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JollyOlNinja

910d

how can yall tell when you are going through a flare-up and how do you deal with it?

Top reply
    • snuggsonfleek

      559d

      I know I'm having a flare up when my eyes are so watery they just run and run... I know it's ironic that you have a drying disorder and your eyes run but your body is trying to lubricate your eyes and my eyes hurt or feel like they are burning as if there is smoke in the air. Also I get super dry patches that feel like scales or rips in my skin on the back of my hands. My palms are super dry and begin to flake. I am currently taking mycophenalate and restasis along with the the plaquenil and hydrochlorothiazide. I hope this helps

    • snuggsonfleek

      559d

      I know I'm having a flare up when my eyes are so watery they just run and run... I know it's ironic that you have a drying disorder and your eyes run but your body is trying to lubricate your eyes and my eyes hurt or feel like they are burning as if there is smoke in the air. Also I get super dry patches that feel like scales or rips in my skin on the back of my hands. My palms are super dry and begin to flake. I am currently taking mycophenalate and restasis along with the the plaquenil and hydrochlorothiazide. I hope this helps

    • JollyOlNinja

      910d

      I don't personally know anyone who has Sjogren's, so it made me feel more normal. Thank you all :)

      • McD43

        639d

        @JollyOlNinja I don’t know anyone either !! This is why we should communicate more about how we feel !!

    • LiLc

      910d

      Hi! 🙂 I know my Sjogrens is flaring up when my eyes hurt, my nose gets really dry, and I get more thirsty than usual. I also tend to get patches of raw skin on my hands.

    • FayeR

      910d

      Hi, for me, I always get super dry, very fatigued and itchy skin also lots of digestive issues.

    • LB

      910d

      I know if I overdo things physically that I’ll have a flare up the days after. Rest is the only thing I can do, but that includes heating pads/ice, compression etc.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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