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I have the most excruciating pain at the base of my skull, top of my neck, base of my head. Feels like a nerve thing. Feels like lightning, like a shock. Very hard to function because it's such a paralyzing feeling. Most of my life I have just assumed I was dealig with migraines. And some days I think it is migraines. But most days it's what I think is called Occipital Neuralgia. Heat helps, not cold. I'm not a doctor but i've been doing a lot of research and digging for many years now. Occipital Neuralgia is exactly my symptoms. 4-5 days a week. I'm miserable. Anyone struggle with this? Any advice or coping recommendations?

Top reply
    • geonaut


      I would definitely recommend seeing a neurologist as a start.

    • geonaut


      I would definitely recommend seeing a neurologist as a start.

    • Sunli


      I’ve had this pain but it was due to the remnants of falling and hitting my head but it lasted for years after I’ve only found that getting a massage and having the muscles try to stay loose and not get too stressed while also working on range of motion on the neck very slowly every day to try to keep that area loose, Also making sure when you sleep you keep your neck in neutral which is easier for sleeping on your back I still have the pain flare up anytime that I’m sick or start a new medicine and it’s horrible so I know how you feel but it went from being a daily problem to eventually fading after trying to make changes wishing you the best I did go to a pain specialist who recommended occipital nerve block but I ended up not doing it But I would recommend considering it if nothing else works and it continues long-term

    • Collxxn


      I think I have this too. It’s the only thing that makes sense and explains what’s going on. I haven’t seen a doctor yet but I have general nerve pain all over my body that I haven’t been able to figure out for years.

    • Chippergirl


      Did you happen to receive any of the COVID vaccines? The same pain started for me afterward

    • Ladybug122


      You can get occipital nerve blocks.

    • mallory916


      Yes, I was diagnosed with this in February and I have had symptoms since Christmas last year. It's the worst thing that's ever happened to me pretty much. I've been in pain or extremely uncomfortable every 2nd of every day since Christmas. I have the same symptoms and they never go away. I feel like I'm in more control now though now that I know what it is and now that my anxiety has died down about the whole situation. Whole situation. It was really hard to accept the fact that this might be a lifelong thing. For some people it goes away and for some people it doesn't. Mine has gotten better but I still have ear pressure, tinnitus and lightheaded feeling never goes away.

    • Talion


      Is this bilateral or unilateral? What areas of the head, neck, or face do you feel the pain or sensation radiates to?

    • sandysandrasandone


      See a neurosurgeon and get a scan of the cervical spine and skull base. Ask about C1, C2 rotation or elongated styloid process.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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night sweats





Anxiety (Including GAD)