Explore Over 11,000+ Conditions, Medications, and Symptoms.

Get a personalized feed by signing up for free.

avatar

Han_Banan

2y ago

Dealing with Ramsay Hunt Syndrome: Seeking Answers and Support

Hello, I was diagnosed with Ramsay hunt syndrome and trying to find people who are dealing with/had felt with it to hopefully find some answers. Is anyone willing to share their story? Thanks!

Your answer

avatar

Han_Banan

2y ago

I do not live by dc! They referred me to a dry eye specialist and will see them on Tuesday, fourth eye doctor I will see, and hopefully the tear duct plugs will help keep moisture in. I will keep you updated!
avatar

ToddGack

2y ago

How did your appointment go today, if you care to share? Hope it went well.
avatar

Han_Banan

2y ago

they put a punctual plug in my eye and I’m taking prn fish oil to help with oil based tears. All that and the restasis they said all I can do is wait. I do have to say the plug is helping and I have to put them in less! Also my eye doctor explained he only wants me to use drops no more than once an hour anyway to keep the oil in there. So I’m feeling hopeful about it! Hopefully they come back soon.
avatar

Han_Banan

2y ago

wow thank you so much. I saw an ophthalmologist last week and he said there was nothing he could do but prescribed me restasis. I was not happy with him so I have an appointment with a plastics ophthalmologist tomorrow and will certainly bring this up. Thank you so much!!
avatar

ToddGack

2y ago

Hi, I had Ramsay Hunt. Unfortunately, while people with standard Bell's Palsy usu go back to normal, it's less frequent for that to happen with Ramsay, and I never returned completely to normal. If you have any questions please let me know.
avatar

Han_Banan

2y ago

thank you! I am still dealing with balance issues, major hearing loss in affected ear/tinnitus , but my main concern is my right eye cannot produce tears anymore. Have you dealt with dry eye and were they able to do anything about it?

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

pp-logo

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

appStoreBtngooglePlayBtn

© 2020-2024 Alike, Inc