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tommmy

667d

so I was just recently diagnosed with gastroparesis. I was told that while my stomach did empty that it took the whole four hours to do so. They said I had mild to moderate gastroparesis(doesnt feel very moderate to me😑) and that all I would need to do is to change my diet and exercise after eating. But I'm never really hungry, I get bloated after eating anything solid and when I get nauseous I can't even throw up, I just dry heave which really hurts my throat. I'm also still loosing almost a pound every few weeks. Not to mention that swallowing my daily meds makes me sick to my stomach.

Top reply
    • kateafranklin

      623d

      Look into seeing Dr Cline at the Cleveland Clinic. He’s a Gastroparesis specialist. Otherwise, doctors don’t know shit. My first GI was a duck about it and said my results were due to constiipation, which I wasn’t really constipated. He told me there was no treatment. THATS NOT TRUE!! Dr Cline has given me a lot of hope. Also, the GP Facebook group is great. Just take everything with a grain of salt and do your research. And please, don’t hesitate to message me if you have any questions! I’ve been around the block with a lot of GP treatments so I know the drill. I’m about to have my third GES.

    • kateafranklin

      623d

      Look into seeing Dr Cline at the Cleveland Clinic. He’s a Gastroparesis specialist. Otherwise, doctors don’t know shit. My first GI was a duck about it and said my results were due to constiipation, which I wasn’t really constipated. He told me there was no treatment. THATS NOT TRUE!! Dr Cline has given me a lot of hope. Also, the GP Facebook group is great. Just take everything with a grain of salt and do your research. And please, don’t hesitate to message me if you have any questions! I’ve been around the block with a lot of GP treatments so I know the drill. I’m about to have my third GES.

    • Alyssagpwarrior

      660d

      i feel the same i feel like mines way worse than moderate they told me mines moderate also

      • Janelle21

        624d

        @Alyssagpwarrior moderate just means your stomach emptied moderately slow on the GES, not that your symptoms are moderate 💕 your pain is valid

    • Donkeyfarts

      667d

      The first step is always diet change, it rarely works but is the easiest change to make so it’s always suggested. The next is medication (motility stimulants) which aren’t super great b/c they can have nasty side effects. Then the more invasive options start, NJ or GJ tube for nutrition, or a gastric stimulator. Also Botox in the pyloric valve is another option. Both the stimulator and the Botox have pros and cons. Then the more dramatic option is gastric bypass surgery (not 100% sure how it helps gastroparesis, but it’s stated as a treatment option). Sadly gastroparesis is a very difficult thing to treat and live with and a lot of doctors are super dismissive of symptoms, only looking at BMI and not the quality of life of a person. I had to go to 4 different GI doctors before one would give me a GJ tube, and that was after loosing almost 80lbs. I’m sorry you’re dealing with this, and I hope you can find relief soon.

      • tommmy

        667d

        @Donkeyfarts I'm kinda hoping that I won't need a NJ or gj tube cause my stomach can still empty solids...just slowly. But if it come to that I'd be okay I think. But yeah I've lost 30 or more pounds since the summer of last year which for me is a lot

    • Charlie25

      667d

      Join a Gastroparesis Fb support group. The one thing we’ve all learned from having this awful disease is that doctors don’t know anything about it. But in the group you’ll get every question answered. I wouldn’t wish this disease on anyone… I’m sorry you got diagnosed but now you can learn about relief options!

      • tommmy

        667d

        @Charlie25 yeah I did join an fb group yesterday. I just don't like that I have to wait for an endoscopy to talk to the gi doctor about what I need to do next. I don't like not knowing I guess.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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