Yeah! I have this. I also have really bad coordination and balance in general, especially during a flare up. I heard that that was semi-common amongst fibro people.

This happens to me in a flare up for sure. You are not alone!

Yes.

Oh, yes.... Mine got so bad (I also have Occipital Neuralgia and neck issues) I ended up in Physical therapy...and thoi was doubtful it does help. I went to my ENT first, for a hearing test along with a balance test), first... Just to make sure it wasn't a problem with my ears.

Thanks JennyLou, I was wondering if it might be an issue with my ears. I am in physical therapy right now for my neck as well, I’ve found it to be a little bit helpful so far

Yes, definitely have experienced lightheaded-ness as well, pretty much everyday actually. I notice it gets worse when I don’t eat on time or drink enough water. The only time I remember feeling better about that symptom was when I was consistently seeing a chiropractor. Unfortunately, I haven’t been back since the pandemic began. I should be doing stretches at home and things like that, though. I definitely feel more imbalanced and my eyesight feels weird if my body also feels too stiff.