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901d

Hi, I go by Jux and I’m a 20 year old African American female that was diagnosed with Lupus November 2020. What symptoms did you first encounter before you know knew you had lupus? How did it make you feel? If any were physical (such as skin changes), did they get better over time or are you still dealing with problems? How are you feeling right now? Mentally and physically? How was your day today? :) I hope it’s going good.

Top reply
    • Passyon

      898d

      We’re in this together so know… So glad you’re feeling decent. That helps a bit especially with anxiety (as long as it doesn’t get too crazy lol) I have experience the can’t walk or bathe myself. It gets there yes however get a strong support system around you and it will make all of the difference. If you haven’t… Try Wild Growth and Tea tree oil for your hair I tried meditation, yoga, tai chai and with me being a cheer and dance coach/director those are the steps that help me with mental and joint pain. I am also on Hydroxychloroquine and it does help prevent flares most of the time Same here you need me… I’m here also. Stay strong Sis

    • Passyon

      898d

      We’re in this together so know… So glad you’re feeling decent. That helps a bit especially with anxiety (as long as it doesn’t get too crazy lol) I have experience the can’t walk or bathe myself. It gets there yes however get a strong support system around you and it will make all of the difference. If you haven’t… Try Wild Growth and Tea tree oil for your hair I tried meditation, yoga, tai chai and with me being a cheer and dance coach/director those are the steps that help me with mental and joint pain. I am also on Hydroxychloroquine and it does help prevent flares most of the time Same here you need me… I’m here also. Stay strong Sis

    • Heyo

      901d

      I experienced all of those symptoms too! For a couple months I couldn’t eat, I wouldn’t walk, and I was burning up really bad but my feet were freezing cold. Surprisingly, I’ve gotten better to the point where I can work again but I’m still struggling with hair loss and I’ve recently been depressed and stressed to the point where I cry randomly. I’m currently taking b12 vitamine and a medication called Hydroxychloroquine. I hope things get better for you soon. I’ll be here if you need a person to talk to. You’re not alone :) Happy Holidays as well :)

    • Passyon

      901d

      Happy holidays. I’m Eb. My first symptoms was Joint pain and fatigue. Felt debilitating to say the least. 😥 I got a rash from being in the sun. That was 2 years ago and I still have the scars from the rash I feel much better now that I have the right plan for SLE for me. Mentally, it’s a battle sometimes… I feel anxious more so then depressed. At first, it’s hard bc it’s something you wasn’t expecting to hear however with a great support system and plan, you’ll be great. 🤗

    • EmilyRose

      901d

      Hi Jux! So I was very recently diagnosed. My first symptoms were fatigue, low grade fevers, and joint pain. Those were soon accompanied by rapid hair loss. Luckily my doctors took these symptoms and concerns seriously and did testing to figure out what was going on. My symptoms unfortunately have been getting worse but I’m starting medication in the coming weeks. It’s frustrating but I’m hopeful.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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