Dealing with Heavy and Painful Periods: Seeking Answers

All the hormones/meds do is mask symptoms and they dont have any evidence of treating the actual diseased tissue on your organs, so the best place to start is consulting with an endometriosis specialist. Even tho it is not the end all be all of endo info, Nancy’s Nook is a website that is a great place to start to get info on the disease and treatment and surgical options

Where abouts are u

Also orilissa is a medicine that induces menopause that’s approved for endometriosis. Omg it made me feel so much better than birth control ever did. Wish I tried it sooner but was scared to.

This is what I did to finally get help with my stage 4 endometriosis. I went to so many obgyns like 15+ with no help. I finally found a group on Facebook called Nancy’s nook. They can point you in the right direction who is the top excision specialists in your area. Please absolutely DO NOT go to a normal obgyn for this. All they know to do is hysterectomy & ablation. Wich will not get it all & it will keep coming back. Ablation basically just gets the surface of it. Excision gets to the root. You will need surgery’s the rest of your life for it probably but you want to get good help from the start. You DO NOT want to see a obgyn who delivers babies, you want an endometriosis excision specialist. This is VERY IMPORTANT. My ENDO is so bad I lost some of my intestines in 2017. Now they’re going to have to take all my large intestine & I’ll have a perminant ileostomy bag the rest of my life. So this is SERIOUS. Don’t waste your money at idiot drs, learn from my mistake.

Find a new doctor!! Obgyn or endometriosis specialist. I had to go to at least 10 doctors before finding one who listened and I had endo the whole time.

I wish i had a better answer. My doctor thinks I have it but the diagnosis requires surgery which is expensive and invasive. The treatment is usually just hormones like birth control which stopped my periods, but I still get some cramping when I get spotting and after sex. I’m 18 but I’ve been having painful heavy periods since 11 when I got it first. If you have scar tissue inside it sounds like you definitely have it but I would focus on asking another dr about how to help symptoms