Dealing with Multiple Chronic Conditions

Cfs for me. Pots helps push it over the edge but yea the weakness is super frustrating

Hi (: I have CFS and I'm currently experiencing loss in muscle mass. I actually need to get a leather check-up because my weight loss could be Thyroid related. To answer your question, there are a few things it could be (according to my mother who is a nurse) 1. Your CFS. It depends how much you move daily. If your CFS is pretty debilitating, then over time your body will shed it's muscle because it's not being used. 2. FIBRO. Fibro patients often complain about feeling like they have more fat than muscle tissue which could be anemia making you feel that way, OR if you've started moving around more than you used to with CFS, then it's possible you're re-building muscle. (Like when weight trainers say they're going to "shred" or whatever. It means like break down their muscle to rebuild it) 3. Thyroid. It's a possibility that you're developing thyroid issues and losing weight. (: I would bring all that up to your doctor and specifically ask if you can check your thyroid and bring up the feeling of losing muscle. (: Also make sure to see if you've had drastic weight loss (:

I’m not anemic on my bloodwork but my muscles feel lethargic daily

I had an elevated something, but not sure what the above it

When you say feeling anemic/no muscle mass, are you referring to generalized weakness? I’m also kinda convinced I have POTS or some dysautonomia. Definitely can relate to the chronic fatigue. I’d be curious to see your EBV titers. I was perfectly healthy besides the fatigue part until a few years ago when I noticed one enlarged lymph node visibly seen in my neck. Went to doc who ordered labs and found my EBV titers were much higher than should be without an active mono infxn (I have no knowledge of having mono in past). Ever since then I’ve had random health issues pop up one after another and just keep piling up with really no answers. It’s been miserable. Anyways, EBV has a ton of research linking it to several conditions. Not many docs are familiar with this. Id like to know more info about your symptoms and experience with navigating the health system. And any answers you get along the way!

I’m sorry you’re feeling that way!! Honestly I’m not sure that I’ve experienced a symptom similar to that, so I’m not sure how to be give advise! If you have a doctor who’s managing your symptoms and medications I would bring it up to them and see what the siggest