Stories
Privacy
Download
See Alike in...
Alike App
Browser
705d
I was diagnosed this year with EDS, I mainly have two questions. 1. if anyone has any advice on how to deal with it going forward as I am going to college next spring 2. I have been having stomach issues and I was wondering if there was a chance it could be related to my EDS. I don't know much about disability or how to navigate a lot of things, however, I do know that EDS even before my diagnosis has made many things difficult even today my shoulder popped out of socket (luckily it went back in pretty quickly), this one of the examples of my struggles. I will reply to comments, this is my first time on the app so any help is appreciated!
0
5
Share
Gastroparesis
Chronic Generalized pain
Ehlers-Danlos Syndrome (EDS)
advertisement
702d
Thanks for all the feedback everyone! Sorry I havnt been responding much. To elaborate further on the stomach issues, my abdomen is tender to the touch. It's been a month of doctors appointments. I just had my preop appt. Today as they will be doing an EGD in hopes of finding the source of the pain
703d
The majority of us have stomach motility issues. Some of us including myself have compression syndromes of the GI because of EDS such as SMAS, MALS and nutcracker. These symptoms are more disabling than motility. But Gastroparesis is the most common, rapid gastric emptying is a secondary motility disorder often overlooked.
1
704d
2) I don’t have gastroparesis, but I have it’s opposite twin. I have enhanced gut motility, which is hell in its own way
1.) I will be starting college this fall as well but ive been diagnosed for years. You 100% should look into and disability services your college has to offer. 2.) Absolutely also check out gastroparesis
2
1. Get a mobility aid. I was SO TIRED from walking to and from class I couldn't even focus on my school work. 2. 10000% yes
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.
Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences
Write your question here...
Download Alike for the full experience
Copy Link
Copied
Discover your Alikeness™ with people who are on the same journey, gain wisdom and get emotional relief in a secure & anonymous space.
4.7 Ratings
Scan code or click below download the app
Bupropion
night sweats
paranoid
Valium
sertraline
palpitations
Anxiety (Including GAD)
Depression
Alike health
Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences
Related Questions