Dealing with Progressive Hearing Loss in Early 20s

Does anyone else here have degenerative/progressive hearing loss? If so, do you know why/what condition causes it, and if its genetic? How do you deal emotionally with continually loosing hearing? I’m in my early 20s, and have had these phases where I’ve rapidly lost hearing, with relatively little loss (and no recovery) in-between. My dad is profoundly deaf and nobody ever told him why, and my audio couldn’t offer me an explanation either, even after sending me for MRIs and visits with an ENT and neurologist. I’ve just gone through another phase of rapid loss, and I don’t know what to think about it or how to deal with it.

Your answer

Kaiiya

2y ago

I dunno what the issue is with mine. I know it's progressive, genetic, and whatnot, but no one's told me why it's happening.

Riley24

2y ago

I’m not quite sure if my hearing loss is In anyway related to my hearing loss but I do know that it’s genetic. My father has hearing loss in his right ear and is fully deaf if his left. And I’m almost positive my hearing is going faster than his. So it terrifies me to know I won’t be able to hear my loved ones as I age. But it’s been absolutely amazing for me learning ASL. It calms my mind to know that when inevitably I do become deaf I have a strong understanding of ASL so I know how to properly communicate with my community and my loved ones.

Riley24

2y ago

If my Tinnitus is related to my hearing loss*^

Pharoah

2y ago

I was also told That with as bad as my ear is doctors are suprised I don’t have constant vertigo

Pharoah

2y ago

Mine is actually caused by my right ear drum busting in my sleep at the age of 9

Chronicly_Liz

2y ago

Mine is due to Meniere’s Disease. It gives me vertigo, the hearing loss, ear pain, pressure, balance issues, and ear ringing. While it’s rarer, it can cause all those issues, and is genetically passed down I believe. My ENT diagnosed mine best advice is if you have any other symptoms bring it up! There are a few types of Meniere’s that don’t have vertigo. Best of luck to you!

momiim

2y ago

i have otosclerosis so my bone randomly grows and can get worse with hormones spikes. mine hasn't gotten worse for years and it's genetic. it's also a middle ear disorder so it has a "cure". honestly, i would look into support groups online or even looking into the hard of hearing community. it's hard to deal with progressive hearing loss but you don't have to suffer alone!

Caspa909

2y ago

I know mine is due to the bone freezing in the inner ear, my ENT told me that I could have surgery to correct it by removing the bone. Um afraid though just because the surgery is on my head. But that is what my ENT told me a few years ago.

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