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Brainiac5

385d

How do on you deal with the pain? I started having extremely debilitating pain in my teeth and jaw a few months. Dentist kept trying to find reasons with my teeth even though they couldn’t see any reason for it but none of them were why I was getting it. I’ve been referred to maxillofacial doctor but there’s a long waiting list. And in the meantime, I’m on a very high dosage of cocodamol but most the time it barely helps and I’m struggling to get though the days.

Top reply
    • Ginger28

      61d

      Hey Brain, I take a bunch of meds. It's so hard dentists aren't "experts" in TMJ except for splint therapy. I am actually going to Indiana and Kentucky in a few months to see 2 prominent Specialists in TMJ pain. I can tell you more if you'd like!

    • Vania

      61d

      I hope you feel better soon.

    • Ginger28

      61d

      Hey Brain, I take a bunch of meds. It's so hard dentists aren't "experts" in TMJ except for splint therapy. I am actually going to Indiana and Kentucky in a few months to see 2 prominent Specialists in TMJ pain. I can tell you more if you'd like!

    • spookyspoonie

      61d

      I have severe tooth, jaw, and face pain. It's undiagnosed as my dentist cannot find anything wrong, all I know is it flares when PEM is bad so I know it's ME related somehow. I do have TMJ as well, but it is mild and definitely not bad enough to cause this pain, just coexists with it.

      • Ginger28

        61d

        @spookyspoonie yup it coexists with a lot of my issues too! It sucks it's such a major joint and surgery is the last on my list. I'm not giving up trying to get treatments.

    • mrsp

      63d

      Do you clench your teeth or grind them? I've had same pain, been to the GP, maxillofacial etc. I've recently started massaging my cheeks and jaw with oil and guasha and omg what a difference. Good luck x

      • Brainiac5

        62d

        @mrsp I was originally given a bite razor for nighttime for possible teeth grinding to see if that helped put the pressure from it brought on my tgn pain. But I do clench and have been given techniques to help from physio.

    • str8outtacollagen

      210d

      I have this pain and was diagnosed with trigeminal neuralgia. I’m on a combination medication approach using Gabapen and Vimpat for it. It’s worked great. Also making my diet less inflammatory seems to have helped too - I already do no gluten but I also reduced the amount of dairy and red meat I eat.

      • Brainiac5

        63d

        @str8outtacollagen so I was eventually diagnosed with trigeminal neuralgia. But the run around of it. I was sent to maxillofacial and the doc didn’t think it was but sent me for an MRI which didn’t show anything. Then saw him again and sent me to a pain clinic which I still haven’t been to. My mum ended up just asking the gp to try me on carbamazepine in the mean time cause on the pain. In the mean time a coouple months ago I saw a gp at a clinic who said it was tgn based on what I had described and don’t know why I was sent to other places. He upped my dose of tegretol and now the pain is way more deal-able.

    • 55isMe

      218d

      I had that. Initially, the dentist found a small gap under my crown. So slight amount of air was making it under. He filled it. We should have stopped there. It was about 30% better. Knowing what i know now, it probably was 100% fixed but my overexcited nerves didnt know. We ended up replacing the crown. Now with no doubt that it was foxed. My body still vomplained bery skmilar for about 3 more months. Next occurrence (different tooth), the dentist didnt find any issue, so ignored it. Symptoms faded away in about 2 months. Nowadays if i have issues, i can tame most by using Peridex, antiseptic mouthwash. Sometimes that doesnt work.

      • Brainiac5

        63d

        @55isMe yeh I went to the dentist about half dozen times in about 4-6 weeks. Fortunately in trying to find out the reason for the pain they discovered I needed two fillings and had a dead tooth - that they thought definitely could have been the cause but the gauze for the bleeding brought it back.

        • Ginger28

          61d

          @Brainiac5 there are actual TMJ specialists that are amazing. Splints don't always do it. It can be arthritis, fibromyalgia, nerve stuff, there are so many things that can be the underlying cause. I can give you some recommendations of places to go if you'd like depending on where home is for you. 💕

    • hydroepilepic21

      219d

      Tmj usually a jaw split I was given jaw exercises because of underlying conditions, cut back on caffeine, eat softer food, no popcorn, don't chew gum. That's what I suggest from the packet I got for tmj.

      • Brainiac5

        63d

        @hydroepilepic21 I was also sent to physio about general jaw pain which has been diagnosed as tmj issues. So because of that and the trigeminal neuralgia I’ve have to cut out hard and chewy foods as well.

        • hydroepilepic21

          63d

          @Brainiac5 okay, my jaw exercises were given by the hygienist.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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Some suggestions for dealing with jaw pain include massaging the jaw before and after dental visits, using ibuprofen, trying jaw exercises, and applying ice or heat to the affected area. A specialized sleep mouth guard may also help alleviate some discomfort. However, it's essential to consult a healthcare professional for personalized advice and treatment options.

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