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Alyssagpwarrior

871d

Hi my names Alyssa I have gastroparesis and I’m 21 I got diagnosed with gastroparesis at 16 years old and I have a procedure coming up this wensday anyone else dealing with gastroparesis too?

Top reply
    • wolfbeck

      546d

      Hi I'm 25 - was only diagnosed with gastroparesis last year but have been having symptoms since I was 14 (unfortunately was diagnosed with coeliac disease around the same time so my symptoms were put down to a mixture of that and EDS). Have since also been told I have intestinal failure. Have had both a venting PEG and a jejunostomy tube inserted since diagnosis - what procedure are you having? Good luck!

    • wolfbeck

      546d

      Hi I'm 25 - was only diagnosed with gastroparesis last year but have been having symptoms since I was 14 (unfortunately was diagnosed with coeliac disease around the same time so my symptoms were put down to a mixture of that and EDS). Have since also been told I have intestinal failure. Have had both a venting PEG and a jejunostomy tube inserted since diagnosis - what procedure are you having? Good luck!

    • Stretchy_Qxeer

      550d

      Hi Alyssa! I'm also 21 living with gastroparesis. I've been dealing with symptoms my whole life pretty much. I'd love to chat sometime.

    • xajhx23

      563d

      I just got diagnosed with gastroparesis. I could use as much help and advice as anyone has to offer! Just started meal replacements yesterday… I lost 50 pounds in a few short months because of this. Any help is appreciated

    • Ekostka

      870d

      I have gastroparesis too! Good luck with your procedure. I had a gastric pacemaker put in and it has been amazing with helping my symptoms

    • Alyssagpwarrior

      871d

      Thank u

    • Bubbies

      871d

      I was diagnosed 3 years ago. Still a lot of trial and error though. I seem to respond best to carbs and almost nothing else haha good luck on your procedure!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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