Dealing with Dysautonomia: Struggling to Function Without a Diagnosis

If you're working out I would recommend compression socks and a good HR monitor. Blood still pools even when exercising, for me as soon as I rest the low BP high hr hits me also IF YOU'RE DRINKING THAT MUCH WATER YOU NEED SALT when I first started upping my water intake I didn't know I needed so much more salt and electrolytes than I was getting. Helps a whole lot!

What kind of testing are they still doing? For me, my Dysautonomia kicks in full gear during and/or after an infection (mostly UTI). When I was recovering from COVID it felt like it was taking longer to recover and had a hard time differentiating between what was from covid and what was POTS. Prior to having COVID and chronic infections, I can see how I functioned before but still usually had exhaustion/fatigue, and dizziness or lightheadedness that was not as bad or lasted a short period of time. I guess I thought that was normal.