Dealing with EDS Flares: Sudden Joint Pain

Does anything in particular seem to trigger flare ups in your hEDS? My symtpoms seem to be worsening so fast and i’m only 18.. so i’m very worried about my future. Any suggestions?

I've been dealing with the idea of being misdiagnosed? When I was a teenager I was told by my primary care doctor (ish) at the time that a lot of my pain could be from hypermobility syndrome but honestly I'm not sure if that's the case. My knees constantly ache, all the time. As long as I can remember and at some point it gets too rough to want to walk. I think at this point I'm still abled body of course, I can walk but that constant unstopping pain paired with my hip giving out if I walk more than like ~30mins consistently-ish give of take, that can actually take me out of commission for days. I'm on disability for my mental health but my body feels as if it's deteriorating and I feel so bad being like this at 21, I say I'm year based young but have the body of an unhealthy elderly person. I also have a slight curvature in my spine from a mild case of scoliosis that makes me literally from top to bottom of me ache. I mostly can get by but it gets hard on my worst days. My family has a history of arthritis and I'm worried it may be that too as my joints in my hands and wrists suffer at time too, but being an artist and a person that plays video games maybe it's just pain from that. I don't know, I just know that I don't personally see a very drastic bend in my joints to think this IS hypermobility syndrome even though it's on my record. Should I try to get another opinion years later? Or just, deal with it? I have very bad anxiety and I'm worried about two main outcomes, either being told the same thing or being told there is nothing wrong they can tell at all and having to deal more with the health care system in my country. Any advice? 🥲

Understanding hEDS Pain: Symptoms and Treatment