Struggling with Weight Gain and Protein Absorption with CVID

I was not familiar with Histamine foods. How do you get diagnosed for that allergy?

I just found out that I'm allergic to histamine in foods as well as filling a low FODMAP, low dairy, and no folic acid diet for allergies and deficiencies. I'm finally beginning to feel almost human.

I do have issues with some proteins. I’m using a meal replacement shake called love and peas recommended by a dietician. I’m also trying to cut out sugar completely. Daily biking/ walking. I’ve lost a couple pounds but it’s only been a few weeks. And I’ve slipped on the sugar more times than I’d like to admit.

I blow up like a balloon if I consume large amounts of protein, which is super hard when you’re a competitive athlete. I feel for you. Have you found anything that works?

Yes!!! I am basically unable to gain weight. The only thing ive found is protein shakes but that might not work for you. My doctors also said a lot of healthy fats such as avocado, olive oil, full fat butter, etc.

The hopelessness is too much sometimes. The doctors listen to me but i dont think they actually believe what i say. Ive had to make massive adjustments to my diet and I can't seem to make it out of the 120lb range. And for a 32 year old male, that is extremely under weight. No matter what i try to gain weight i just end up back where i started.

I cannot absorb vegetables and if I eat any with high fiber I am doubled over in pain and my body removes it immediately. I can eat fruit, lean meat, nuts, very little starches like bread and potatoes. I fight weight gain too. With the autoimmune added and their meds I feel defeated a lot.

So I also have barters syndrome, so low protein and electrolytes and potassium are normal for me. But with this new diagnosis we’re wondering about a lot. Have you tried small portions throughout the day? I also drink protein drinks (mostly to help with my potassium but it helps all levels)

I do see several dieticians. Unfortunately my case is so unique they dont really know what else to do. Right now everything is experiemental

Makes sense. I habe found with CVID no one case is the same. So I'm just curious to see if anyone has similar symptoms or have tried alternate treatment options. I use IVIG once a week and take a boat load of vitamins. But nothing really helps with my digestive issues or helps.me gain weight.

Do you follow a specific diet? My wife has pcos and maintains alow glycemic index diet. Mostly vegetarian and Mediterranean style foods. Helps her avoid the weight gain. Does the CVID have any effect on your digestive system like mine does?