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superstellar

1y ago

Dealing with Imposter Syndrome in Chronic Illness Communities

hi!! i just downloaded this app and can’t wait 2 connect with more people with my illnesses i’m not sure what exactly to ask first, but ig i’ll ask how everyone here deals with imposter syndrome/feeling like they’re faking their illnesses??

Your answer

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kateafranklin

1y ago

By stating and writing out FACTS z that I know are true!
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FS_cookielove

1y ago

I deal with it by constantly going to the doctor and ensuring that the scans show I'm sick. With POTS the symptoms seem so normal, why it's commonly misdiagnosed, and I feel like I'm overreacting and so I don't do what I'm supposed to. Then my condition gets worse. I hallucinated the smell of ammonia the other day.
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VEya

1y ago

🙌
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Hamie

1y ago

I agree 100%. I feel this way often because my mother tells me that I'm fine and that I'm being overly dramatic.
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Zebragirl

1y ago

yes, my mom thinks I'm a hypochondriac or just have health axiety
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Zebragirl

1y ago

I have to constantly remind myself that if nothing was wrong, I wouldn't feel this way and I have a right to think about it because it affects me
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Gingeralamode

1y ago

I either read the diagnostic criteria and make a checklist or I remember that a DOCTOR who went to MEDICAL SCHOOL verified that I have it.
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SabrinaDivina

1y ago

I just downloaded the app too! 🤗 I feel like what was most helpful for me was regularly going to a talk therapist to vent and feel empowered and validated. But when I initially told her my story, I definitely felt like I was making up some elaborate tale…as though no person could possibly have this many problems while looking normal. I hate that the majority of my problems are “invisible”, that’s what makes it feel unreal/made up.
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Beetlejuul

1y ago

I like to research my conditions because of hyperfocuses. Many times researching actually puts me at ease that I’m not faking because of how much I relate and the symptoms I don’t get aren’t listed as diagnostic criteria
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MysteryChick

1y ago

Constantly I only feel my conditions are real when I over do it and end up in a great deal of pain But even then I often feel its my fault and I'm being dramatic For me, a large part of that is because I have to constantly badger doctors to investigate my symptoms and every new investigation doesn't turn up any answers and the doctors are rarely motivated to help me get to the bottom of it It's very invalidating
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superstellar

1y ago

this… it’s rlly hard when my pots symptoms don’t come up on any tests D:
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Asg

1y ago

All the time! I struggled for the first few weeks after my diagnosis with telling people because I felt like I made it up in my head even though a doctor had diagnosed me. Even after a few months I always have a lingering “what if I’m faking?”
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Emmma

1y ago

Following because this is a huge challenge for me! If you ever wanna vent feel free to message me 💕

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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