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Dealing with Endometriosis Pain: Seeking Advice

Andi87

688d

So, I had a labroscopy done in 2019, and my doctor warned me that about 3-5 years later I was going to need to have another one. Well, my pain has been getting worse and I am currently on my last resort birth control (progesterone only) and its not doing anything for me. If y'all have had anything that has helped you, please let me know.

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9

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Symptoms Involving Nervous & Musculoskeletal Systems

Endometriosis

Generalized pain

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Top reply
    • Andi87

      678d

      @chronicchemist I took orlissa for 2 years and then went off of it in January or so. I had absolutely no issues while I was on it, but the instant I quit taking it, I had all the fun symptoms return

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    • Lola808

      685d

      I have heard that the IUD helps. I’m kinda looking into it. The Kyleena which is the smallest of the IUD. other than that they can take my uterus out. I’m so over it as well.

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    • chronicchemist

      688d

      I'd be really careful with this. There's a large trade off to be made, and Lurpon/Orlissa run the risk of osteoporosis and even more pain as a result of bone density loss. And these methods can't be used long term either

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      Reply
      • Andi87

        678d

        @chronicchemist I took orlissa for 2 years and then went off of it in January or so. I had absolutely no issues while I was on it, but the instant I quit taking it, I had all the fun symptoms return

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        Reply
      • Lola808

        685d

        @chronicchemist also I believe Lupron had a lawsuit against it.

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        Reply
      • Belugabear

        687d

        @chronicchemist yeah I second this, orilissa is better than lupron but both are scary and only effective for a small portion of people. I tried orilissa and got off of it before anything scary happened but it did not help and just gave hot flashes

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        Reply
    • Blonde

      688d

      Try the new medications that put you through a pre-menopause !

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      Reply
    • Belugabear

      688d

      Was it a specialist who did it? Was it an excision? If not, look into Nancy’s Nook. It will give you all the info you need! Basically, it won’t come back if you have excision by a specialist. If you have any questions let me know!

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      Reply
      • Andi87

        688d

        @Belugabear It was a gyno who did the excision for me. And in my area, she is the best surgical option of obgyns.

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        Reply
        • Belugabear

          688d

          @Andi87 I’d look at the book and see if they have any surgeons in your area, unless your surgeon did excision. If so then you’re good, if not I’d look into other options!

          1

          Reply

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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