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Waffles04

775d

I’m new to this app, so I’m a little nervous. I’ve been dealing with chronic fatigue for years, but the last 2 years (especially the last 6 months or so), it’s been debilitating. I feel like all I can do is stay in bed. My body has zero energy and my eyelids feel so heavy. I should be getting a full time job so I can support myself, but I can hardly get out of bed. All of my doctors say to exercise, but my body feels drained when I stand up. I’ve tried a number of different things. I feel like I’ve lost so many years to different illnesses and it’s just become frustrating. Any advice or motivation? 😕

Top reply
    • GMB11

      768d

      This sounds exactly the same as how I was for a long time. I ended up going into my doctor having the same talk while pretending like everything was fine because I was sick of repeating myself and getting the same unhelpful answers. One day when I went in though, there was a student doctor there and she started asking me questions about how I was feeling after she reviewed my file. She ended up telling me that I needed to get my vitamin d level checked and that it was not a part of the routine blood testing they do annually and to ask for a vitamin d 5 hydroxy test. I ended up getting tested and sure enough I was severely low on it and had been for years, which only led to worse and worse symptoms. I could hardly move at that point without my body aching and having a hard time even thinking straight (which was not me at all). It constantly felt as if I had run a marathon without doing anything. Anyways, I ended up doing a numerous amount of research on it for months to find out that it had the majority to do with all of my symptoms. Vitamin d has a receptor in every single cell in your body and every single inch of your body needs it. It also isn't even a vitamin it is a precursor to a HORMONE! When low it causes bone weaknes, fatigue, depression, anxiety, foggy brain, weight gain, insomnia (even though u are drained all day), qnd the list goes on!! Please ask to get tested as well because correcting it for me changed my life in a lot of ways (not every little thing but majority if the problems resolved). It did take awhile to get back in balance, but it was well worth the wait.

    • GMB11

      768d

      This sounds exactly the same as how I was for a long time. I ended up going into my doctor having the same talk while pretending like everything was fine because I was sick of repeating myself and getting the same unhelpful answers. One day when I went in though, there was a student doctor there and she started asking me questions about how I was feeling after she reviewed my file. She ended up telling me that I needed to get my vitamin d level checked and that it was not a part of the routine blood testing they do annually and to ask for a vitamin d 5 hydroxy test. I ended up getting tested and sure enough I was severely low on it and had been for years, which only led to worse and worse symptoms. I could hardly move at that point without my body aching and having a hard time even thinking straight (which was not me at all). It constantly felt as if I had run a marathon without doing anything. Anyways, I ended up doing a numerous amount of research on it for months to find out that it had the majority to do with all of my symptoms. Vitamin d has a receptor in every single cell in your body and every single inch of your body needs it. It also isn't even a vitamin it is a precursor to a HORMONE! When low it causes bone weaknes, fatigue, depression, anxiety, foggy brain, weight gain, insomnia (even though u are drained all day), qnd the list goes on!! Please ask to get tested as well because correcting it for me changed my life in a lot of ways (not every little thing but majority if the problems resolved). It did take awhile to get back in balance, but it was well worth the wait.

    • Sunshine10

      771d

      I’m also struggling with work. I have a full time job and they want me to go to part time because of my symptoms. It will be impossible to manage on half my salary but I am too tired most days to really function. I have a lot to figure out with very few answers.

    • Lavendar_Sapphire

      775d

      Doctors telling CFS patients to exercise when they can barely get through daily tasks makes me want to scream until I explode. So many doctors want exercise to be the cure for literally everything and anything 🙄🙄🙄 I don’t really have advice but I have CFS- got diagnosed almost a decade ago but didn’t really take it seriously until I get a confirmation diagnosis 2 years ago. It gets worse with stress, certain weather, and when life events happen. Did you have COVID? I’ve read some info (mostly anecdotal) about people with CFS having extreme fatigue after COVID.

      • Waffles04

        775d

        @Lavendar_Sapphire Exactly! I barely can get up to do every day life things, but exercise is the magic treatment. I actually don’t mind exercising, but I literally cannot get my body motivated. Yes, unfortunately I had it this past February 😢 I truly think that has caused a lot of my pots flares more often and this extreme fatigue. I try to explain it to people, but no one seems to get it.

    • loveshespoke

      775d

      No useful advice, I'm afraid, but I'd love to chat as someone going through the same thing.

      • ForestWhimsy

        774d

        @loveshespoke Same here. 🥺

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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