See Alike in...

Alike App

Browser

Raylene

695d

I’m stage four cKD. I just would like to be able to talk about it without people telling it’s not that bad.

Top reply
    • Laurlie

      674d

      I'm stage V my gfr is 13 I'm still functioning biking no dialysis yet. Wondering what's h going on

    • Laurlie

      674d

      I'm stage V my gfr is 13 I'm still functioning biking no dialysis yet. Wondering what's h going on

    • Jaimie

      685d

      I'm on dialysis. Been on going for over 20 years with no success of a kidney transplant because of high antibodies. The transplant team says don't give up hope but I don't see how when these antibodies prevent me from getting a transplant. So stressed and giving up hope.

    • Jaysilva

      688d

      My Creatinine is 3.73 and my GPR is 20 but it’s like there for five years doesn’t go worse doesn’t go better

    • Jaysilva

      688d

      🙌 🙌 Hi everyone I have a stage four but I feel perfect my ankle sometime is it swelling but I don’t feel anything but my doctor look like he’s already pushing me to get diálisis

    • Easterbunny

      689d

      How does a person get an autoimmune disorder?

    • Easterbunny

      689d

      🙏

    • Coletteeee

      689d

      I just found out that I am stage IV and just figuring out what foods to avoid and all my pain and this ckd and other problems are caused by an autoimmune disease

    • Seahorse

      690d

      I know exactly how you feel😟....I had to give up Dt. Dr. Pepper

    • HopeWarrior

      691d

      I got stage 3 post Covid and a ton of other chronic conditions. It sucks and it’s bad !! I don’t want it to advance. I’m an ER RN and see the ugly side. The side we all don’t want. I see your likely born in 68 .. I was born in 69 we are to young for this. Do you guys get back pain ? I also have renal artery stenosis and a neurogenic bowel and bladder - I straight cath .. all post Covid — longer list — but I just wanted you to know it’s major to me and find it odd that doctors just gloss over it ?? I have done reading about avoiding high phosphate food and gave up a real love of mine - Diet Coke … yah there’s that

    • JM17

      694d

      Hi Raylene. I also have stage IV and often feel the same. I have a parent on dialysis who is sicker than me, so everyone thinks I am perfectly fine in comparison. It is lonely sometimes, but I notice that when I write down how I feel about it, then I can “get it out” for the day and don’t feel the need to talk about it as much. It is not the same as having a caring person to talk to about it, but it helps me get by. Maybe it will help you too. :)

    • JoyNoel

      695d

      I’m so sorry.

    • Sweetie1968

      695d

      I have stage 3 CKD.They say people can live a long life with stage 3.Just recently I found out my left kidney is non-functioning.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion