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VeeN89

Updated 10mo ago

Dealing with Dysautonomia: Struggling to Function Without a Diagnosis

I was just diagnosed from my cardiologist with dysautonomia. He believes that I've had it but having COVID twice has made it worse. We do not know where the dysfunction is just yet, as there is still testing to do. How do I function prior to a diagnosis? I was starting to feel ok, but this week has been hard. I'm eating 1700 calories a day, drinking 100+ oz of water, taking vitamins. I find it hard to workout without dizziness/pooling in my feet.

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LovelyNova

2y

What kind of testing are they still doing? For me, my Dysautonomia kicks in full gear during and/or after an infection (mostly UTI). When I was recovering from COVID it felt like it was taking longer to recover and had a hard time differentiating between what was from covid and what was POTS. Prior to having COVID and chronic infections, I can see how I functioned before but still usually had exhaustion/fatigue, and dizziness or lightheadedness that was not as bad or lasted a short period of time. I guess I thought that was normal.
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Crowlux

2y

If you're working out I would recommend compression socks and a good HR monitor. Blood still pools even when exercising, for me as soon as I rest the low BP high hr hits me also IF YOU'RE DRINKING THAT MUCH WATER YOU NEED SALT when I first started upping my water intake I didn't know I needed so much more salt and electrolytes than I was getting. Helps a whole lot!

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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