Join a Community That Understands You

Get answers from those who share your health journey

Left Image 1Middle Image 1Right Image 1
avatar

Boot_WritingSpider

Updated 11mo ago

Dealing with Lupus Diagnosis and Loss of Support System

Hi, I'm a little new to this. I was diagnosed with Lupus back in 2019. I'm still not 100% on which type I have because it was caught pretty early. I'm sort of just going by symptoms. At the time it was something I could talk to my Dad about because he had it too, but his diagnosis wasn't caught early and he struggled with it throughtout my adolescence. He passed away back in 2020. My doctor has also since retired so I'm pretty nervous about what happens next, and I don't really have anyone I can talk to about it.

Can you help? Connect today

avatar

JustcallmeOmi

2y

I’m so sorry about your father! I can’t even imagine the pain of losing mine and I’m sure you find it hard to explain the level of pain it causes you. Gentle hugs. I’m new to lupus, too. Just diagnosed this year, but have had symptoms for well over 10 years. Took the right rheum doing the right testing to get that diagnosis. 16 vials of blood. It was insane. I’m in stage 4 fibrosis/cirrhosis of the liver partially due to being undiagnosed. I just found this doctor. He’s amazing. I can’t imagine having to find a new one all over again. Took me a decade to find him. Same with my PCP. Luckily, she’s fairly young. Can he recommend someone to replace him? Maybe the staff at his old office can reach out to him for you. Or maybe your PCP can recommend one? I am so sorry you are going through this.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

feed-footer-0

Free unlimited access

to all community content

feed-footer-1

Find others who are

medically similar to you

feed-footer-2

Pose questions and join

meaningful discussions

pp-logo

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

appStoreBtngooglePlayBtn

© 2020-2024 Alike, Inc