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xoxcaitxox

642d

I got diagnosed with hypermobile ehler danlos syndrome today. i know this has up to a 50% chance of being passed on to my children( if i have any) . How has anyone else coped with this?

Top reply
    • NonbinaryFinery

      263d

      @xoxcaitxox if you're in the US, I love Orthofeet

    • k_k

      640d

      hey there! I have the same kind of Ehler Danlos, and I have been referred to physical therapy and careful weight training to build up muscle support around my joints. Wearing supportive shoes is also a must. I'm still figuring it out myself, but sending positive vibes ~~~

      • xoxcaitxox

        640d

        @k_k i appreciate it!! any shoe recommendations?

        • NonbinaryFinery

          263d

          @xoxcaitxox if you're in the US, I love Orthofeet

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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