Dealing with Friendships After CVID Diagnosis

I was on hyqvia. It lasted 5 years and then they found out it was b and t cells so hyzentra worked better

I have had cvid since I was born they didn't find it for 30 years . I have done 8 years of igg treatment and my body has started rejecting it. So there's nothing else they can do for me.. if u have any questions I'm here

I usually feel a bit tired the day of and the day after infusion. I find proper hydration is key. After a year or so in your body might have less of a reaction. Cuvatru was bad for me once I got on Hyzentra I felt tons better. I quit asking people about there health before get togethers. For two reasons. The infusions make us stronger so the risk goes down. For myself and my 8 year old we rely heavy on hand washing and distance if a person seems sick. He is school age so we have to just protect ourselves the best we can then deal with infection as it comes. If you feel uncomfortable at a get together because of your immune system excuse yourself. If you’ve told family and friends about your situation you shouldn’t have to ask before each get together. This is what works better for us anyway.

These are not your people! Being diagnosed is a busy time. But once you’ve been on treatment for a while things will start to clear up. My son and I both infuse. I tell him some people wear glasses, some have hearing aids, we infuse. This is our norm. I definitely have people I don’t talk to about my struggles. It is too much for some.