Dealing with POTS Symptoms: Feeling Upside Down and Spinning

I've also had some issues with vertigo and not really being able to differentiate up from down. My POTS is part of a different condition, so these symptoms went away with medication that might not work for you. Do you have any numbness in your hands or feet?

That definitely sounds like POTS to me! I just found out recently that there’s many different subcategories of POTS, and each one presents differently. I’d recommend trying to find a dysautonomia specialist to narrow down what category it could be, and hopefully they’ll be able to help out! I’m on a waiting list for a few different places, but the best one I’ve found so far is the Vanderbilt Dysautonomia center. There’s also the chance that you could have a comorbidity making the POTS worse. In my case, I have EDS which means my blood vessels are too stretchy which makes my blood pool in my legs even more than with just POTS. I hope you find some answers, let me know if there’s anything I can help with! 💛

Hi! I was diagnosed with POTS at 18. A little over 2 years ago. I had one week where i was miserable. I was usually able to control my symptoms well. But i happened to be on my period that week. I was so so dizzy. My head head felt like a ringing gong. Just vibrating back and forth. I went to the ER in 3 out 5 days for fluids. The fluids helped. After that i began getting fluids once a week for about 3 months and started birth control. Birth control was a life saver! I have not gotten IV fluids in over a year!