Dealing with Medical Complications Alone

I had the same, caused a pretty decent infection because it wouldn't heal. 90 days of IV antibiotics and an encephalopathy reaction to that latter and still hurts pretty regularly. It is extremely isolating. Moment to moment. That's how I deal, but it hasn't been super effective. I hope you find something that gives you some relief.

Sorry for the later response. I’ve been working 7 days a week

Omg you guy! Does anyone go to the facial pain association support groups?

❤️

I’m so sorry about all of that happening! I have trigeminal neuralgia too and it’s so hard to keep going some days! I just found out I have lupus on top of fibromyalgia and TN. 😣

So sorry to hear that. I have trigeminal neuralgia too and it is definitely debilitating. What do you do to find joy?

Oh yeah? I talk about it openly on Facebook but no one seems to care. Trying to bring awareness to Trigeminal neuralgia and also trying to do online business. I swear. No one likes nor comments on my post unless they saying I’m crazy I need Jesus or all I need is good d***.. all I get are men being sexually explicit with me. I lost everything due to my disability and no one seems to care.

Every day! I can totally relate.