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Holz

275d

Something is going on with me, I’m sleeping 14/16 hours a day, I’m constantly in pain, my blood pressure is all over the place, I’m bruising very easily my skin so hypersensitive and a bunch of other things. This has been going on for months, I have pots I’m taking Ivabridine for it but all the other symptoms I’m having seem to have only gotten worse idk if it’s pots or something else. everyone around me just wants me to get over it, tonight I have chest pains, migraine, pain etc and they just rolled their eyes and said it’s indigestion. I had a doctors appointment a month ago and I’m still struggling I’m meeting with her again next week but I’m spiralling, anyone got any advice? I just want some help :(

Top reply
    • momewrath

      275d

      I don't know if this is all helpful or something you've already thought of, but it could be Chronic Fatigue Syndrome. I've been having similar symptoms and am currently waiting on blood test results. My doctor is pretty sure it's ME/CFS. It may be worth looking into.

    • FS_cookielove

      274d

      Is it with a pcp, cardiologist, or neurologist. A pcp wouldn't be the best to go for. My midodrine really works for my pots but I also have to drink water and eat 6 small meals a day and I don't do that so that can exacerbate my condition

    • momewrath

      275d

      I don't know if this is all helpful or something you've already thought of, but it could be Chronic Fatigue Syndrome. I've been having similar symptoms and am currently waiting on blood test results. My doctor is pretty sure it's ME/CFS. It may be worth looking into.

      • Holz

        274d

        @momewrath okay thank you will definitely bring this one up again

      • FS_cookielove

        274d

        @momewrath I think I have chronic fatigue syndrome but I also have scoliosis and kyphosis. How do they test for it?

    • ninners

      275d

      I’m dealing with the same thing right now… I have no idea what’s going on, but it’s so scary and I am struggling. You’re not alone 💕

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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I'm not a doctor, but it's important to discuss your symptoms and concerns with your healthcare provider during your upcoming appointment. They can help determine if your symptoms are related to POTS or another condition, and recommend appropriate tests or treatments. Remember, it's crucial to advocate for yourself and seek the care you need.

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