr in a small town so he knew his patients and their families well. I had commented that I was having some of the same symptoms that’s my mom had so he did the testing to make the diagnosis.

        • Luke1042

          315d

          @Anika5361 hi. Is there a test for PMR or is it a ruling out if other things diagnosis? I’ve been in pain and illness for 12yrs and I was out on prednisone for the first time last month because I had CoVid on Sept for three full weeks and was quite sick. So when I saw my rheumatologist last month I told him how much excessive pain I’ve been in and had shortness of breath and fatigue and malaise and he said he thinks I was in a flare up after CoVid for all these months so he put me on the prednisone. I felt like a new person. My pain was minimal. The shortness of breath went away. I had energy. It was wonderful. I went back in after two weeks for a hip injections and both knees and didn’t feel I needed the knees done. Had no real pain in them. He said the response I was having to the prednisone was indicative of having PMR and the only med for it is Prednisone. But they took me of the prednisone and put me on Sulfasalazine and after a couple weeks I’ve been going right back to how I was before prednisone. I’m just not sure what to do and I’m not familiar with PMR at all. Thx for your time and help. Hope you are doing ok. I see your post is from 11mos ago.

        • Hfb

          654d

          @Anika5361 so you tested positive on test?

    • K.C

      655d

      I wonder why the doctors are so quick to make 50 that base age mark. We were all under 50 at diagnosis.

      • Hfb

        655d

        @K.C I don’t know . I guess because it says it rarely happens under 50, but that doesn’t mean it doesn’t . Doctors imho are lazy

    • Hfb

      661d

      I haven’t been diagnosed yet, but feel I have GCA and possibly PMR . Rheumatologist says I’m too young (49) negative blood test and negative ultrasound (was in prednisone at time) rheumatologist wants me off prednisone so she can get bland done . I’m nervous it is GCA and I could loose my sight . Was on prednisone for 12 days and didn’t feel any better .

    • Anika5361

      696d

      I think I was 47.

      • K.C

        695d

        @Anika5361 I am 30 😥 I fell like having my last kid brought it on.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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