Stories
Privacy
Download
See Alike in...
Alike App
Browser
407d
I finally was able to get an appointment with a Rheumatologist today after years of experiencing ongoing back and joint pain. I had previously ordered myself an autoimmune panel, and tested positive for HLA-B27 Antibodies. Apparently this antibody occurs in around 10% of the population and as someone assigned female at birth he thinks it highly unlikely that I would have an inflammatory arthritic condition (see: Ankylosing Spondylitis). I've read peer reviewed articles that talk about women experiencing the same level of disability from AS while demonstrating less noticeable change on imaging. He believes I have FM but I don't know - my GP thinks that's highly unlikely. I feel like I'm going crazy.
3
7
Share
Fibromyalgia (FM)
Malaise & Fatigue
Joint pain
Feeling of choking
advertisement
374d
I am HLA-B27 positive and have Reactive Arthritis, more common in men. I also have Thyroid Disease and Sjogrens . All are autoimmune. Add Fibro and PTSD to the mix. I take 19 RXs, and another 4 as needed. I was disabled at 44, hated my situation since then. I do fun things when I feel my best. I still live life, but I miss a lot too. Like Christmas and Easter this year with my kids and grandsons. š
0
404d
Iām sorry I have arthritis too but I donāt know much about having it be inflammatory. Hopefully the doctors can help you and if you think you have something you should push them to check.
403d
@Foxlover Commonly known and experienced arthritis osteoarthritis, is not anything like autoimmune Arthritis.
@Kingswife oh alright
1
Also the majority of people who have as have no inflammatory markers on bloodwork but put us in mri and we light right up,
2
I have ankylosing spondylitis and am hla b27 positive my as is non radiographic, plenty of women suffer I know 3 other personal friends who all have it, I also have fibromyalgia and severe ibs along with a few other bits, don't give up if you think you have as keep fighting so many old fashioned reamatologists out there that still believe it's a man's disease,
The HLA B27 test will indicate whether you are at a greater risk for autoimmune conditions. Since it is positive, you are. However the results of your ESR, CRP, RF, Anti-CPP and ANA tests will ultimately be the ones to diagnose you. What were those results?
ā This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.
One of the replies in the provided context mentions that they have Ankylosing Spondylitis (AS) without having the HLA-B27 gene, and about 10% of people with AS don't have the gene. It's important to consider different opinions from medical professionals and continue seeking answers if you feel your symptoms are not being adequately addressed.
Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences
Write your question here...
Download Alike for the full experience
Copy Link
Copied
Discover your Alikenessā¢ with people who are on the same journey, gain wisdom and get emotional relief in a secure & anonymous space.
4.7 Ratings
Scan code or click below download the app
Bupropion
night sweats
paranoid
Valium
sertraline
palpitations
Anxiety (Including GAD)
Depression
Alike health
Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences
Related Questions