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120d

How do you handle potential stigma or misunderstanding associated with your chronic illness?

Top reply
    • hydroepilepic21

      19d

      @Bre19 thanks

    • hydroepilepic21

      19d

      I dont, nobody understands.

      • Bre19

        19d

        @hydroepilepic21 I'm sorry

        • hydroepilepic21

          19d

          @Bre19 thanks

    • Bunglethebear

      20d

      I am very dyslexic and have had to mask it a lot. I've been called out on how stupid my handwriting is, how slow I am, I must always think before I speak but then must hurry up and speak, stop being so slow, stop being lazy, being told I know it so what's wrong with me....... Oh the list goes on. Gladly I work in film and with technology where I can work with like minded people. But still doesn't mean that as I'm explaining something or talking that I get talked over or stopped in my tracks because someone has something else to say and as I'm gathering my thoughts which as someone then throws out more information by talking then stops me thinking and have to process the next bit of information. As now what I was thinking and about to say is irrelevant.

    • Milkovich

      22d

      When I tell people I have osteoarthritis they look at me like I'm a freak because I'm so young. Even healthcare professionals

    • Overcomer

      72d

      After I cry I kept going

    • DragonflyHKD

      100d

      Answering questions when I have the time and energy. I know I don't owe anyone an explanation but I find it helpful to share what I'm comfortable sharing at the time. I've had to cut some relatives out of my life because they would only see me on my good days and refused to believe that I have chronic health issues even though I've got the medical tests and loads of specialists to prove it. 🤷‍♀️

    • Alex1325

      105d

      If I'm around friends I let them do some of the explaining to strangers of any questions come up. That usually defers all the stupid questions people ask. One of my closest friends is really good at giving people the cold shoulder when someone is being creepy so that helps a lot. If I'm on my own and someone starts asking strange questions I usually answer the basic questions (why do you have a walking stick, what's your condition called, etc.) And when the questions get stranger or more personal then I'd like to share I pretend that I'm running late for something and leave the situation

      • Bre19

        19d

        @Alex1325 interesting

    • Meeeeeeeeeeeeeee

      106d

      I tend to keep it on a need to know basis and/or wait until other people have fully accepted me before bringing it up. I have a type of schizophrenia and have honestly been asked, "Is that the one where you kill people?" The other responses tend to be more related to DID :/ I wish more people understood

      • Bre19

        19d

        @Meeeeeeeeeeeeeee I'm sorry

    • faerywyrm

      120d

      I have to explain a lot, especially about my service dog. Since I look "normal" most people think I am. Also, I don't dare mention that I am schizophrenic and bipolar. If I do, people assume I belong in a mental institution! I know that avoidance is not a solution, but it tends to work with the general public. I advocate for understanding and awareness with those who may be more accepting.

      • Ash.G

        120d

        @faerywyrm I understand what you mean I have cousins who are bipolar schizophrenic as well. He has had to deal with a lot of that stigma around the issues because of how bad he's had it on some days where it's literally he didn't have the motivation to do anything and then suddenly he felt like nothing could really stop him from doing certain things. I am glad that you are able to still go around with that issue and fight that stigma.

    • Turtl3g0spl4sh13

      120d

      When I can, I try to talk to people ahead of time if I know there would be times it's going to be visible to someone to for the first time. It's work I wish I didn't have to do, but also, it allows me to set the narrative and expectations.

      • Bre19

        106d

        @Turtl3g0spl4sh13 that is what I have to do as well

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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