See Alike in...

Alike App

Browser

suelittlebits

160d

if you have been diagnosed with FND how are you dealing with it and how can you improve your mobility

    • Ony

      89d

      Hello! New on here. I was diagnosed in 2018/2019. I knew something was wrong for years before that but I had always put it down to lifestyle choices and shift work. After finding that I was still suffering, despite cleaning up and keeping 'normal' hours, I tried to get my doctors surgery to investigate. Eventually, I was seen by a doctor who was prepared to listen, and she arranged for all the tests to see if it was MS, ME, Parkinsonism, Multiple Myeloma, etc.. I thought I had had it since 1988, but as I learned more about FND, I could trace it back to at least 1980. I count myself lucky that I don't have seizures and that I have only been bedridden for relatively short periods of time. That said, I am just coming to the end of a second year of Interruption from university. FND robs me of my upper body strength and muscle mass, but my legs have always been pretty good. I find graded exercise has been helpful, but when FND flares, I can't continue it, and I lose all the upper body strength again. I have recently found that Reiki has been helping a lot. I have coped in the past (and now) by adapting my life to fit around my FND. Sorry, I can ramble on for hours. I hope you are coping well?

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Alike health

Some people with FND have found improvement by staying active to build up strength and doing activities that involve fine motor skills, such as coloring or working with clay. Anti-inflammatory supplements, teas, foods, or medications like ibuprofen and Celebrex have also been reported to bring about significant improvement in some cases.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion