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StargazerLily

401d

Hello 👋, I hope my post finds you all as well as can be expected. My name is Claire. I've got a very complicated health background but I'm here to ask about Costochondritis. I was diagnosed with fibromyalgia 7 years ago. Not long after that, I was diagnosed with Costochondritis (Tietze syndrome), which my doctor said is related to the FM. Does anyone here suffer it, too? Apart from a heat pack between my shoulder blades and on my ribs, what else have you found that helps? I'm on a ton of pain medication but still get the inflammatory pain from the Costochondritis and today has been my worst day in years. Any help is appreciated.

Top reply
    • Gabby211

      51d

      Do any of your conditions have nerve pain or feeling nerves moving, sharp stabbing pain? Some of your stuff sounds familiar but not all. Thank you 😊

    • Gabby211

      51d

      Do any of your conditions have nerve pain or feeling nerves moving, sharp stabbing pain? Some of your stuff sounds familiar but not all. Thank you 😊

    • BlackBonnet

      307d

      This is really interesting. I got told I had costochondritis years ago and assumed at the time (GP wasn't very helpful) that it was a temporary thing. It came back a couple times after that and I recognised the pain. Last year I caught COVID and was coughing for a month which triggered, what I know now was, costochondritis. At the time I was in such a panicked state I convinced myself I had heart disease and was dying and went to a&e. Apart from tachycardia they didn't find anything wrong and sent me home. But ever since then the pain and weird pressure sensation never went away, and I struggle to straighten fully because of how uncomfortable it is. Yesterday I was diagnosed with Fibromyalgia (and have been referred for PoTS) and after researching on the internet found the connection with costochondritis. It's so frustrating that I was ignored for years (originally diagnosed with CFS), and I could have been researching the correct advice this whole time. I'm hoping the exercises help with the sensation because I can't stand it sometimes. It does make me feel better that there isn't something sinister going on with my heart that a&e missed.

    • StargazerLily

      392d

      Thanks for the replies 🤗 hope you're all having one of your better days 💕

    • Nalabird

      397d

      Hi Claire, heat & distraction therapy are the only things I've found that work for my costro pain. I'm into audio books or podcasts for days when the pain makes moving virtually impossible, creative writing, knitting & crochet for days when I comfortably sit and when I can move slowly I take a drive out into the country or to the local woods for a nature walk. Hope you're able to take something from these ideas xxx

      • StargazerLily

        392d

        @Nalabird Hi, thanks for replying ☺️ that all sounds fab. I'm housebound right now and have been for almost three years but I used to love walking through the woodlands around here and further out in Northumberland when we got the chance. It was great for my mental health even though I'd be in pain for a day or two after. I love to read too. Distractions of fan fiction that I'm now in love with are great but again it's only helping my mental health. I can't knit, tried a few times and can't. I used to crochet and loved to cross-stitch. But sitting for more than an hour isn't good because of the prolapse. I love being my garden though. Seeing the spring flowers slowly emerging. Seeing my rose bushes, rose trees, hydrangeas and my azalea getting new shoots, beginning for their summer days. It's a great Distraction. I used to have a potting shed/greenhouse, but after a while I couldn't benefit from it. I admit to missing it now though. 💕

    • dolphinblues

      399d

      👋 I also have fibromyalgia, slipping ribs, and costochondritis. Heat packs and rubbing the back between shoulder blades help me the most. I also use Voltaren gel at the sight of intense stabbing pain. That seems to make it ease up quicker, or at least dulls the intensity.

      • StargazerLily

        392d

        @dolphinblues Hi, thanks for replying ☺️. I've tried Voltarol Gel before. It didnt work unfortunately. I think because of the strong prescription medication I'm taking, any over the counter will no longer help. I do admit that my partner helps with rubbing between my shoulder blades. He's good but I have to tell him to really press hard because the softer motions of just massaging don't work. 💕

        • dolphinblues

          368d

          @StargazerLily I agree, hard pressure massage helps better for that. I'm usually alone when it happens, so I use a tennis ball against the wall or a rounded 90° wall edge between my shoulder blades, rubbing side to side for slipped ribs.

    • Ashby

      400d

      I have fibromyalgia and tietze syndrome too, i’ve also been wondering the same thing. the only thing i have done is stretch and use heating pads, my doctor recommended CBD gummies which i haven’t tried yet, but that could be an option.

      • Lollyr

        369d

        @Ashby I order cbd gummies from a company called CBDMD I order the calm gummies they work wonders for me. I hope this is helpful 💜

      • StargazerLily

        392d

        @Ashby Hi, thanks for replying. I tried CBD oil drops for pain in desperation to stop the prescription pain meds I rely on but it was useless. A total waste of money, especially after also buying a higher strength.

    • Bee93

      400d

      I also have fibro and get costochondritis occasionally, if you search on YouTube for costochondritis stretches that might help! I remember a twisting one which sorted mine in a few days. Hope you feel better soon!

    • Cannnicky

      401d

      Hi Claire, I also have fibro and costochondritis which I have been suffering with for the last couple of years. I was diagnosed with fibro 12 years ago but has got worse as the years tick by. I have only found the heat packs to work. I didn’t know it was connected to fibro which seemed to get worse with every Covid jab, I don’t know if anyone has experienced this. I hope you feel better soon x

      • StargazerLily

        400d

        @Cannnicky hiya, and thanks for your reply. It was my GP that diagnosed the Costochondritis and said it was in connection with the Fibromyalgia. The sharp pain from my ribs through to my shoulder blades and between them reminded me of the pleurisy pain I suffered with pneumonia over a decade ago. It's not just sharp, it's a deep ache. Like an awkward pulling pain. I get my other half to rub hard at the bottom of my shoulder blades and between them. The more pressure he adds the better the relief, it only lasts around 10 minutes but it's a good ten minutes. I'm not sure about the covid jabs making Fibromyalgia worse. I had the first 2 jabs but haven't accepted any boosters. My brother-in-law has been left with respiratory problems, a raised inflammatory marker in his blood and a black shadow on his lung xrays that keeps changing as well as other smaller symptoms, none of which anyone has answers for in a man aged 32 who used to be an avid gym fanatic that ate well. His GP has however admitted that it's down to the jabs and told him they have no idea how to treat him and are only able to monitor him. I'm sorry about the length of it but hope my message finds you well x

    • CrazyMeerkat

      401d

      Hi Claire, nice to meet you. I have fibromyalgia too and Slipping ribs syndrome. It is not the same but it is related. I use hot pads when I get stabbing pain. Even breathing is painful. I can't imagine what you are passing through. I hope I can help you. Have you tried meditation? Distracting your senses may work x

      • StargazerLily

        400d

        @CrazyMeerkat Hi, thanks for replying 🤗 I haven't tried meditation. I'm not sure I'm able to be distracted by anything other than another health problem flaring up. I've got leg ulcers, almost 3 years of nurses visiting to clean and put my leg back into compression twice a week. I think it was the stress over a new infection in the leg ulcers that has caused the Costochondritis to flare up.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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Some people with Costochondritis have found relief using Tiger Balm, CBD oil, gentle stretching exercises for chest muscles, and lidocaine patches. Additionally, the Backpod and the r/costochondritis community on Reddit have been helpful resources for some individuals dealing with this condition.

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