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MsTori

257d

I finally was able to get an appointment with a Rheumatologist today after years of experiencing ongoing back and joint pain. I had previously ordered myself an autoimmune panel, and tested positive for HLA-B27 Antibodies. Apparently this antibody occurs in around 10% of the population and as someone assigned female at birth he thinks it highly unlikely that I would have an inflammatory arthritic condition (see: Ankylosing Spondylitis). I've read peer reviewed articles that talk about women experiencing the same level of disability from AS while demonstrating less noticeable change on imaging. He believes I have FM but I don't know - my GP thinks that's highly unlikely. I feel like I'm going crazy.

Top reply
    • RMSjohns

      224d

      I am HLA-B27 positive and have Reactive Arthritis, more common in men. I also have Thyroid Disease and Sjogrens . All are autoimmune. Add Fibro and PTSD to the mix. I take 19 RXs, and another 4 as needed. I was disabled at 44, hated my situation since then. I do fun things when I feel my best. I still live life, but I miss a lot too. Like Christmas and Easter this year with my kids and grandsons. 😖

    • RMSjohns

      224d

      I am HLA-B27 positive and have Reactive Arthritis, more common in men. I also have Thyroid Disease and Sjogrens . All are autoimmune. Add Fibro and PTSD to the mix. I take 19 RXs, and another 4 as needed. I was disabled at 44, hated my situation since then. I do fun things when I feel my best. I still live life, but I miss a lot too. Like Christmas and Easter this year with my kids and grandsons. 😖

    • Foxlover

      254d

      I’m sorry I have arthritis too but I don’t know much about having it be inflammatory. Hopefully the doctors can help you and if you think you have something you should push them to check.

      • Kingswife

        253d

        @Foxlover Commonly known and experienced arthritis osteoarthritis, is not anything like autoimmune Arthritis.

        • Foxlover

          253d

          @Kingswife oh alright

    • Ankysaurus

      257d

      Also the majority of people who have as have no inflammatory markers on bloodwork but put us in mri and we light right up,

    • Ankysaurus

      257d

      I have ankylosing spondylitis and am hla b27 positive my as is non radiographic, plenty of women suffer I know 3 other personal friends who all have it, I also have fibromyalgia and severe ibs along with a few other bits, don't give up if you think you have as keep fighting so many old fashioned reamatologists out there that still believe it's a man's disease,

    • Kingswife

      257d

      The HLA B27 test will indicate whether you are at a greater risk for autoimmune conditions. Since it is positive, you are. However the results of your ESR, CRP, RF, Anti-CPP and ANA tests will ultimately be the ones to diagnose you. What were those results?

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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One of the replies in the provided context mentions that they have Ankylosing Spondylitis (AS) without having the HLA-B27 gene, and about 10% of people with AS don't have the gene. It's important to consider different opinions from medical professionals and continue seeking answers if you feel your symptoms are not being adequately addressed.

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