Dealing with Progressive EDS: How to Manage the Pain and Restrictions

My EDS worsened with time, and I watched the same thing happen to my grandma too. Physiotherapy and exercise to help strengthen muscles and joints slows down the decay, and can even improve it slightly.

I've found the symptoms of my EDS have worsened with time, along with the comorbidities. My dislocations are more frequent, I've developed arthritis in multiple places (neck, ankle, wrists, possibly hips), my generalised chronic pain is constant and more severe, and my fatigue is so ridiculous that I'm unable to work as I need 11+ hrs of sleep a day. I'm turning 25 next month, so I'm still young, too. I had to quit my dream job due to my fatigue and pain. There's unfortunately not much I can recommend to slow it down, just the usual things of trying to prevent dislocations, encourage healing, getting decent quality rest, a good support system, and a medical team you trust. I hope that you find relief and help with your symptoms 💜