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849d

How did they diagnose your Crohn’s disease? I feel like the way they did mine was terribly stupid when there were safer ways out there.

Top reply
    • erine1992

      835d

      I was ignored when I was younger. I had a PE because of it, but they never investigated thinking it was a fluke. 6 years after the PE I was finally diagnosed at 29 after struggling with blood for nearly a year. Ridiculous.

    • erine1992

      835d

      I was ignored when I was younger. I had a PE because of it, but they never investigated thinking it was a fluke. 6 years after the PE I was finally diagnosed at 29 after struggling with blood for nearly a year. Ridiculous.

    • OuchyAbdomen

      840d

      Mine was handled very professionally and I'm very greatful. I was constantly on the toilet and had terrible stomach pain for a long time. I cut out dairy and it got better, but only temporary. Still was struggling with terrible stomach pains. It almost became my normal. Then I had my first strike of Pancreatitis. When I was hospitalized a GI specialist came in and looked at my GT and suggested that I could have Crohn's. Went and did all the outpatient colonoscopy stuff and had a biopsy and it was confirmed.

    • spookyspoonie

      849d

      I was ignored and dismissed until it literally killed me at 13. I lost 100lbs in just over 2 months, constantly passing blood from both ends. The ER docs had the audacity to tell my mom I was "just bulimic"!!! Until I came in with a hemoglobin of 3! I was finally hospitalized for blood transfusions and IV nutrition. They had to abort my first few rounds of scopes because I was too high risk for perforation, but once I was stabilized enough I got biopsies. Drs fought for 8 years about whether I had crohns or UC- I finally got confirmation last month that I have both.

    • AeL

      849d

      My pediatrician immediately thought of it after I came in with bleeding and stomach pain, she sent me to a GI who did blood work and imaging but also did a colonoscopy as one of the first things. This was in a span of 2 months. Some of my diagnoses were confusing and took a long time but this was probably the easiest.

    • wish_i_was_debonair

      849d

      I was diagnosed at age 11 after years of crippling pain, I was accused of faking and tested for pretty much everything before they ordered a colonoscopy and endoscopy and found the polyps and other stuff and diagnosed me with Crohn’s. I was on so many drugs people thought I was a junkie based on how often I was having to take pain relief before diagnoses which was super dangerous now that I look back, so I wasn’t handled very well either. I hope your journey goes well💕

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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