Dealing with Stage Four CKD: The Struggle to Be Heard

I'm stage V my gfr is 13 I'm still functioning biking no dialysis yet. Wondering what's h going on

I'm on dialysis. Been on going for over 20 years with no success of a kidney transplant because of high antibodies. The transplant team says don't give up hope but I don't see how when these antibodies prevent me from getting a transplant. So stressed and giving up hope.

My Creatinine is 3.73 and my GPR is 20 but it’s like there for five years doesn’t go worse doesn’t go better

🙌 🙌 Hi everyone I have a stage four but I feel perfect my ankle sometime is it swelling but I don’t feel anything but my doctor look like he’s already pushing me to get diálisis

How does a person get an autoimmune disorder?

🙏

I just found out that I am stage IV and just figuring out what foods to avoid and all my pain and this ckd and other problems are caused by an autoimmune disease

I know exactly how you feel😟....I had to give up Dt. Dr. Pepper

I got stage 3 post Covid and a ton of other chronic conditions. It sucks and it’s bad !! I don’t want it to advance. I’m an ER RN and see the ugly side. The side we all don’t want. I see your likely born in 68 .. I was born in 69 we are to young for this. Do you guys get back pain ? I also have renal artery stenosis and a neurogenic bowel and bladder - I straight cath .. all post Covid — longer list — but I just wanted you to know it’s major to me and find it odd that doctors just gloss over it ?? I have done reading about avoiding high phosphate food and gave up a real love of mine - Diet Coke … yah there’s that

Hi Raylene. I also have stage IV and often feel the same. I have a parent on dialysis who is sicker than me, so everyone thinks I am perfectly fine in comparison. It is lonely sometimes, but I notice that when I write down how I feel about it, then I can “get it out” for the day and don’t feel the need to talk about it as much. It is not the same as having a caring person to talk to about it, but it helps me get by. Maybe it will help you too. :)

I’m so sorry.

I have stage 3 CKD.They say people can live a long life with stage 3.Just recently I found out my left kidney is non-functioning.