Dealing with Gastroparesis: Struggling to Adjust to New Diet and Exercise Routine

Look into seeing Dr Cline at the Cleveland Clinic. He’s a Gastroparesis specialist. Otherwise, doctors don’t know shit. My first GI was a duck about it and said my results were due to constiipation, which I wasn’t really constipated. He told me there was no treatment. THATS NOT TRUE!! Dr Cline has given me a lot of hope. Also, the GP Facebook group is great. Just take everything with a grain of salt and do your research. And please, don’t hesitate to message me if you have any questions! I’ve been around the block with a lot of GP treatments so I know the drill. I’m about to have my third GES.

i feel the same i feel like mines way worse than moderate they told me mines moderate also

The first step is always diet change, it rarely works but is the easiest change to make so it’s always suggested. The next is medication (motility stimulants) which aren’t super great b/c they can have nasty side effects. Then the more invasive options start, NJ or GJ tube for nutrition, or a gastric stimulator. Also Botox in the pyloric valve is another option. Both the stimulator and the Botox have pros and cons. Then the more dramatic option is gastric bypass surgery (not 100% sure how it helps gastroparesis, but it’s stated as a treatment option). Sadly gastroparesis is a very difficult thing to treat and live with and a lot of doctors are super dismissive of symptoms, only looking at BMI and not the quality of life of a person. I had to go to 4 different GI doctors before one would give me a GJ tube, and that was after loosing almost 80lbs. I’m sorry you’re dealing with this, and I hope you can find relief soon.

Join a Gastroparesis Fb support group. The one thing we’ve all learned from having this awful disease is that doctors don’t know anything about it. But in the group you’ll get every question answered. I wouldn’t wish this disease on anyone… I’m sorry you got diagnosed but now you can learn about relief options!