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Porlock

Updated 5mo ago

Seeking Advice on DCIS Stage 0 Grade 2 Diagnosis

Hi recently diagnosed with dcis stage 0 grade 2. The area is 1.5 cm and scattered calcifications which are cancer not benign. Really don't want a mastectomy. Anyone else have this type of cancer and not have a mastectomy? TIA

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55isMe

2y

Yes and no. Im a 2 timer. First time did chemo and radiation. 2nd time did a double mastectomy. Weird part is that i had to fight insurance to have the 2nd removed too. My surgeon fought for me. Strongly recommend that you get genetics testing if you havent already. But considering you are my age and this is your first breast cancer, i doubt genetic predisposed. So, id recommend the lumpectomy. That comment depends on where it is amd if the surgeon thinks he can make it look nice (not weird). My first was way up by armpit and lumpectomy didnt impair function. No Lymphedema. Etc. If you have an oncology surgeon, ask them. They see this day in and day out.
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Kazzy

1y

I have not long finished Radiotherapy for dcis after having a lumpectomy in August. It was found by routine mamogram (in uk) and at first it was thought to have become invasive but it turned out to be wrong. Also around that time had a lymph node removed which was negative for cancer spread. I also had calcification which was my red flag to have a biopsy. The area was similar size to yourself and staged the same although they said it was high grade. Its pretty frightening but I think we just have to be as optimistic and enjoy ecery day. I also have Parkinsons so Im used to thinking this way. Good luck xxx Porlock
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Rileyyy2

5mo

Heyya, My Aunt,55 years had a similar diagnosis October last year which was DCIS grade 2,the size was about 2cm. She was pretty concerned about the whole idea of getting a mastectomy. After several deliberations with her healthcare team they decided to go with lumpectomy followed by hormone therapy.This ended up being the right choice for her situation. I’ll recommend you have a sit down talk with your doctor about your concerns.Let them address your concerns and see if there are other options which you would want to ride with……and if the need be speak to a counsellor at the facility, this really helped her pull through that point of deciding which way to go. Take it easy and don’t get yourself too much worried , you are definitely going to be fine.
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maturegirl

5mo

When my Eldest daughter got her diagnosis, it was a difficult time for the family, as we didn’t have much information about the best treatment option to go for. She was diagnosed with DCIS stage 1, the doctor said the size was about 2cm.Considering the size and the grade, the doctor recommended mastectomy. The thought of having a mastectomy was heavy for my daughter , I could feel her anxiety and her constant worries anytime we had open discussions about it. After much counselling and support from the family , she agreed to go for the procedure and it was successful, it wasn’t easy but I would say with the much needed support around ,you are going to be alright. I know it is much to process right now but if your doctor is recommending mastectomy go for it, you’ll be just fine. We are here to hold your hands and give you the necessary support as you go through this journey!.....you’re not alone , many have gone through this and they are doing well now.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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