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NoelFromHell

736d

I've been struggling with crohns/ibs for pretty much forever. Still after many medication trials and pain I find I'm still suffering DAILY with chronic pain. I've cut dairy and most sugars out to see what it would do but no matter what I'm eating I'm still in pain. Does anyone else struggle with this? And if so what are some possible tips/tricks how to deal with the pain when it comes on.

Top reply
    • CrohnsyPoo

      716d

      Like you, I've tried "every" diet...I'm sure there's more out there but I can't think of any more to try. That said, I have been on the Specific Carbohydrate Diet (SCD) for 1.5 years, which my GI recommended it in conjunction with medication. This has been a game changer for me. The idea is that you're eating predigested foods that are absorbed in in the upper intestinal track, leaving no work for the lower part. The clinical trial on this diet say it can take 2 years to make a significant difference for Crohn's, but most people report feeling a lot more energy and comfort in the first week of being on the diet. I can't speak for it being a solution yet to Crohn's or anything, but I absolutely believe it to be a necessity during flares, trying to keep nutrients in, and wanting to reduce discomfort. I have not waivered on this diet, and while I do feel mild discount from time to time, it's much better than it was before for me. A bit of warning if you start this, there's a huge learning curve for this diet....and don't compromise by starting on the advanced part of the diet. Begin on the intro diet and get yourself an instapot with yogurt settings for the homemade yogurt you'll be making. It's so much easier and better quality than the yogurt makers out there and you'll be able to use it for other recipes.

    • CrohnsyPoo

      716d

      Like you, I've tried "every" diet...I'm sure there's more out there but I can't think of any more to try. That said, I have been on the Specific Carbohydrate Diet (SCD) for 1.5 years, which my GI recommended it in conjunction with medication. This has been a game changer for me. The idea is that you're eating predigested foods that are absorbed in in the upper intestinal track, leaving no work for the lower part. The clinical trial on this diet say it can take 2 years to make a significant difference for Crohn's, but most people report feeling a lot more energy and comfort in the first week of being on the diet. I can't speak for it being a solution yet to Crohn's or anything, but I absolutely believe it to be a necessity during flares, trying to keep nutrients in, and wanting to reduce discomfort. I have not waivered on this diet, and while I do feel mild discount from time to time, it's much better than it was before for me. A bit of warning if you start this, there's a huge learning curve for this diet....and don't compromise by starting on the advanced part of the diet. Begin on the intro diet and get yourself an instapot with yogurt settings for the homemade yogurt you'll be making. It's so much easier and better quality than the yogurt makers out there and you'll be able to use it for other recipes.

    • Tree003

      733d

      My best friend and I both deal with crohns/colitis/IBS. Ever since she's cut out gluten, she's felt a lot better

    • Coffee_hound

      736d

      Food

    • Coffee_hound

      736d

      Could be good additives too

    • Coffee_hound

      736d

      Keeping a food Diary may help. And track reactions/ upsets even 24 hrs later

    • Coffee_hound

      736d

      I feel your pain-literally. If I stay away from fresh fruits and vegetables I am much better. Yeah, that limits a lot of delicious foods. Dairy can be an issue, that sort of comes and goes. I find almond milk works well.

      • NoelFromHell

        736d

        @Coffee_hound I always use Almond milk since I can't have dairy anyways and it helps, but it seems like it's always something new that causes flair ups

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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