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Zebragirl

581d

I have to wait till January for rhumetologist appointment for hEDS. Any tips on how to get through until them. My joints subluxate constantly and it's very painful

Top reply
    • whicheveroneiam

      579d

      The right shoes are EVERYTHING. I always place having good stable, comfortable shoes over everything. A little bit of a heel and padding- so no flats or if you like ones like classic converse you should probably have insoles. Some shoe brands even make sneakers that don’t require you to bend over to put them on which is lovely. Then getting new shoes once the current ones wear out- it’s sooner than you think and is more expensive to live this way but it is SO worth it.

    • whicheveroneiam

      579d

      The right shoes are EVERYTHING. I always place having good stable, comfortable shoes over everything. A little bit of a heel and padding- so no flats or if you like ones like classic converse you should probably have insoles. Some shoe brands even make sneakers that don’t require you to bend over to put them on which is lovely. Then getting new shoes once the current ones wear out- it’s sooner than you think and is more expensive to live this way but it is SO worth it.

      • Zebragirl

        579d

        @whicheveroneiam absolutely!! I can't walk in any shoes that are not supprtive and fit my super-orthodics. I'll look into ones that don't require bending over. It would save time and spoons

    • wise

      580d

      TAPE. this will be harder to get if you have a latex allergy, but it's cheaper than splints and braces if you don't need them yet (though they are worth the investment)

      • Zebragirl

        579d

        @wise will try it, thanks!

    • TunaGoon

      580d

      Be aware they may just give you PT. Try getting k tape, there's a ton of videos online for any problem area you have. Strength the muscles around the joints but go slow so you don't overdo it. Heat is your friend. Put dry rice (NOT minute rice) in a sock and put it in the microwave and use as a hotpack.

      • Zebragirl

        580d

        @TunaGoon thank you! I'll try what you suggested. PT has never worked for me.

        • TunaGoon

          580d

          @Zebragirl I hope it helps. When you do see rhum you could ask to try Voltaren gel. It has done wonders for me on bad days.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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