See Alike in...

Alike App

Browser

MrsDB

323d

Where is the best place to turn to for answers? I'm 28, started getting my period at 12 and they have always been heavy, painful and I've ended up in hospital multiple times due to this. when I had my 3rd miscarriage in December 2021 the ultrasound tech asked how many C-sections I'd had and when I told her none she told me I had an extremely high amount of scar tissue in my uterus. I tried for over 10 years to get my ex GP to investigate me for endometriosis but she refused. What do I do and what can I do to help with symptoms?

Top reply
    • AcAlike

      304d

      All the hormones/meds do is mask symptoms and they dont have any evidence of treating the actual diseased tissue on your organs, so the best place to start is consulting with an endometriosis specialist. Even tho it is not the end all be all of endo info, Nancy’s Nook is a website that is a great place to start to get info on the disease and treatment and surgical options

    • AcAlike

      304d

      All the hormones/meds do is mask symptoms and they dont have any evidence of treating the actual diseased tissue on your organs, so the best place to start is consulting with an endometriosis specialist. Even tho it is not the end all be all of endo info, Nancy’s Nook is a website that is a great place to start to get info on the disease and treatment and surgical options

    • Pain_Warrior89

      322d

      Where abouts are u

      • MrsDB

        321d

        @Pain_Warrior89 New Zealand

        • Pain_Warrior89

          320d

          @MrsDB my advice from UK won't be that useful then

    • QTpie7260

      323d

      Also orilissa is a medicine that induces menopause that’s approved for endometriosis. Omg it made me feel so much better than birth control ever did. Wish I tried it sooner but was scared to.

    • QTpie7260

      323d

      This is what I did to finally get help with my stage 4 endometriosis. I went to so many obgyns like 15+ with no help. I finally found a group on Facebook called Nancy’s nook. They can point you in the right direction who is the top excision specialists in your area. Please absolutely DO NOT go to a normal obgyn for this. All they know to do is hysterectomy & ablation. Wich will not get it all & it will keep coming back. Ablation basically just gets the surface of it. Excision gets to the root. You will need surgery’s the rest of your life for it probably but you want to get good help from the start. You DO NOT want to see a obgyn who delivers babies, you want an endometriosis excision specialist. This is VERY IMPORTANT. My ENDO is so bad I lost some of my intestines in 2017. Now they’re going to have to take all my large intestine & I’ll have a perminant ileostomy bag the rest of my life. So this is SERIOUS. Don’t waste your money at idiot drs, learn from my mistake.

    • Coffeeluv

      323d

      Find a new doctor!! Obgyn or endometriosis specialist. I had to go to at least 10 doctors before finding one who listened and I had endo the whole time.

      • MrsDB

        321d

        @Coffeeluv I've just changed GPs so at my next appointment I'll definitely ask for a referral to an endometriosis specialist

    • Del97

      323d

      I wish i had a better answer. My doctor thinks I have it but the diagnosis requires surgery which is expensive and invasive. The treatment is usually just hormones like birth control which stopped my periods, but I still get some cramping when I get spotting and after sex. I’m 18 but I’ve been having painful heavy periods since 11 when I got it first. If you have scar tissue inside it sounds like you definitely have it but I would focus on asking another dr about how to help symptoms

      • MrsDB

        321d

        @Del97 I'm on the wait-list to see the fertility specialist and I know that they do surgery to investigate why you're having troubles (that's how my aunty was diagnosed with endo) but we're looking at another 12 months before we get an appointment. I've just changed GPs so I'll definitely make an appointment and discuss how to manage symptoms with my new Dr.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Alike health

It's important to consult with a gynecologist, preferably one with experience in endometriosis. Write up a list of your symptoms, how often they affect you, and any questions you have, then schedule an appointment. A knowledgeable doctor can help guide you through the diagnostic process and recommend appropriate treatments for managing your symptoms.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion