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Firbo

705d

How do you work through the grief of everything you lose with a chronic illness? Before, I was a very active athletic person lifted five days a week, ran 10+ miles 3 times a week, biked, hiked, skied, snowshoed, climbed, enjoyed mountaineering, etc. I have built successful businesses and founded a large international nonprofit. I’ve always had a decent IQ and mentated pretty quickly. Now it seems that taking a shower is an extreme sport, and thinking can be challenging! How do you reconcile this new reality? How do you get past the sorrow? What has worked for you???

    • Lolina

      705d

      I too have my “mourning phases” where I am just sad and want to cry and look at what I’ve lost or what I will continue to lose. Most people my age are getting married and starting families, I can barely go on more than one date with someone without having to cancel due to feeling crap. I honestly picture the rest of my life alone because building any kind of relationship while you are this chronically ill will take a miracle. So the best I’ve been able to do is find the positives in the situation this “loss” has put me. (even though any time someone says that to me I want to punch them in the face 😅) And maybe at best science will one day catch up with us and we can get back some of what we lost…

      • Firbo

        705d

        @Lolina I am so sorry you have to go through this! I guess just knowing others understand is a big piece of feeling normal and not alone? I wouldn’t wish this on anyone and wish I could bear it for all! However, there’s still some comfort in just knowing we are not alone in our journey to a better life. Thank you for your vulnerability and honest response. I appreciate it! I know there is greater things in your future! 🙏

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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