Constant Pain and Dismissal from Others

Something is going on with me, I’m sleeping 14/16 hours a day, I’m constantly in pain, my blood pressure is all over the place, I’m bruising very easily my skin so hypersensitive and a bunch of other things. This has been going on for months, I have pots I’m taking Ivabridine for it but all the other symptoms I’m having seem to have only gotten worse idk if it’s pots or something else. everyone around me just wants me to get over it, tonight I have chest pains, migraine, pain etc and they just rolled their eyes and said it’s indigestion. I had a doctors appointment a month ago and I’m still struggling I’m meeting with her again next week but I’m spiralling, anyone got any advice? I just want some help :(

Your answer

FS_cookielove

1y ago

Is it with a pcp, cardiologist, or neurologist. A pcp wouldn't be the best to go for. My midodrine really works for my pots but I also have to drink water and eat 6 small meals a day and I don't do that so that can exacerbate my condition

momewrath

1y ago

I don't know if this is all helpful or something you've already thought of, but it could be Chronic Fatigue Syndrome. I've been having similar symptoms and am currently waiting on blood test results. My doctor is pretty sure it's ME/CFS. It may be worth looking into.

Holz

1y ago

okay thank you will definitely bring this one up again

FS_cookielove

1y ago

I think I have chronic fatigue syndrome but I also have scoliosis and kyphosis. How do they test for it?

ninners

1y ago

I’m dealing with the same thing right now… I have no idea what’s going on, but it’s so scary and I am struggling. You’re not alone 💕

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