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Kat22

691d

Hello, I was diagnosed with an over active bladder in 2020, and it's gradually have been getting worse with the flare-ups. How do you mentally cope with this because it's destroying my mental health because I had to quit my job because of the flare up due to the stress my job was causing me..

Top reply
    • thrillsnchills

      203d

      @amora I figured out the fishy smell was bacterial vaginosis

    • Miyuna

      267d

      Hello! I definitely understand how much of an impact it has on mental health and relationships, etc. very hard to stay positive when undergoing various treatments. I was diagnosed at the end of last year and I’m only 22 years old. The symptoms kind of came out of nowhere, one moment I was fine, the next rushing to the bathroom every 20 minutes. My doctor said it’s severe for my age, not sure what brought it on, but he said most likely a nerve problem which is difficult to fix. He can only really offer different treatments to relax the bladder. So far, I have gotten the Interstim implant (pacemaker for bladder), has not really helped all that much, but it’s only been a few months. I am also on a higher dosage of myrebetriq because the oxybutynin made symptoms worse for me. I cut out acidic fruit and caffeine completely. Went from chocolate to white chocolate. Hmm, I think really all that helps so far is the medicine and physical therapy exercises. But I haven’t seen a huge improvement. Last treatment option for me is Botox, but not sure I want to do that yet. I understand completely where you are coming from, it seriously impacts every day life and I miss doing what I love because I’m always so uncomfortable and suffering from so much urgency. I missed lots of events because of it and can’t go anywhere without a bathroom nearby, no long road trips or car drives for me. Also wearing heavy pad/diapers just in case of accidents have been so mentally degrading. I’m not sure who else has suffered from this for awhile and what their advice would be! But keep your head up! I really pray treatments work for you and if you need a friend, I’m always looking for people with similar issues to talk and relate to! Please don’t be afraid to reach out!

    • thrillsnchills

      302d

      Does anyone else have extremely smelly urine like ammonia or fishy I'm desperate for answers thankyou

      • amora

        206d

        @thrillsnchills I do but I have no answer

        • thrillsnchills

          203d

          @amora I figured out the fishy smell was bacterial vaginosis

    • Unknown89

      304d

      Omg I been going through the same thing you were going through. I had to quit my job and I was diagnosed in 2020 as well. I am glad I am not the only one dealing with bladder issues. Ur sucks!

    • thrillsnchills

      356d

      Does anyone pee large amounts while sleeping like gallons and can't wake up also having ob during the day?

    • Unknown89

      392d

      I also had an option of getting the Botox or try or the nerve stimulation therapy that goes in my back, so I tried that as a trial, and I did nothing for me

      • Allergically.me

        271d

        @Unknown89 sorry I’m seeing this so late! I have an overactive bladder and the symptoms only get worse and worse until you are able to treat them. If you haven’t tried Botox in your bladder yet there is also pelvic floor physical therapy. In my opinion, pelvic floor PT is more helpful after the Botox. Prior to bladder Botox I did pelvic floor PT and it wasn’t helpful. I don’t know why exactly but maybe I was able to retrain my bladder better after the Botox because I was more aware of the difference of how it felt. If you go down the PFPT route, know that you must be consistent with it and that it may take a while before you notice any changes or have results. It can be extremely beneficial and it has the least negative side effects because there is no medication involved.

    • Allergically.me

      392d

      Try asking your urologist abt getting Botox in your bladder. I had it done once and didn’t realize how helpful it was until it wore off. I will be getting my 2nd Botox injections again soon.

      • Unknown89

        392d

        @Allergically.me I was originally going to get that. But when I mentioned this to my doctor the other day, he did not feel comfortable of me getting it because there’s a lot more side effects of Botox and I’ve already have an issue of not fully empty my bladder. Do you have issues though of feeling like you’re still have to pee even after you went to the bathroom I just feel like pressure.

    • Unknown89

      393d

      Do anyone have pressure even after you go pee and peeing dosent help it go away.

      • thrillsnchills

        352d

        @Unknown89 me I have bladder retention so it doesn't fully empty

    • MrsClark9119

      664d

      I've been dealing with overactive bladder my whole life, but wasn't diagnosed til I was 10 because it wasn't recognized til then. I've been on ditropan and I am on a different medication now. My doctornsaidnif this fails then I'll have to get botox on my bladder (sounds weird I know). Best thing I can tell you is always wear a pad (I know, I hate it too), try not to push the urge you get to urinate too long, trust your meds, and avoid bladder irritants as much as possible (caffeine, chocolate, etc). I have 1 round of caffeine in the morning and thats it. It sucks, but its the way life is. Just like anything else, it is just something we have to deal with because there is no cure for it, only ways to manage it.

      • princesspeony23

        300d

        @MrsClark9119 yeah my doc told me not to try to hold it ever which is hard sometimes but i think about it every time and just think well the doctor said and i remind myself how much worse it gets if you don't go immediately when you feel like you need to. I was prescribed Myrbetriq and it was AWESOME but i couldn't afford it so I've been suffering. I cry at work from it sometimes and it's gotten so bad i go 12-15 times some days lol. Praying for the day i can get my medicine and be saved. I feel so alone and like no one understands. It's truly depressing. I'm on meds for that now so I'm not really clinically depressed i don't think but I get v depressed about my bladder issues at such a young age, daily

    • amora

      681d

      My bladder leaks constantly. It is making me raw down below. Uggh. Help.

    • CTmom

      681d

      I completely understand. I have been dealing with OAB for over 3 years now. I have tried all kinds of treatments and medications. Changed my diet too. It’s so difficult to go anywhere public when I have to pee all the time. Let alone just go on a short drive!

    • vikkyt

      690d

      I wish I knew , my doctor put me on myrbetriq. I pee every hour on the hour and it's so annoying. I hope you and I can get some relief, it's miserable 😥

      • Kat22

        690d

        @vikkyt I'm sorry to hear that, it really sucks 😞 I hear you. I've been taking estrogen cream 2 times a week, recently tried bladder training and doing things to keep my mind of having to pee and plus completely changing my diet, to a bladder diet that my urologist gave me. It's slowly starting to work. It's still truly annoying though.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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