See Alike in...

Alike App

Browser

Mads0927

660d

I have FINALLY been diagnosed with Crohn’s. I’ve been going through testing for so long, I’m happy to finally have a diagnosis (not happy about the actual diagnosis though) and be able to start treatment! I was wondering what treatments have worked best for people? I would like to go into my next appointment with some kind of an idea of what treatment will look like.

Top reply
    • knottylog

      648d

      I've been in the IBD game for over a decade....personally, I'd start at the very beginning with meds. Try ASAs, then immunosuppresents, and then biologics. In my experience, Crohn's likes to respond to a med for a short time and then stop, so saving as many medication options as possible is wise IMO. I'm actually allergic to ASAs, and immunosuppressive worked for 7 years. There are many mechanisms for biologics, and I don't respond to 2 of them. This limits treatment options extensively for me 😥 Treatment for Crohn's is VERY individual!!! You might need steroids in the first part of your journey, and it may take a year to find the right biologic and biologic schedule for your body! Keep in mind, too, that most biologics take 3-6 months before they actually start working. Long story short, educate yourself and be patient 🤗

    • knottylog

      648d

      I've been in the IBD game for over a decade....personally, I'd start at the very beginning with meds. Try ASAs, then immunosuppresents, and then biologics. In my experience, Crohn's likes to respond to a med for a short time and then stop, so saving as many medication options as possible is wise IMO. I'm actually allergic to ASAs, and immunosuppressive worked for 7 years. There are many mechanisms for biologics, and I don't respond to 2 of them. This limits treatment options extensively for me 😥 Treatment for Crohn's is VERY individual!!! You might need steroids in the first part of your journey, and it may take a year to find the right biologic and biologic schedule for your body! Keep in mind, too, that most biologics take 3-6 months before they actually start working. Long story short, educate yourself and be patient 🤗

    • Cam4767

      660d

      Remicade has been amazing for me!! I was diagnosed with Crohn’s in 2011 at age 12 and I have been on Remicade since. I was very close to hospitalization, feeding tubes, etc before starting it and now I barely feel like I have a condition at all. I get 800mg every 8wk as an IV infusion. I would definitely recommend asking your doctor about it! That is the only treatment I take now for Crohn’s when I used to take soo many pills a day.

      • Mads0927

        660d

        @Cam4767 thank you for sharing! I’ve heard great things about Remicade! It’s definitely on my radar!

        • Cam4767

          659d

          @Mads0927 best of luck to you!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion