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TabbysMom

486d

Seems I have profound neuropathy. At least that's what one doc says. Have had so very many tests! Now absolutely nothing from docs! Total silence. 😠 Does anyone suffer from neuropathy? I have learned through my own studying that RA & neuropathy go hand in hand. What does this evil disease feel like to you? The numbness I understand but the pain! Oh god the pain! Even vicious cramps, Charlie horse like cramps, only worse. Makes my feet look like something out of a horror movie. Then the newest, cramps that affect an entire leg. The pain is more than I can bare but nothing works! Looking for advice please. Thank you!

Top reply
    • BJSTREEHOUSE

      366d

      @Marjo Lyrica makes me feel stoned along with the munchies. I immediately gained weight. I took methotrexate for 2 1/2 yrs. Made my hair fall out and mouth sores. I used injections because my stomach could not tolerate pills. Next Xeljanz. Then Rinvoq. Now I'm on Orencia and doing well which is what the Dr wanted to give me after the metho but had to give 2 years to the other before insurance would pay for Orencia.

    • Marjo

      483d

      Yes I have both RA and Neuropathy of hands and feet on outside thighs. Hands & feet always cold : poor circulation. Flares include whole body pain and restless body! Lyrica, Hot Shower/bath seems to be the only thing that will stop it! Always Flares at Bedtime, I attribute to doing too much, can also just be hand, shoulder, arm pain! Severe fatigue is a controlling factor day to day struggle! Started Mehaltrexate; experiencing side effects. Any suggestions for RA medications?

      • BJSTREEHOUSE

        366d

        @Marjo Lyrica makes me feel stoned along with the munchies. I immediately gained weight. I took methotrexate for 2 1/2 yrs. Made my hair fall out and mouth sores. I used injections because my stomach could not tolerate pills. Next Xeljanz. Then Rinvoq. Now I'm on Orencia and doing well which is what the Dr wanted to give me after the metho but had to give 2 years to the other before insurance would pay for Orencia.

      • TabbysMom

        482d

        @Marjo I just can't tolerate the Lyrica. I can barely walk when I take it. I'm not sure what asking about RA meds but I take Humira injections once a week. Thank you & may healing be yours!

    • BJSTREEHOUSE

      486d

      I have been told by 1 dr i have it and by another i dont have it. I do have numbness down the sides of both legs and all my toes. It is worse now than ever. Yes I have pain and cramping but mostly on the L side. I just had back surgery 2 weeks ago. The dr said it may take months for all of my pain to subside. We will see. Have you tried diclofenac gel for the pain or gabapentin?

      • TabbysMom

        486d

        @BJSTREEHOUSE Gabapentin yes. I hate it! Makes me drunk. Can barely walk. Gel no. Thank you for your input! Pray your healing is faster than expected.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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