See Alike in...

Alike App

Browser

Indiana

830d

Hey! I’ve used catheters for the last 16 years. My condition is not due to a known injury. My dad also has to catch. I want others insights on how they cope. Once you are diagnosed doctors kind of let you find your own way. Thanks!

Top reply
    • Mikala

      797d

      @utiguy So sorry to hear that.

    • utiguy

      797d

      I absolutely can't self-cath. They act like I am a wimp for refusing to do it, but the few times I haven't was absolutely excruciating. Even with my partner helping I couldn't, and he says never again. I have had chronic prostatitis for almost 20 years, so cathing is difficult and painful. Urodynamic studies are useless because by the time they cath me to drain there's no way I can then pee on demand. At home, I frequently void 350+ ml. At the clinic, no more than 100.

      • Mikala

        797d

        @utiguy So sorry to hear that.

    • strawberrysoop

      829d

      ive cathed my whole life- whenever i feel down about it, i remind myself im saving on toilet paper by not making a mess down there and make a lot of jokes about how everyone owes me money bc it's *totally* ableist that im the only one who has to pay $2.50 every time i pee

    • Mikala

      830d

      Being a man would definitely make it more of a challenge.

      • Mikala

        797d

        @Mikala Yes, it does.

    • Mikala

      830d

      Before I was diagnosed with MS I had urinary issues and at one point I had to go into the urologist to have my urethra stretched, every week for a month.

    • Mikala

      830d

      Oh my goodness! I’m sorry to hear that.

    • Indiana

      830d

      Wow! That definitely puts things in perspective. Maybe it’s a guy (prostate) thing, but I’ve had problems where the urethra canal narrows with scar tissue. Twice I’ve had to go to the emergency room. The first time, after repeated attempts by nurses to insert a catheter, I had to have a skin graft with tissue from inside my mouth.

    • Mikala

      830d

      I have used catheters for 23 years now. I remember asking my doctor when I was diagnosed why I was so functional even with Multiple Sclerosis and my bladder stops working? He answered “Because you are lucky!” I’ve often thought about his answer and realized how catheterization is a minor inconvenience compared to not being able to walk or all the many other problems that can come with MS.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion