Coping with Overactive Bladder Flare-Ups

Hello! I definitely understand how much of an impact it has on mental health and relationships, etc. very hard to stay positive when undergoing various treatments. I was diagnosed at the end of last year and I’m only 22 years old. The symptoms kind of came out of nowhere, one moment I was fine, the next rushing to the bathroom every 20 minutes. My doctor said it’s severe for my age, not sure what brought it on, but he said most likely a nerve problem which is difficult to fix. He can only really offer different treatments to relax the bladder. So far, I have gotten the Interstim implant (pacemaker for bladder), has not really helped all that much, but it’s only been a few months. I am also on a higher dosage of myrebetriq because the oxybutynin made symptoms worse for me. I cut out acidic fruit and caffeine completely. Went from chocolate to white chocolate. Hmm, I think really all that helps so far is the medicine and physical therapy exercises. But I haven’t seen a huge improvement. Last treatment option for me is Botox, but not sure I want to do that yet. I understand completely where you are coming from, it seriously impacts every day life and I miss doing what I love because I’m always so uncomfortable and suffering from so much urgency. I missed lots of events because of it and can’t go anywhere without a bathroom nearby, no long road trips or car drives for me. Also wearing heavy pad/diapers just in case of accidents have been so mentally degrading. I’m not sure who else has suffered from this for awhile and what their advice would be! But keep your head up! I really pray treatments work for you and if you need a friend, I’m always looking for people with similar issues to talk and relate to! Please don’t be afraid to reach out!

Does anyone else have extremely smelly urine like ammonia or fishy I'm desperate for answers thankyou

Omg I been going through the same thing you were going through. I had to quit my job and I was diagnosed in 2020 as well. I am glad I am not the only one dealing with bladder issues. Ur sucks!

Does anyone pee large amounts while sleeping like gallons and can't wake up also having ob during the day?

I also had an option of getting the Botox or try or the nerve stimulation therapy that goes in my back, so I tried that as a trial, and I did nothing for me

Try asking your urologist abt getting Botox in your bladder. I had it done once and didn’t realize how helpful it was until it wore off. I will be getting my 2nd Botox injections again soon.

Do anyone have pressure even after you go pee and peeing dosent help it go away.

I've been dealing with overactive bladder my whole life, but wasn't diagnosed til I was 10 because it wasn't recognized til then. I've been on ditropan and I am on a different medication now. My doctornsaidnif this fails then I'll have to get botox on my bladder (sounds weird I know). Best thing I can tell you is always wear a pad (I know, I hate it too), try not to push the urge you get to urinate too long, trust your meds, and avoid bladder irritants as much as possible (caffeine, chocolate, etc). I have 1 round of caffeine in the morning and thats it. It sucks, but its the way life is. Just like anything else, it is just something we have to deal with because there is no cure for it, only ways to manage it.

My bladder leaks constantly. It is making me raw down below. Uggh. Help.

I completely understand. I have been dealing with OAB for over 3 years now. I have tried all kinds of treatments and medications. Changed my diet too. It’s so difficult to go anywhere public when I have to pee all the time. Let alone just go on a short drive!

I wish I knew , my doctor put me on myrbetriq. I pee every hour on the hour and it's so annoying. I hope you and I can get some relief, it's miserable 😥